lymed out

my quest to getting these suckas out!

Hi. We kinda need 17,151 signatures by Feb 10, 2013.


buttAs you may or may not be aware, Lyme Disease is very hard to treat. I’ll put it as simply as humanly possible.

The ISDA (Infectious Diseases Society of America) Guidelines are in the dark ages. They think that it is something rare and if you do get it, that the cure is easily obtainable with 30 days of antibiotics.

But here is the problem. They don’t diagnose it. This misdiagnose it. AND, even if they were to diagnose it, they don’t have the right testing methods to do so. By this time, months and years have passed and those 30 days that could have cured you now turn into years of treatment that drain your bank account.

I can go on and on about the different scenarios that we face but then you will be here all night listening to me ramble and by the time I finish writing this post, I will be ready to commit murder.

Oh ya, Canada follows the same guidelines as the US.

So here is the bottom line, please click here and let your voice be heard. That is a large number of signatures needed 6 days. Can we do it? How can we make this go viral? Tweet celebrities? Justin Beiber? Help.

https://petitions.whitehouse.gov/petition/reform-infectious-disease-society-america-treatment-guidelines-lyme-disease/Pj9jG0pX

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11 thoughts on “Hi. We kinda need 17,151 signatures by Feb 10, 2013.

  1. The UK also uses the IDSA guidelines 😦

    I begged George Takei to repost it. He’s the most liked person on facebook… but nothing. 😦

    • Yes i see his posts all the time!! Ugh I wish we could do something! there are some celebrities who have had lyme, but I don’t think they want to post about it due to their careers…

    • Also I think being sick was such a hellish time for people, lots probably want to get as far away from it as possible. They may not even know about the petition.

  2. Reblogged this on Lemons 'n Lyme and commented:
    SIGN IT!

  3. reblogged it. I posted it on fb too, maybe some of my friends will sign it? Better then nothing

  4. I already signed, but I think a lot of fellow Lymies may be put off by the fact that they have to set up an account with the White House. I was hesitant at first, but then decided it was more important for them to know that I was a real person and signing once and not 1,000 times. I hope more people will realize this and sign.

  5. Reblogged this on Dancing with Fireflies and commented:
    Please take a minute to read this very important issue about Lyme Disease. Please share it and help us get the help we need. Thank you!

  6. Already signed and reblogged to share it!

Foggy brain or not, I would love to hear from you!

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