lymed out

my quest to getting these suckas out!

Archive for the category “bartonella”

It has been….


1 year, 4 months, 23 days since my last entry post.
2 years, 6 months, 3 days since my last lyme med.
5 months, 2 days since my last menstrual period.
🙂

baby

Yep. I am exactly 22 weeks today and I am 41.

I remember thinking back that my first set of “any” symptom was about 8 years ago. Before that I considered myself really healthy and hadn’t even seen a doctor 10 years prior to that. But here I am. I remember that when all my symptoms started, there was no way to expand my family because I was simply too sick and too tired and too old and that time was my enemy.

Well, screw all that. I figured out that if I don’t have another kid by 42, then I really won’t have a chance. This I consider my miracle baby because I had a dream about this baby a few years ago, right in my middle of my illness. (if you read that link, you will see why). I never thought that it would come true and believe me, I thought because I had this dream, that it would be easy as pie to actually conceive because God was in my favour, but it wasn’t. It took 7 months of trying and I was just ready to say forget it again just at that 7th month. But other insane supernatural things began to happen around this time, which I will probably have to explain in another post, but here we are now.

I have had every test done possible so far with my OB to test for the health of this baby and so far everything looks good. I am believing in that promise that God gave me so long ago that this baby will be healthy as can be.

This past week however has been one disaster after another:

  • Friday – started to get a sore throat (probs from 9 year old hacking)
  • Saturday – icky, headache
  • Sunday – had booked a trip for the weekend out of town and it was looking like I wasn’t going to have fun. Nights were terrible and it felt like someone poured liquid lava down my throat.
  • Monday – was determined not to have whatever ailing me to bring me down. Because I was preggo, this prohibited me from doing any sort of activity, but it was fun nonetheless watching my 65 year old mom do zip-lining with my husband for the first time. I felt like an old grandma taking kids to the amusement park because all I could do was sit on benches. I started experiencing that wierd cough I had last year similar to what I had after my pneumonia. It was bouts of uncontrollable coughing to the point of vomiting. When the attack comes, it’s enough to make you leave the presence of everyone out of embarrassment. You start tearing. Your face turns blue. The attacks came about 3-5 times a day.
  • Tuesday – on the drive home, husband made me a doctors appt. My Doc was on mat leave so the replacement Doc said I had something but there were missing pieces due to my symptoms. The throat swab showed no strep. I had no fever or chills. So he diagnosis it as allergies most likely because he has no answer. Despite the fact that I have never had any history of allergies
  • Wednesday Morning – my husband was a witness to one of my coughing fits and him being a person with seasonal allergies for most of his 42 years of life deemed that “my coughing was no allergy”.
    Wednesday Night
    – My left eye began to hurt, like someone threw sand in it. Ughhhh Ok what now? After 30 min of rubbing it, I went to the mirror to see what in the living earth was going on. I saw pieces of yellow stuff. Gross! I wiped it away thinking something probably got stuck in it. But wait, there was more, up all the way behind my upper eyelid? WTH?? Hello Google. Hello pink eye.
    1:00 AM – Feel asleep dreaming of pink eye and then got up to use the bathroom (which is now a nightly 6x habit due to the baby hugging my bladder). Had to blow my nose from bad congestion and then immediately later felt like something was falling out of it. If I had not switched on the light in the pitched black, then I would not have seen the Niagara Falls of a bloody mess spewing down my nose. I texted my husband (who was in the basement at that time doing gawd knows what), “come up, I think I’m dying.” I haven’t had a bloody nose since I was 16. Now, from my past experience, I knew that when a major blood clot came, that it signaled the end of the nose bleed. And guess what, it happened again. This blood clot was the nastiest thing if ever I have witnessed in my human existence. It was like a long 10 inch of a red alien thing that looked like it came out of Ripley’s stomach. I am pretty sure it had teeth.
  • Thursday morning bright and early – went back to doc, but to the walk-in this time – “Your pink eye is viral, not bacterial” she says “so antibiotics won’t help. Plus you are pregnant, so I can’t give you anything. If it persists, come back in 3 days. But that’s a Saturday, and we won’t be open. Ok bye!” Well, according to Google, yellow pus = bacterial. Whatever. I went to my health food store, asked the lady and she told me to buy this. Guys, my eyes are white again.
  • Thursday Night – My cough however was getting worse. My ribs and muscles now hurt. At one point I coughed so bad, I had to change my panties because I peed! My friend mentioned whooping cough at some point, but I dismissed it. But that night when I was awoken from my precious dream of red bloody aliens, I actually heard the “whooping” in between coughs as I couldn’t catch my breath. I figured out the reason I never heard it during the day was because I was trying to stifle it. I found this site. And I am 100% certain that this is what I have. Same thing as last year only I was never diagnosed. So armed with info, guess what I did?
  • Friday morning bright and early – went back to the walk-in, got a different doctor, told him I think I have the whooping cough and that Zithromax was given to me last year. “Oh but Miss, have you been around or heard anyone with the whooping cough?”. Um No. “You don’t have the whooping cough, you have a bad viral something, but because you are pregnant, I can’t give you anything except Amoxicillin. Or you can drink lots of water and keep your humidifier on 24/7.” Gee thanks. I said No to the Amox and left. I decided this was just like lyme, but with something else. And really, I am just tired of trying to prove anything to anybody, so I said to hell with it, went to the mall and paid $220 for a haircut that I never knew would cost $220.

I have figured out now through this journey that nobody really gives a shiznick about you. I am not saying this because I am feeling offended or anything but this is the reality. With this latest crap of sickness, I don’t really care, I just know that I will get better, I’m not going to waste time trying to figure it out, go on Google, worry about the baby, I will just trust that everything will work itself out.

My guilty pleasure is The Real Housewives of Beverly Hills and I have watched Yolanda Foster’s journey. This entire season, her lyme was questioned and she was shown in the spotlight as having Munchausen Syndrome. The editing was so good on it, it even made me question her illness and sanity which in itself is insane seeing I went through the exact same thing as she! But I had to jolt myself back to reality. The thing is, nobody will get it unless they are in your shoes, in your body, in your head 24/7. Nobody will understand. And that makes you feel alone. I get it. For me, I find the situation worse when I have to try to convince other people of what I went through or what I am going through, it is just an added stress. So I have finally figured out that it’s useless to even bother talking about it to anyone who doesn’t understand. THEY. WILL. NOT. GET. IT.

Scrolling through my useless FB feed, this news pulls this up. Paralysis: Vet Intern Discovers Dog’s Condition Caused By Tick Before Euthanization. Sure, this makes national headlines and yes, it’s a feel good story and I’m glad the dog is ok, but if a frigging tick can do this to a dog, do people not realize what it can do to humans? Can I just say a big hashtag of DUMB?

Sorry enough ranting. Hope ya’ll are doing good.

After you read this post, you will drive yourself to the nut house.


Sept 11 was my 4th LLMD appointment. I see her every 6 months. She is a 5.5 hour drive from me. We left at 8:30 pm because my husband had to work. At about 2:00 am when we crossed the border into the USA, this happened.

photo 1

No, that is not the eye of Terminator, that is a cop. He said we were doing a 65 in a 35 zone. I am not sure what this means because I speak in kilometres. Moreover, it was 2 am, pitch black, country road, no signs anywhere. We played the foreigners game and he let us go.

We arrive at the hotel at 2:30 am. 6 year old loves staying at hotels and woke us up at 6:30 am because he was all excited. YAY.

I twiddled my thumbs until 10:15 am because my appointment was at 10:30 am. I later found out that my appointment was actually 10:00. I wasn’t aware the new policy that you have a PRE-appointment with a nurse. YAY.

It’s a 2 minute drive from the hotel to my doctors office, so that was the only thing easy about this day. I can sum up the appointment into 2 sentences.

I basically told her that I need something that will kick me in the pants for the last and final time and drive these mother !@#$%$^^ out of my body so that I can live in peace and lead a normal life. She is having me stay on the same treatment (Alinia, Artemesinin, Bab2)  but will adding 2 other antibiotics into the mix. Namely Malarone (never taken it) and Zithromax (which I was on last year).

Here is where it gets fun.

First of all, I will have to go and get Alinia AGAIN. I simply have no words. Here are my Alinia adventures here, here, here, and here.

Now my Malarone adventure beings here.

I leave her office with the 3 prescriptions in hand. Alinia, Zithromax, and Malarone. The receptionist gave me some discount cards which can be used at pharmacies.

Mission: Acquire the 140 pills of Malarone.

DRIVE TO TARGET
They don’t have Alinia, they don’t have Zithromax, but they do have Malarone (only 49 pills).

DRIVE BACK TO HOTEL TO PICK UP HUSBAND AND CHILD AND CHECK OUT

DRIVE TO WALGREENS
They have Alinia, they have Zithromax, they have Malarone. YAY
Pharmacist: Maam, your total for all these will be $5,490
Me: UM, Hang on, let me clean the wax out of my ears. COME AGAIN????
It turns out the Alinia was $4000.
Me: NO THANK YOU SIR! I will go back to my computer and buy it online and go through customs and curse all day. BUT I will take the Malarone and Zithromax for the cheap price of $900.
Pharmacist:  Great! Let me check if we have them in stock
Me: UGHHH
Pharmacist: Oh, sorry we only have 72 pills of Malarone.
Me: Target has 49. Can you guys somehow make it so that I can get this?
Pharmacist: Yes, here’s the RX number, go and call Target and give them this and we will transfer them the files. Come back in 25 minutes and pick up your meds.
Me: Great. Thanks

I call Target. No answer. I get back in the car with Husband and Child and say to hell with it, we are driving back to Target. But wait! Lets check out Kmart and Walmart first.

DRIVE TO KMART
Me: Hi how much Malarone do you have in stock?
Pharmacist: 8 pills and we don’t have the generic.
Me: Thank you. Bye

DRIVE TO WALMART
Me: Hi how much Malarone do you have in stock?
Rep: Honey you are in the wrong line, you have to go over there.
Me: OMG SOMEONE SHOOT ME PLEASE?
Pharmacist: we have 15 pills
Me: Thank you. Bye

DRIVE BACK TO TARGET
Me: Hi, I was just here and went to Walgreens. They have 72. Can I get the other 49 from you?
Pharmacist: No sorry we don’t that.
Me: Walgreens says you can. Here’s the RX number
Pharmacist: Oh ok, then. Come back by 1:30, because we close for lunch and won’t open until 2:00 PM.
I look at my watch. It’s 1:12.

AT THIS POINT, I AM READY TO COMMIT MURDER.
If my math is correct, my presciption for Malarone is 140. Target has 49, Walgreens has 72 which only equals 121. LIGHTBULB! Walmart has 15!

DRIVE BACK TO WALMART
ME: Hi again. (with a super fake smile). Can I please get the 15 Malarone pills you have? Here is the RX number. Thank you and goodbye.

DRIVE BACK TO WALGREENS
Made it! Picked up the 72 pills
Husband: OMG YOU FINALLY HAVE SOMETHING IN YOUR HAND!
Child: MOMMY! WE HAVE BEEN DRIVING IN CIRCLES FOR 2 HOURS, IM HUNGRY WAAAAAA!

DRIVE BACK TO TARGET AT 1:29 pm
Made it! Picked up the 49 pills

DRIVE BACK TO WALMART
Made it! Picked up the 15 pills

Still short 4 pills. Do you think I care? HELL NO!!!!!!! And here’s the cost of this week’s episode of the Amazing Race.

WALGREENS
Zithromax: $612.43 (with discount)$ 497.37 = $3.55 / pill
Malarone: $444.69 (with discount) $238.57 = $3.31 / pill

WALMART
Malarone: $87.08 (NO discount) = $5.80 / pill

TARGET
Malarone: $359.27 (NO discount) = $7.33 / pill

Total Spent on Doc and Meds: 1618.59
Hotel: $80
Food: $50
Gas: $120
Sanity: Priceless

Now, can someone please send me a medal?

My Green Monster


I’ve seen this documentary advertised sometime last year on Netflix and have been meaning to watch it and finally, I sat down and searched Netflix and of course, big surprise, it isn’t available in Canada. The documentary is called Fat, Sick & Nearly Dead.

I was completely moved by it. Before I was researching on my Blendtec Blender, I was considering a juicer. What discouraged me from getting a juicer was because of the amount of produce and veggies that you need to have in order to make just one cup. And the work involved. Cuz I’m lazy.

Before watching this documentary, I considered it again and did some more research. Then I watched the documentary. After watching it, I got on my computer and looked for a juicer. I didn’t want to purchase one too hastily, so I let the thought marinade in my head for another week and then I saw a sale for the Breville 5 Speed Juicer on sale for $249 ($40 off) with free shipping. I purchased it immediately. Yes it’s a bit pricy, but it’s well worth it. And I love it. It’s a Centrifugal Juicer, not a Masticating Juicer. You can read the pros and cons of each here.

It’s not hard to use at all. I had no idea how to juice, or what to do, I  just watched the documentary, read the manual, found some recipes online, went to the grocery store and bob’s your uncle.

breville

Why I wanted to Juice.

  • Juicing (80% green veggies, 20% fruits). You absorb all the nutrients from these fruits and vegetables in one single cup. As you can see from the picture below, there’s no way I would eat all that in a day.
  • My neighbour has been raving about it for a year and she is a living testimony of how effective it is.
  • My other neighbour mentioned to me that she knew a woman with lung cancer, got treatment, started to juice and the cancer is not there anymore.
  • Watching the documentary solidified (for me) the importance of juicing.
  • I want to get really healthy. Not to lose the weight but for nutritional purposes.
  • We are what we eat!
  • http://articles.mercola.com/sites/articles/archive/2011/11/13/benefits-of-juicing.aspx

05

What the juicer does.
Some may wonder if the Juicer is the same as a Blender. A juicer extracts the juice from fruits and vegetables. A blender liquifies and emulsifies ingredients. For more on the difference, read this great post here.

What I made.
This was my first juice. I used some celery, carrots, a couple apples, and thumb of ginger. I had no lemon. So it didn’t taste particularly great. So I made a mental note to purchase some lemons the next time to balance the ginger.

Many people advocate that you should buy organic because of the pesticides. However right now, we are in the middle of winter with -5 degree weather so I won’t be finding any local vegetables and produce here so I’ll have to make do.

01

My Green Monster

{makes about 2.5 glasses}

  • Handful of Spinach
  • 3 Leaves of Kale
  • 3 Stalks of Celery
  • 3 Carrots
  • 2 Granny Smith Apples
  • 1 Red Gala Apple
  • Half a Cucumber
  • Half a Lemon (a must!)
  • Thumb of Ginger

Tastes Flipping Fantastic. The ginger really gives it a kick. I drink one cup immediately, give another half to 5 year old (with a tea spoon of honey and he loves it) and throw the rest into an air tight mason jar into the fridge. This needs to be consumed within the day because it will oxidize and lose nutrients. What to do with the rest of the fiber? I compost it. There isn’t a whole lot. Some use it to bake muffins or something, but I find that a little gross.

03

02


Negativity

I searched for negative reviews on juicing. And of course, there are naysayers. One particular article here, I can rebut almost all points. These points appear in almost all negative aspects of juicing. You can read more on the points in that article. While they are legitimate arguments, common sense wins every time. Here are my opinions on their points.

Expense
Yes it’s expensive, but I would rather pay $249 rather than $10,000+ on medical care (as I have).

Disinfection and Cleanup
It’s no different than cleaning and disinfecting your bathroom. Or cleaning your baby’s diaper. How lazy can can one be on their own health.

Microbes
Buy from local farms and well known sources, and wash your vegetables and fruits well.

Loss of Fiber
Who cares. I would risk the loss of fiber to gain the nutrients from juicing and get the fiber somewhere else. Duh!

Lack of Convenience
Unfortunately, our world has become fast paced. We need to stop and smell the roses. I say this because I was there. It’s all in priorities. The 15 minutes it takes to juice is the same 15 minutes you spent looking at someone’s facebook page.


04

My tips on juicing

  • Organization is key. Have all your vegetables prepared and ready to go.
  • Clean and wash whatever is in your sink and put it away. Have a clean countertop.
  • It is a bit of a clean up, but as the documentary says, No Pain, No Gain. Deal with the washing!
  • You need to wash the filter immediately or else the fiber will get hard and stuck and you will cry when you try to wash it.
  • Some vegetables I prep for the next day, like peeling carrots and cutting up celery. Then store it in a glass airtight container and store in fridge

After my first juicing experience, I noticed a boost in energy within half an hour. My mind was telling me to take a nap, but my body wasn’t letting me. Each time gets better and better. I now drink 2 glasses a day and will be incorporating this into my lifestyle.


Juicing for Lyme

Here are some great blogs on those who juiced because they had Lyme.


My Final Comments

I hope this blog post inspires you to start juicing! I’m only a week into it and it’s been really great. I can’t wait to see the results after a year!

LLMD Office Visit – September 2012


DISCLAIMER: PLEASE SEE YOUR OWN LLMD FOR YOUR OWN SPECIFIC TREATMENT. DO NOT GO ON ANY LYME PROTOCOL WITHOUT FIRST SEEING AN LLMD.

Don’t ask me how I am finding the time to write this post. Today included a whole lot of running around and much of 4 hours were dedicated to waiting rooms, blood tests, medication refills and the like. If I added up how much time I have wasted due to this nonsense, I would have been able sew a quilt the size of a football field.

Saturday morning started with us driving up to Montreal, forgetting our passports for the NY Border crossing, turning back, but we eventually made it. Tuesday I was scheduled to see LLMD. Husband and 5 year old dropped me off and headed to the mall. I was 15 minutes early. The clinic was awfully quiet. The nurse took my vitals. She mentioned to me that the wait list now is up until January 2013.

Height: 60 in
Weight: 100lb (YIKES!!!!!)
Blood Pressure: 122/88 mmHg
Temp: 98.4 F
Pulse: 78 bpm
Resp Rate: 13 rpm

As the LLMD was in with a new patient, it went on longer than usual and I waited another 25 minutes. But I was welcomed with the biggest open arms. I asked if I can record the conversation on my phone because I will most likely forget what anybody said. The conversation started with me describing the second worst herx of my life (which actually ended on the Sunday). So as we speak, I’ve been about 4 days symptom free.

We went over my symptoms:

  • Burning Fingers, nausea, vertigo, drunk, head pressure, night terrors, anxiety, not hungry until moving around, all symptoms of underlying Babesia.
  • Metal taste – can be due to the Clarithromycin. Also due to heavy metal exposure. I asked if I should get the (3) silver fillings removed in my teeth. I was advised this was a wise idea but to make sure it’s done with a biological dentist. Even if you have an oral dam, you will still need to have oxygen, a mask on, air expeller etc. Since you are getting better, you will minimize the risk of mercury exposure by going to the right dentist. They will also give you IV Vitamin C after the treatment. If you do it, do it right.
  • Math is the first thing to go with adults and children. Even an accountant who can balance something in minutes will now take 20 minutes.
  • Hormones can change because of Lyme
  • Beware of drinking from plastic bottles, lotions, petroleum as they have plastics in them. Use extra virgin coconut oil.
  • Colon hydrotherapy and coffee enemas. Highly recommended.
  • Beware with GMO. No canola oil. Stay on a healthy organic diet.

I also typed up a list of questions for our visit which are summarized below:

Q: On the 1st and 2nd round of Pulse A and B, I did really well. On the 3rd round of Pulse B, things started to get a little worse. More cotton head, vertigo that lasted 2 weeks. One night had the shakes really badly, cold clammy, hot and cold. Was this a herx or candida flare up?
A:
Symptoms get worse in the spring and fall. Was a possible herx. If it were candida, it would persist. With a herx, you will feel all these symptoms that are horrible, but they will get better. Hasn’t seen that with candida. If it were candida, they wouldn’t really get over the herx, newer symptoms would persist such as abdominal distension, trouble digesting food, coated tongue, sore throat, lots more joint pain, peri-anal itching. Yeast makes acetaldehyde, a chemical not good for the body and the liver will turn that into alcohol. As my symptoms went away, it probably wasn’t a yeast issue.

Q: Can I mix 50% alcohol teasel root, Kombucha with tinidazole.
A:
No. You shouldn’t mix. Even if you dine in a restaurant, make sure you are aware of what they are marinating the meats with. Even a wine marinade will cause a bad reaction. Remember this rule applies to Metronidizole (Flagyl). Kombucha is a fermented tea, however it may not make enough alchohol to warrant a reaction. But do a quick google search just in case.

Q:  How to bring up WBC levels. Should I be concerned with blood labs at all? Mine has been a steady 3.7.
A:
Be happy with a 3.7. Sometimes they will come up on their own after treatment. If they fall below a 3.0, patients are taken off meds immediately. If it goes below 3, patients are required to skip a day of medication per week. Choose the same day every week (Monday) to skip. Another way to bring up WBC levels is Cordyceps, a mushroom that can support the WBC. Low WBC means chronic infection. It can be toxins or mercury, which would bring me back to the silver fillings issue.

Q:  Wanting to testing 5 year old at appointment / recent Spider Bite in Sept 1 / No symptoms but diarrhea.
A:
Symptoms of children are hyperactivity, but hard to diagnose because boys are hyperactive to begin with. Other signs are “my tummy hurts, “I’m tired, carry me” (on a constant basis). Treating children with Cowden Condensed Protocol and they usually do well with it. Diarreah is not typically a sign of lyme, it just means his immune system is in overdrive.

Q:  Do any of your patients relapse? And if so, what is the treatment and is it quick to “bounce back”?
A:
Patients do relapse. They are treated with Doxycycline and Clarithromycin and a pulse of Metronidazole just to prevent a cyst form of Lyme from popping back up. Within 4 – 6 weeks, patients improve. It’s not going to be like starting over from square one.

Q: What if I get bitten again?
A: You have no immunity. None. Nada. Be careful where you choose to vacation. It is not all about Lyme. Sandfleas can spread infection. People are coming from all over the world, they are bringing their infections and there is a greater exposure. They are getting bit my mosquitoes and sandfleas. Sandfleas are notorious for giving the bartonella infection. Beware of Cuba and Dominican Republic. Do not allow yourself be bitten. Sandfleas look like tiny grains of sand jumping. Be inquisitive. Keep watch on the beaches. Do not sit on sand. If there are not enough chairs, sit by the pool. Or better yet, sit on concrete! When on a resort, some have private beaches where there are grass. Don’t sit on the grass. Get Samento which really helps.

Q: What is the CD57 test?
A: At first when it was published, CD57 was diagnostic of Lyme. And only people with Lyme had a low CD57. However in recent discussions, patients who have low CD57 have improved, others who have high CD57 were the sickest people ever received. It doesn’t look like a fool proof answer to anything. If you want to measure it before you off antibiotic you can. Gamma Dynacare offers it in Toronto. Or you get it through Igenex.

Q: When I can think about getting pregnant?
A: Would like to prescribe Cefuroxime and Zithromax a few months before hand. And take it during pregnancy.

The best sentence of the day said by LLMD.

Be weary about trusting tests. It is not about proving it on a piece of paper. It’s about how you feel.

Treatment Plan: September – December 2012
I will be on the exact same treatment plan as I have been for the last 3 months because I’m doing really well on it. We may change it up in December 2012 or March 2013.

TREATMENT PROTOCOL #3
October 2012 – December 2012


  • PULSE  A: for 10 days
    Clindamycin 150 mg (1 pills 4x a day)
    Quinine 200 mg (2 pills a day)
    Bab2 (by Beyond Balance):  23-50 drops (2x a day)
  • PULSE  B: for 10 days
    Plaquenil 200 mg (1 pill 2x a day)
    Tinidazole 500 mg (1 pill 2x a day) – Due to my intolerance of Flagyl, I’m taking this instead. Say hi to Flagyl’s sister.
    Clarithromycin 500mg (1 pill 2x a day)

Rotate these 2 pulses every 10 days for 3 months.


More Stuff

I got my little buddy the #188 and #189 Western Blot with Igenex. LLMD’s nurse drew the blood. He was a trooper and didn’t cry at all. I will get the results in 3 weeks. If he is negative, I won’t look at the $200 as a waste of money. I will have peace of mind and also that may be a good sign for me to gauge how long I’ve had it. If he’s positive, that’s another story and a whole other can of worms.

I was also concerned about the white thrush on my tongue. I was prescribed with Diflucan, or I can go on Grapefruit Seed Extract, Fiji Tea, adding fresh organic garlic to food (raw and crushed). Garlic also stimulates the immune system, improves circulation, kills intestinal parasites and lowers blood pressure. It is a powerful antioxidant. I can also use Caprylic Acid, a fatty acid supplement derived from coconut oil and is specifically effective for killing candida overgrowth in the intestines. (should not be taken by people who have ulcerative colitis). I can also optionally start on InterFase by Klaire Lab for the treatment of biofilm.

However as LLMD prescribed me with the Diflucan, my Canadian doc thought that this was too harsh on my system so prescribed me with Oral Nystatin (shown above) for 10 days. I am not sure what to do with this so I have to read up.

I also inquired about B12 injections and so I was prescribed with syringes and stuff that needs to be purchased through a compounding pharmacy. It is for 3 times a week. I hear that a normal person would do it once a month. Great. More questions from the pharmacy. I am not exactly sure what to do with it all, but my good friend over at Lyme Maze has sent me lots of info on where and how to properly inject this stuff into your buttocks. Getting the stuff is another story.


What I did today.

We are heading to Orlando Disney tomorrow! Even though I should have been packing, I was busy for most of the day as mentioned trying to get the above prescription re-written and filled. I didn’t go to Costco this time, I went to a pharmacy beside the clinic and the pharmacist asked out of curiosity why I’m taking all these meds. I said Lyme. She nodded her head. She knew it. She had another person have the exact same thing with the US Prescriptions. She said that Lyme is very rare. I said it’s often misdiagnosed as something else and we got into the whole politics of it. She was very interested.

And I also did my monthly blood labs. I did manage to get a requisition for the CD57 blood test even with everyone scratching their heads as to what this test was about, not only the doctor, but the nurse and the medical lab person who draws the blood. They all know about the CD4 which is the HIV test. They don’t offer the CD57 it at CML Health Care, so I will need to go to Gamma Dynacare.

This past weekend out of town, my husband and I also celebrated our 12 year anniversary. Well that’s officially on paper. I have known him since I was 12 years old, which means we have been in each others lives for about 26 years. As I was sitting down about to type this post, I see a little card stuck underneath my keyboard. I opened it and the last paragraph was this. 🙂

Ok, this was a very long winded post, I will end this for now. I survived our 11 hour drive total and about $1000 gouge into my pocket in total for this round trip of meds, tests, gas, consult fees, herbs, meals. UGH!

I will reconnect with you after we have oodles of fun with Cinderella and her step sisters! There will be lots of walking, and food challenges I’m sure. Hope I survive!

I’m such a flippin hypocrite.


I think this has been the longest time between posts. That is because I have been running around like a chicken without a head feeling all great and then it’s all fun and games until someone loses an eye. I don’t know what precipitated the reasoning for it because it came out of nowhere. One thing that does come to mind would probably be bad eating.

I have been screaming to the hills and to anyone who would listen that food is our medicine. I was ready to embrace the Paleo way of life. However, what have I been doing? I have been eating breads, strawberry jam, spaghetti with sauce, ketchup, hotdogs, many variety of late night snacking of chips, Doritos, cheetoes, cheesies, “gluten free” brownies, all and any yeast ridden and sugary foods. It was inevitable.

OR, it could have been the germ cycle, bad karma, another lyme curve ball, whatever. Point is, you never know when it hits and that’s the stupid thing. I’m just so literally done with this. Sooooooo absolutely done.

Monday – started my Pulse A treatment. The all too familiar signals started creeping in. Cotton head, fatigue, buzzing head, heart palps. I did my usual Monday morning infrared sauna, which I think may have brought on a herx. I usually notice it getting worse as soon as I get out of the shower.

Tuesday – I was up and down all day with the majority of the day being on the couch. Cotton head again, in and out nausea, hunger, not hunger, weird stomach feeling, like a baby was moving in there. Stomach cramps, but more like menstrual cramps. I notice that symptoms come around ovulation time and according to my app, today is the day (see app below).

Wednesday – Another round of infrared, nausea-ish came throughout the day, I had to whip out the smelling concoction my neighbour made for me, something I haven’t used since May. The feeling of fullness came again, one bite into food and I would feel like gagging. 2 minutes later, I would feel hungry. Like seriously, make up your flipping mind. 5 minutes later, I would be fixed to the chair and couldn’t move because any movement would make me nauseous.  Even the sound 5 year old talking would make me nauseous. Even the sound of a stair creaking would make me nauseous.

Thursday (today) – symptoms diminishing, I see a light at the end of this god forsaken tunnel. I did the body brushing. I manage to do some grocery shopping with my mom for 2 hours in the morning, came home, made some lunch, picked up 5 year old from the bus stop and ran out again to do errands. The majority of the day was in and out cottonhead feeling again. Nausea was probably a 3 out of 10. Just did another emergency infrared in my basement tonight.

As I’m typing this, I’m much better. I hate writing when I feel like crap. Mainly because a) I feel like crap b) I don’t like writing when I feel like crap. I don’t want my posts to be like “OMG, please kill me, I’m dying here, I hate this, why me, what did I do to deserve this blah blah“. Which would scare people, especially newly diagnosed people and really, who wants to read that?

I remember when I was a Lyme newbie, I was searching endlessly on youtube (against my better judgement and warning from Lyme Buddy) and guess what the majority of videos were; people in the midst of herxes. Something very overwhelming to the youngling, wondering if their life was going to be this vast emptiness of despair and pain.

So, moving forward, whatever kind of herx I was in the past 4 days, was still some kind of herx and it did end or is ending. Not nearly as bad as my last major herx, but definitely one for the books. I would consider this my second major one. Yes people. Herxes end. They are just symptoms. I have finally got my head around this one.

As I was on the couch, I started googling (against my better judgement again), but I’m glad I did because I found this blog. lymechronicle.blogspot.ca. I mention this blog because his story is unique and very very similar if not identical to mine. We both started off as being diagnosed with Acid Reflux related issues. And guess what, we are seeing the same LLMD. And guess what, I think he lives within 15 minutes of me. So I sent him an email introducing myself and discussing my weekly woes and he confirmed with me that DIET IS KEY! And guess what again? He went Paleo! NOT a coincidence that I ran into him.

This Saturday, we make our way up to Montreal which is about a 4 hour drive. Then I see LLMD next Tuesday which is another hour out. Funny enough, I haven’t been overly anxious like I would have been in the past. I am hoping that by Saturday, this nightmare herx will be over. At least for the most part. But if it’s not, I’m not too overly concerned.

This morning in the shower, I had this peace come over me. Like I wasn’t worried about the symptoms, and the major journey that I will be taking in the next 2 weeks which involves a 14 hour drive + 6 hour flight which will end with seeing Mickey. I had this overwhelming sense of calm (in the midst of all my herxing) that I just knew God would take care of me. It’s definitely a peace that passeth all understanding.

So… what did I buy at the grocery store? Lots of fruits, nuts, dried fruit for snacks in the car. I know grains aren’t Paleo, but I did need my Ezekial 4:9 bread (at least for next week). I did a search on how to eat Paleo at Disney and there aren’t a whole whack of options so they say. But when I get back, I intend on doing a major shift in my diet.

IPAD app for the ladies: PINK PAD
I got this app about a year ago. I have been tracking all woman’s stuff on there plus all my herxes. You can see my little green “sick” icon on the days I’ve been sick this month and now there are many “happy faces” creeping back into the calendar. There’s a section for notes, weight, ovulation tracker, + a running summary and charting feature, etc. Very handy! Get Pink Pad here!

Ok that’s the end of my post for now… have a good night!

I wish I could just shake it out of you!


The title of my post as said to me by my beloved mother in law so many times when she witnessed my unwell-being. She always ended this statement with a big gigantic hug. Oh how I wish I could just shake it out of me too. I love her.

This post is just a myriad of miscellaneous items. Today I somehow stumbled on this website www.lymetap.com. It’s a place that will help fund your Lyme Tests should you qualify. It looks like it’s a great resource for those who cannot afford testing. Check it out.

We finally booked our Disney trip this morning for end of September. I have been procrastinating and stalling and decided that I won’t be piggy backing it to see my LLMD in New York because there are no direct flights from my LLMD’s office to Orlando. And I will not sit on an 8 hour flight to Disney, when it takes only 2.5 hours. So hopefully now, my focus now will shift to Disney sites rather on webMD.

Yesterday, I went to see my Dentist for a regular checkup. She asked me how everything was going the Lyme. I said “Did you know that the amoxicillin that the other Dental Surgeon gave to me actually caused me to suspect Lyme?” She said “really?”. I didn’t bother going into the whole herxing on amoxicillin because I wasn’t in the mood to explain. As we chatted more the conversation went like this:

Her: I didn’t know you can get Lyme here.
Me: Um ya, you can, it’s everywhere!
Her: Did you start to get mental issues like remembering things?
Me: Oh ya, I kept asking the same questions over and over to the point where my family thought I was nuts.
Her: You know, I was reading about this doctor in Quebec who got it and she started forgetting things with her patients and one of her patients thought something was off and mentioned to her that maybe she has Lyme.
Me: Yes, the doctor you speak of is treating me for my Lyme.
Her: GET OUT!
Me: Yes, she had Lyme and got treated and has now dedicated her whole practice to treating Lyme.

How I am doing:
I haven’t really posted much on my progress in the past while because there was nothing really to report. I had major headache issues last week for a couple of days that came from nowhere. I rarely get headaches at all. I was going for a while being stress free from actually working and taking a small job here and there, but as you know, when it rains it pours, so all of a sudden, I am getting quote requests left and right.

The buzzing has crept up again and sometimes will wake me up in the morning. I was going pretty good for that long stretch of about 2 weeks. However last night, maybe I binged on some Chinese stir fry a little too late because all I remember was asking my husband to get the pepto. I couldn’t wake up this morning again for the life of me and it was my son’s last day of school and I didn’t even see him off. This morning and afternoon I felt off again with a fullness in my chest, food seems stuck in my throat, no appetite, a little semi nauseous so I’ve been smelling that peppermint thing like some addict. People are probably looking at me all funny thinking: What is this woman sniffing this Kleenex for.

In the afternoon, I started to get excess saliva again. I noticed this happens when I start to feel this weird nauseous feeling. I went into the bathroom and did my usual tongue  check and I almost had another heart attack. That black colour came back. I quickly remembered that Pepto can do this and I am praying it’s Pepto because I cannot go through that again with the Flagyl effects. I quickly googled and indeed Pepto can cause tongue discoloration. I now check my tongue every day and it was a good pink until this afternoon. So it has to be the pepto.

My doxycycline is running out on Monday and my phone consult with LLMD is on Thursday. So right now, I am rationing the pills. I skipped for a day and a half and noticed that I was feeling not that great, so now I’m paranoid that if I get off this I will feel worse. I may have to dose it down so it lasts me throughout the week. I know that she will give me a new prescription and change up the medication so now I have to decide if I want to go to Dr. Gollum or Dr. Handsome Chest Hairs to re-write the prescription. I called my insurance company and they said they have never worked with Canada Drugs and that they will get back to me once they found out. And so far I haven’t heard back from them. Lovely.

Well that’s it for now.

OMG, I got an Email.


Many thanks to Becki @ http://warmanddry.wordpress.com for sending me this pill box picture because that’s how I feel right about now.

I don’t understand the Canadian Medical System. Back around 1994, email first came out nationwide. I know this because I was in my second year of University and we were all required to get an email and at that time, we were like What is That?

So with that said, I don’t understand why 18 years later in this land of technology, why Doctors are still faxing things and calling, and requiring you to make an appointment to get results. About 2 years ago, I had a Celiac Blood Test done by Dr. Cross Examiner. The results were never given to me, which means that it probably came out negative. A few months ago, I called Dr. Cross Examiner’s Idiot Receptionist and asked if she can fax a copy of my results to my LLMD.

Her: “Oh no, we can’t release your results unless that specialist asks for it.”

Me (thinking “ughhh”.) “Ok, I can come and pick them up because I am in the area.”

Her: “Oh, no, you can’t come in, Dr. Cross Examiner has to approve it, and he is not here right now and I can’t give it to you for your own protection.”

Me: “HUH? Um, ok, but I paid for this test, and it belongs to me. I don’t understand, I have my OHIP card which clearly shows my picture, my birthday, my name, my address and proves that whom I am is who I am.”

Her: “I’m sorry it’s for your own protection. I have to ask the Doctor before releasing a copy of the results.”

So basically what Idiot Receptionist is saying is that I can’t have my own records which I paid $80 for because OHIP didn’t cover it and she is doing me a favour by protecting me from my own information.

Nice.

So, enter now the realm of my LLMD. Her philosophy is that anytime she gets results from anything, it gets IMMEDIATELY released to to the patient. No, not by telephone, not by fax, by EMAIL. Oh the horror!

So that little story really was to let you know that I got my second blood labs done. My LLMD said I have a decreased White Blood Cell (WBC) count. Last month it was 5.1. This month it is 3.5 which means that it is considered low/abnormal. White Blood Cells fight infection, so when it’s decreased, this means that if I am around someone who is sick with the cold or flu, I will be more susceptible in getting it. A decreased WBC could be the result of the antibiotics I am on. My LLMD said that I need to get another round of labs next week and if it continues to be low, that I might need to do the meds every other day. I don’t know if that’s good or bad. I guess it could be good, it means that I only get nauseous every other day. YAY. Looking forward to that.

Blueberry, Banana, Mango, Spinach Smoothie


  • 1 cup of Coconut Milk
  • 1 cup of Almond Milk
  • 1 Banana
  • Âľ cup of Frozen Mangoes
  • Âľ cup of Frozen Blueberries
  • Handful of Spinach
  • Dash of Pure Vanilla Extract
  • 4 tbsp of Kefir

Blend it all! I was hesitant adding the spinach but I read that you don’t really taste it. I loooooove spinach but not sure how it would taste “raw”. But the outcome is fantastic. You don’t really taste it in the smoothie, but you know you are getting your greens in this serving. This recipe yields about 2 glasses.

On the Lyme Front:
After my dose of meds at 7:00 pm, I was overcome with nauseousness again, however sniffing my essential oils rather than downing the Pepto seemed to alleviate it and by 8:00 it was gone. This time, I pretty sure it was the meds that did it, precisely the stupid doxy as I wasn’t really on a full stomach when I took it. I’m nearing 2 months into antibiotics treatment. Today, after the morning dose, I felt off again but quickly recovered, went into the sauna and now feel really good. I am on 3 drops of Grapefruit Seed Extract (NutriBiotic Brand which I bought here). Now I can really taste it. It’s completely GROSS. I can’t describe it, just a really bad after taste. Worse than the Chinese Herbs that I got last year that tasted like manure. I think I need to drink it with some juice and I will sacrifice my health right now with the sugar content from the juice, but seriously, it’s awful. I can’t imagine 10 drops.

I attended the weekly webinar last night held by Dr. Ross in Seattle and asked a couple of questions. I have been doing this weekly since February and I cannot rave enough about him. I wish he lived in Toronto. I wish he was my brother, or father, or relative. I asked about mid-cycle spotting because that’s what I have been experiencing ever since starting the medication. He said it could be the Zithromax and that Lyme does mess up your hormones. He advised that I could bring it up with my LLMD and change up the meds, or just tolerate it as it’s a side effect. So I might just stick with it for now. I have another month before my telephone consult.

The second question was that I asked if I am on too many things. So here is what I am on now. Nystatin, Plaquenil, Zithromax, Doxycycline, and Grapefruit Seed Extract. Then my Homeopath put me on Teasel Root, Cat’s Claw and then Wormwood (Artemisinin). Dr. Ross said that the Teasel Root and Cat’s Claw does the same job as Zithromax and Doxycycline. So I don’t really need to do that. BUT I am going to stick with what my Homeopath advised because he has had success treating with this (+ the fact I just spent $400 with him). The Wormwood I believe is for Babesia.

Anyways, that’s it for now. All blog and no work makes me a dull girl.

Visit to my Lyme Homeopath


Remember in one of my previous posts, my cessation of Flagyl wasn’t really a loss because it only cost me $1.11 our of pocket? Well you can scratch that because I just spent $398 in its replacement.

I think I’ve gone completely off my rocker, because my intention of seeing my Homeopath today was to ensure that I wasn’t going to die from last week’s dose of Flagyl. He assured me that I am not. He most likely believed what I had was one big gigantic mass killing, but again, one never knows if it was really a herx or side effect.

So during the 1.5 hour visit, I explained the festivities of the past week and said the reason I was there was to figure out how to better detox my system while being on this plethora of meds. The good thing about my homeopath is that alot of his clients are also seeing the same LLMD as me, so I guess he knows the drill so to speak. So after the tongue diagnosis and pulse reading, he said nothing really much has changed since the last time I saw him, and this is because of the antibiotics. The discoloration of the tongue is due to the medication, and he said that it is a “damp” environment meaning that for sure Candida has come back to play.

I mentioned that perhaps my reaction to the Flagyl was that probably I reached the dose too fast. He said “Not really, it’s not about how fast you get there, but how well your body expels the dead lyme and dead antibodies.”

So with that said, I walked out with more herbs and supplements which I will explain below.

Left to Right:

  • This digestive enzyme is to be taken as needed before a meal. It will help relieve nausea and such.
  • The Serrapeptase (shown in different doses) are to help break down biofilms/dead bug parts. To be started in doses to reach 3 x day

Left to Right:

  • This is my new vitamin B12. I am to take 3 drops a day. This is awesome because I can scratch one pill off my list
  • Teasel Root – 3 drops, 3x a day. He originally gave me this before as the Lyme Challenge. I wasn’t aware that I was to continually take this. So I am back at it.
  • Cat’s Claw, Dandelion and Astralagus – Again, this was given to me as the Lyme Challenge, however now I am upping the dose gradually to 15 drops, 3x a day. OMG.

This will be my new Probiotic after I finish the one I already have. This has 7 different strains where as the Metagenics one I am taking now only has 2.

I think it’s detrimental to our healing that we see a Naturopath or Homeopath that specializes in Lyme and Nutrition. With homeopathy, it’s about treatment of the individual, not a general template that you apply to each person who is sick. One great thing he told me was that he has seen MANY successes in his practice who are both on antibiotics and homeopathy. Some who catch it early within a year are better between 4-6 months.

He also said how you can really tell if you have success is if you one day get a cold / flu later on (after your treatment), and your old symptoms don’t come back. It will be a “different” kind of flu. Then you know that your lyme is “gone”.

One thing he also mentioned to me is that later on down the road, I may be able to tolerate Flagyl. And how do I know this? When my tongue turns back to a normal healthy pink and when the Candida is under control. And one can do this via spit test to see. But right now, I don’t think I can entertain the thought of Flagyl even if it came up to me in the form of Brad Pitt and asked me on a date to the Oscars.

Spiritual Healing – Does God talk to you?


I am certainly not one of those Christians who like to preach. Infact, I am far from. But this post is much long due.

Just to give you a little bit of background, I have been a Christian since I was 12. I know the power of God. When I was 14, He has saved me from a very bad car accident involving me being run over by 2 cars and dragged underneath one of them for 100 meters. Lying in the snow unconscious in -10 degree weather with onlookers piling their jackets on top of me to keep me warm, I wrote my mom’s work number in the snow so the ambulance could contact her. I have absolutely no recollection of this. While unconscious, I can remember to this day what I saw in my ‘near death experience’ dream. I was walking on something white towards a light. Then I woke up in the ambulance. The outcome? I was only hospitalized for a day with a minor bruise on my head and a black eye. I was back to school by Monday morning.

Throughout my life, God has shown up many many times. Whether or not I listened to Him, that is a whole different story. I also met my husband in Sunday School when I was 12. I must admit, there has been a period in my life where I strayed away and did my own thing. But He was still there, waiting for me. I kept pushing my doubts about Christianity away, but they soon surfaced. I was questioning things. Science, Religion. But in the back of my mind. I always knew that God was watching. I faithfully went to Church every Sunday because that’s what I have been doing my whole life.

Years after, this Lyme episode happened. At that point, I was so desperate, I started praying. I wrote a letter to God giving my life back to Him. I know somewhere deep within me, that I was given this life changing experience to make me get back closer to Him. And I have.

I don’t blame God for any of this. Infact, I thank Him. I would rather be suffering and praising Him, knowing that Heaven is waiting for me than to be perfectly healthy and NOT know Him. God has spoken to me many times. I can tell you when.

After my letter to God, I was in such depression (from the symptoms of my undiagnosed Lyme), I often went up for prayer at Church with my hubby holding my hand. I would give a general statement like, “Doctors don’t know what is wrong with me, can I please have some prayer?” They would lay their hands on me and then I would go home and go about life, with me wondering why He wasn’t answering anything I was praying about.

Soon after, things started to dawn on me. My little 5 year old kept singing this one song he learned from Sunday School. It went like this:

Behold, Behold
I stand at the door and knock, knock, knock
Behold, Behold
I stand at the door and knock, knock, knock
If any girl hear my voice,
If any boy hear my voice,
And will open, open, open the door,
I will come in.

He sang it so many times throughout the day for months that it started to annoy me, but I decided to record it on my phone anyway. One night as I was bored, I replayed this video. The way he sang it was so intense, something I missed while watching it live. It was almost like he was looking me right in the eyes, doing his hand motions like his life depended on it. Like he was trying to tell me something screaming inside “Mommy will you just listen to me for Pete’s sake!!!”. I kept replaying it. It suddenly dawned on me what was going on here. Jesus was speaking through him. I had finally opened my eyes to see. Took me a few months to realize that  God was knocking on my door and I wasn’t opening it.

Another time that I found God speaking through my son was when one day, (probably a Lyme rage day), I was getting upset at the most nonsensical things. I finally realized what a monster of a mom I was, I apologized to my little guy for getting angry at nothing. He looked at me and said “Mommy,  that’s ok, I forgive you. I will always forgive you“. I don’t even need to explain this one to you!

I will end this post here for now. Alot to digest and kind of a heavy post. Be on the lookout for my second installment called “Spiritual Healing (Part 2)” shortly. This will also tell you of some other incredible stories that led up to my diagnosis!

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