lymed out

my quest to getting these suckas out!

Archive for the category “diarreah”

Human Guinea Pig ~ Take # 354


If you are squeamish and don’t like to talk about stuff in your intestines, I invite you to hit the X on the top of your browser.

I’ll start off the post with this text between my BFF and I.

photo

So, BFF, here are my thoughts.

I was recommended by a good friend of mine to go get some Colonics (or Colonic Hydrotherapy, or Colon Irrigation). Basically the purpose of it is to clean out your colon. A regular enema only goes so far up, cleaning the lower part, the sigmoid and part of the descending colon. A colonic, will cleanse the entire length. If you are a newbie, you may be impacted and they recommend you do a series of 6 colonics at first. Like 2 the first week, then 1 the week after etc. For me personally, I think this is way too much and I would be scared to shock my system. Why would you be impacted? Because you basically have poo in your colon that may be stuck for YEARS, which can cause parasites, bacteria and other not so nice stuff to grow in there.

I was very apprehensive in trying this. It literally took me 2 years to brave it. But this was part of my game plan. So, 2 years later, I arrive at my destination.

Walking into the Naturopath Cilnic:
I was told that the Colonic woman is a sweetheart. She is very grandmotherly and will put you at ease immediately. And boy were they right! Picture a little 5 foot woman with a strong South American accent. She greeted me with the warmest handshake and took me into the Colonics room. She showed me their sterilization process and began to tell me the process of a colonic. She kept emphasizing that she will try to make me feel as comfortable as possible. At first when I entered the room, I was like OMG. Here’s a quick drawing from my iPad.

02

Keep in mind that the bathroom there is a Stall. It does NOT have walls. The entire time she was talking, I was thinking about how I am going to use the toilet while she is RIGHT THERE. It’s kind of like thinking how you are about to do a discreet #2 in an office washroom with co-workers in the next stall.

I put that thought out of my head and figured I would deal with it later. She told me to go and use the bathroom now if I needed to and to take everything off bottom-wise and wrap myself with a towel. So I did all that, and then went up onto the table. I was greeted by a large poster that has a drawing of a colon. She told me then that the goal of Colonics is to reach the very end of the colon.

She told me to lie on my right side facing the wall and to take a deep breath. There goes in the sterilized metal contraption! YAY! That wasn’t as bad as I thought. Nothing different about this than a papsmear (although different location).

I was told now to lie on my back. The she got some cream and started massaging my stomach. I am guessing to move things around. This was my view.

01

She began to open up the pipes. I am not exactly sure how it works, but she called it a TIE-OFF. So basically what happens is that she will let water flow into your colon and she will tell you to hold it as long as you can. When you can’t hold it anymore, you say Stop! and she will tie-off, where she will shut off the incoming water and then open another valve where the water will drain into Lawrd knows where.  Then the cramps will cease. In the midst of all this, there is a large mirror suspended from the ceiling where you get to see what comes out of the tube. This throws in some much needed entertainment. As things were coming out, she would tell me, “Oh! that is Ammonia!”, “Oh! that is Yeast/Candida!”, “Oh! that is Mucous!”, “Oh! that is Gas Bubbles!”. I felt pretty victorious as I kept seeing stuff coming out. Mind you, it took about the 5th tie off to see anything. I was beginning to think that my innards were very compacted. In between each tie-off, she would put a warm heating pad on my stomach and continue to massage my stomach. At one point, she had some vibrator contraption on my stomach.

I will tell you quite honestly, it wasn’t the metal contraption that was uncomfortable. It was the cramps that you must endure which each tie-off. It literally felt like you went and ate a bucket full of bad Mexican and then got stuck in traffic on the way home with nowhere to expel your stomach. This went on for about 30 minutes and I am guestimating about 10 tie-offs. In the meantime, she mentioned that water was also circulating in my colon. And also, she decided to do a blast of cold water in one of the tie-offs. Not so much fun with that one.

After the whole thing, she assisted me in getting up and asked if I felt faint. I said no, however the entire time, I was shaking. Like an adrenaline shake. Not a shivering shake. Not sure what’s up with that. She said that was normal. Then she said to go into the stall and make sure I put both feet on the stool while expelling the rest. I’m like “Ok! if you say so!”.

I get into the stall and felt no ways about expelling whatever was left. I was almost at the same point as when I gave birth. I didn’t care who was in the room, just get it out. NOW!

I made all sorts of noises I am sure, but listen, this little woman has probably seen it all. She doesn’t care. And neither should I.

After this, she told me to have a cup of herbal tea in their reception, and if I needed to use the rest room again, I can do so.

I had my peppermint tea, made some jokes with the receptionist and was on my way home only 10 minutes away thank goodness. As soon as I got home, I had a little soup because I was STARVING. Literally within 2 minutes, I had to dash to the bathroom again, and I am sure stuff was leaking out! My husband was sitting there laughing the whole time, and I kept screaming “Don’t worry! You’re next! I am making your appointment next week!!!“.

I had another 2 encounters or so with the bathroom and then I was fine.

So that is the story. Now, if the Colonic person been some hot dude, there was absolutely NO WAY that I would have done this.

Here are some tips if you want to have a Colonic:

  • Don’t eat 2 hours before
  • After your colonic, eat steamed or cook veggies, soups and avoid red meat
  • Minimize carbohydrates to avoid constipation
  • Drink 2L of water, herbal teas
  • Take 30 billion Probiotic (Ultra Flora by Metagenics – recommended)
  • After, take a fiber supplement

LLMD Office Visit – September 2012


DISCLAIMER: PLEASE SEE YOUR OWN LLMD FOR YOUR OWN SPECIFIC TREATMENT. DO NOT GO ON ANY LYME PROTOCOL WITHOUT FIRST SEEING AN LLMD.

Don’t ask me how I am finding the time to write this post. Today included a whole lot of running around and much of 4 hours were dedicated to waiting rooms, blood tests, medication refills and the like. If I added up how much time I have wasted due to this nonsense, I would have been able sew a quilt the size of a football field.

Saturday morning started with us driving up to Montreal, forgetting our passports for the NY Border crossing, turning back, but we eventually made it. Tuesday I was scheduled to see LLMD. Husband and 5 year old dropped me off and headed to the mall. I was 15 minutes early. The clinic was awfully quiet. The nurse took my vitals. She mentioned to me that the wait list now is up until January 2013.

Height: 60 in
Weight: 100lb (YIKES!!!!!)
Blood Pressure: 122/88 mmHg
Temp: 98.4 F
Pulse: 78 bpm
Resp Rate: 13 rpm

As the LLMD was in with a new patient, it went on longer than usual and I waited another 25 minutes. But I was welcomed with the biggest open arms. I asked if I can record the conversation on my phone because I will most likely forget what anybody said. The conversation started with me describing the second worst herx of my life (which actually ended on the Sunday). So as we speak, I’ve been about 4 days symptom free.

We went over my symptoms:

  • Burning Fingers, nausea, vertigo, drunk, head pressure, night terrors, anxiety, not hungry until moving around, all symptoms of underlying Babesia.
  • Metal taste – can be due to the Clarithromycin. Also due to heavy metal exposure. I asked if I should get the (3) silver fillings removed in my teeth. I was advised this was a wise idea but to make sure it’s done with a biological dentist. Even if you have an oral dam, you will still need to have oxygen, a mask on, air expeller etc. Since you are getting better, you will minimize the risk of mercury exposure by going to the right dentist. They will also give you IV Vitamin C after the treatment. If you do it, do it right.
  • Math is the first thing to go with adults and children. Even an accountant who can balance something in minutes will now take 20 minutes.
  • Hormones can change because of Lyme
  • Beware of drinking from plastic bottles, lotions, petroleum as they have plastics in them. Use extra virgin coconut oil.
  • Colon hydrotherapy and coffee enemas. Highly recommended.
  • Beware with GMO. No canola oil. Stay on a healthy organic diet.

I also typed up a list of questions for our visit which are summarized below:

Q: On the 1st and 2nd round of Pulse A and B, I did really well. On the 3rd round of Pulse B, things started to get a little worse. More cotton head, vertigo that lasted 2 weeks. One night had the shakes really badly, cold clammy, hot and cold. Was this a herx or candida flare up?
A:
Symptoms get worse in the spring and fall. Was a possible herx. If it were candida, it would persist. With a herx, you will feel all these symptoms that are horrible, but they will get better. Hasn’t seen that with candida. If it were candida, they wouldn’t really get over the herx, newer symptoms would persist such as abdominal distension, trouble digesting food, coated tongue, sore throat, lots more joint pain, peri-anal itching. Yeast makes acetaldehyde, a chemical not good for the body and the liver will turn that into alcohol. As my symptoms went away, it probably wasn’t a yeast issue.

Q: Can I mix 50% alcohol teasel root, Kombucha with tinidazole.
A:
No. You shouldn’t mix. Even if you dine in a restaurant, make sure you are aware of what they are marinating the meats with. Even a wine marinade will cause a bad reaction. Remember this rule applies to Metronidizole (Flagyl). Kombucha is a fermented tea, however it may not make enough alchohol to warrant a reaction. But do a quick google search just in case.

Q:  How to bring up WBC levels. Should I be concerned with blood labs at all? Mine has been a steady 3.7.
A:
Be happy with a 3.7. Sometimes they will come up on their own after treatment. If they fall below a 3.0, patients are taken off meds immediately. If it goes below 3, patients are required to skip a day of medication per week. Choose the same day every week (Monday) to skip. Another way to bring up WBC levels is Cordyceps, a mushroom that can support the WBC. Low WBC means chronic infection. It can be toxins or mercury, which would bring me back to the silver fillings issue.

Q:  Wanting to testing 5 year old at appointment / recent Spider Bite in Sept 1 / No symptoms but diarrhea.
A:
Symptoms of children are hyperactivity, but hard to diagnose because boys are hyperactive to begin with. Other signs are “my tummy hurts, “I’m tired, carry me” (on a constant basis). Treating children with Cowden Condensed Protocol and they usually do well with it. Diarreah is not typically a sign of lyme, it just means his immune system is in overdrive.

Q:  Do any of your patients relapse? And if so, what is the treatment and is it quick to “bounce back”?
A:
Patients do relapse. They are treated with Doxycycline and Clarithromycin and a pulse of Metronidazole just to prevent a cyst form of Lyme from popping back up. Within 4 – 6 weeks, patients improve. It’s not going to be like starting over from square one.

Q: What if I get bitten again?
A: You have no immunity. None. Nada. Be careful where you choose to vacation. It is not all about Lyme. Sandfleas can spread infection. People are coming from all over the world, they are bringing their infections and there is a greater exposure. They are getting bit my mosquitoes and sandfleas. Sandfleas are notorious for giving the bartonella infection. Beware of Cuba and Dominican Republic. Do not allow yourself be bitten. Sandfleas look like tiny grains of sand jumping. Be inquisitive. Keep watch on the beaches. Do not sit on sand. If there are not enough chairs, sit by the pool. Or better yet, sit on concrete! When on a resort, some have private beaches where there are grass. Don’t sit on the grass. Get Samento which really helps.

Q: What is the CD57 test?
A: At first when it was published, CD57 was diagnostic of Lyme. And only people with Lyme had a low CD57. However in recent discussions, patients who have low CD57 have improved, others who have high CD57 were the sickest people ever received. It doesn’t look like a fool proof answer to anything. If you want to measure it before you off antibiotic you can. Gamma Dynacare offers it in Toronto. Or you get it through Igenex.

Q: When I can think about getting pregnant?
A: Would like to prescribe Cefuroxime and Zithromax a few months before hand. And take it during pregnancy.

The best sentence of the day said by LLMD.

Be weary about trusting tests. It is not about proving it on a piece of paper. It’s about how you feel.

Treatment Plan: September – December 2012
I will be on the exact same treatment plan as I have been for the last 3 months because I’m doing really well on it. We may change it up in December 2012 or March 2013.

TREATMENT PROTOCOL #3
October 2012 – December 2012


  • PULSE  A: for 10 days
    Clindamycin 150 mg (1 pills 4x a day)
    Quinine 200 mg (2 pills a day)
    Bab2 (by Beyond Balance):  23-50 drops (2x a day)
  • PULSE  B: for 10 days
    Plaquenil 200 mg (1 pill 2x a day)
    Tinidazole 500 mg (1 pill 2x a day) – Due to my intolerance of Flagyl, I’m taking this instead. Say hi to Flagyl’s sister.
    Clarithromycin 500mg (1 pill 2x a day)

Rotate these 2 pulses every 10 days for 3 months.


More Stuff

I got my little buddy the #188 and #189 Western Blot with Igenex. LLMD’s nurse drew the blood. He was a trooper and didn’t cry at all. I will get the results in 3 weeks. If he is negative, I won’t look at the $200 as a waste of money. I will have peace of mind and also that may be a good sign for me to gauge how long I’ve had it. If he’s positive, that’s another story and a whole other can of worms.

I was also concerned about the white thrush on my tongue. I was prescribed with Diflucan, or I can go on Grapefruit Seed Extract, Fiji Tea, adding fresh organic garlic to food (raw and crushed). Garlic also stimulates the immune system, improves circulation, kills intestinal parasites and lowers blood pressure. It is a powerful antioxidant. I can also use Caprylic Acid, a fatty acid supplement derived from coconut oil and is specifically effective for killing candida overgrowth in the intestines. (should not be taken by people who have ulcerative colitis). I can also optionally start on InterFase by Klaire Lab for the treatment of biofilm.

However as LLMD prescribed me with the Diflucan, my Canadian doc thought that this was too harsh on my system so prescribed me with Oral Nystatin (shown above) for 10 days. I am not sure what to do with this so I have to read up.

I also inquired about B12 injections and so I was prescribed with syringes and stuff that needs to be purchased through a compounding pharmacy. It is for 3 times a week. I hear that a normal person would do it once a month. Great. More questions from the pharmacy. I am not exactly sure what to do with it all, but my good friend over at Lyme Maze has sent me lots of info on where and how to properly inject this stuff into your buttocks. Getting the stuff is another story.


What I did today.

We are heading to Orlando Disney tomorrow! Even though I should have been packing, I was busy for most of the day as mentioned trying to get the above prescription re-written and filled. I didn’t go to Costco this time, I went to a pharmacy beside the clinic and the pharmacist asked out of curiosity why I’m taking all these meds. I said Lyme. She nodded her head. She knew it. She had another person have the exact same thing with the US Prescriptions. She said that Lyme is very rare. I said it’s often misdiagnosed as something else and we got into the whole politics of it. She was very interested.

And I also did my monthly blood labs. I did manage to get a requisition for the CD57 blood test even with everyone scratching their heads as to what this test was about, not only the doctor, but the nurse and the medical lab person who draws the blood. They all know about the CD4 which is the HIV test. They don’t offer the CD57 it at CML Health Care, so I will need to go to Gamma Dynacare.

This past weekend out of town, my husband and I also celebrated our 12 year anniversary. Well that’s officially on paper. I have known him since I was 12 years old, which means we have been in each others lives for about 26 years. As I was sitting down about to type this post, I see a little card stuck underneath my keyboard. I opened it and the last paragraph was this. 🙂

Ok, this was a very long winded post, I will end this for now. I survived our 11 hour drive total and about $1000 gouge into my pocket in total for this round trip of meds, tests, gas, consult fees, herbs, meals. UGH!

I will reconnect with you after we have oodles of fun with Cinderella and her step sisters! There will be lots of walking, and food challenges I’m sure. Hope I survive!

OMG, I got an Email.


Many thanks to Becki @ http://warmanddry.wordpress.com for sending me this pill box picture because that’s how I feel right about now.

I don’t understand the Canadian Medical System. Back around 1994, email first came out nationwide. I know this because I was in my second year of University and we were all required to get an email and at that time, we were like What is That?

So with that said, I don’t understand why 18 years later in this land of technology, why Doctors are still faxing things and calling, and requiring you to make an appointment to get results. About 2 years ago, I had a Celiac Blood Test done by Dr. Cross Examiner. The results were never given to me, which means that it probably came out negative. A few months ago, I called Dr. Cross Examiner’s Idiot Receptionist and asked if she can fax a copy of my results to my LLMD.

Her: “Oh no, we can’t release your results unless that specialist asks for it.”

Me (thinking “ughhh”.) “Ok, I can come and pick them up because I am in the area.”

Her: “Oh, no, you can’t come in, Dr. Cross Examiner has to approve it, and he is not here right now and I can’t give it to you for your own protection.”

Me: “HUH? Um, ok, but I paid for this test, and it belongs to me. I don’t understand, I have my OHIP card which clearly shows my picture, my birthday, my name, my address and proves that whom I am is who I am.”

Her: “I’m sorry it’s for your own protection. I have to ask the Doctor before releasing a copy of the results.”

So basically what Idiot Receptionist is saying is that I can’t have my own records which I paid $80 for because OHIP didn’t cover it and she is doing me a favour by protecting me from my own information.

Nice.

So, enter now the realm of my LLMD. Her philosophy is that anytime she gets results from anything, it gets IMMEDIATELY released to to the patient. No, not by telephone, not by fax, by EMAIL. Oh the horror!

So that little story really was to let you know that I got my second blood labs done. My LLMD said I have a decreased White Blood Cell (WBC) count. Last month it was 5.1. This month it is 3.5 which means that it is considered low/abnormal. White Blood Cells fight infection, so when it’s decreased, this means that if I am around someone who is sick with the cold or flu, I will be more susceptible in getting it. A decreased WBC could be the result of the antibiotics I am on. My LLMD said that I need to get another round of labs next week and if it continues to be low, that I might need to do the meds every other day. I don’t know if that’s good or bad. I guess it could be good, it means that I only get nauseous every other day. YAY. Looking forward to that.

C. Diff. That is all.


** Warning ** – This post might get a little intimate and TMI and I apologize in advance to the 4.5 personal friends I have told about this blog, and as as I have said before, if I had known that I would be discussing my bathroom habits in public, I probably would have hung myself.

So, I have been a little MIA this week. The reason being my paranoia has kicked in once again and I’m getting myself tested for C. Difficile. I’m not going to get into what that is and how bad it can potentially be, because I’m sure if you are following my blog, or have come here for some strange reason, that you already know what this is. However, I shouldn’t assume that one automatically knows what C. Diff is, because when I mentioned it to my husband tonight he looked all bewildered and says “C what?”, to which I rolled my eyes and said “Go back to watching whatever you were watching.”

Ok, so what led me to this self diagnosis? Well, I have been visiting the restroom about 3-4 times each morning. I noticed that this happens only after breakfast. It will end by about 10:30 – 11:00 am and then I’m fine for the rest of the day. But yesterday, I had the urge to go quite frequently. So wasting yet another day on this crap (pardon the pun), I went to google and searched the signs of C. Diff. I have no cramping and it’s not all day so I’m not even really sure if I have it or if it’s just a side effect of the thousand meds I’m on. The only way to really know is to get tested. And I’m also on good Probiotics and S. Boulardii following a GF, SF, YF Diet. With a skittle here and there.

I am not new to stool tests. I have done maybe 5 in my life. The first one when I was 17 coming back from a trip to the Far East. I thought I had ate something bad. It turned out to be stress and panic attacks. That is a whole other blog. Last year, in my quest to find out what was wrong with me, I did another stool test as prescribed by my doctor, since most of my symptoms were gastro related. This one was quite memorable. The reason for this was because I got my husband to drive the specimens to the lab because he was going in that direction. I said “Listen, don’t look inside the brown paper bag.” He says “Why would I want to.”

So off he goes and then I realized I gave him the wrong address to the lab. I then get a call from my mom, tell him to hang on, while I take the call. My mom coincidentally was in the area where he was and she was with my 4 year old. She said she needed me to pick him up. I said “Husband is in the area, he can scoot over and get him”. So I get back on the phone with hubby who is still confused about where to drop off this poop sample. I said “Ignore the sample, go pick up 4 year old.”

15 minutes go by, husband calls once again. “Ok I have 4 year old, where I am driving this crap to”. I said “Hang on while I google map this”. He is silent, waiting in the car with my impatient 4 year old and a stool sample in his hand. I said “ok I found it”. He says “are you sure, cause you have me driving all around town with this S***”. (and he NEVER swears) I think I must have about died from laughing so hard. I can’t believe what I made him go through.

So fast forward to today, off I go into the walk-in clinic and see Dr. Handsome. He says it is best to get tested just in case. So I agreed. The nurse comes in with all the containers and explains to me what to do. I said I already know, but listened just in case. The specimen can’t touch any urine or toilet water, so I would need to use a margarine container. I thought, “Great, where I am going to dispose this thing. Hmmm… maybe I can wrap it up in a bag and find a public garbage can like at a plaza.” Then I started to go a little crazy. “But what if the stench is so horrible, and the janitors smell it and send it some forensic lab and they figured it was me that publicly littered? Ok. Scratch that idea. Then I remembered what I did last year. Here is a trick for you so you don’t have to use any containers and then figure out where to get rid of it. You pile tissue paper in the toilet so it’s high enough and just go. It won’t touch any toilet water. And I remembered that because I wore glasses, I had to take them off and collect the sample because I was so grossed out, I needed to be partially blind to collect the specimen.

Wait a thought just occurred in my head. What if it’s the watery kind? Blast! I might need to use those margarine containers. UGH.

So then the nurse starts talking and breaks my train of thought. She says (with a huge grin on her face), “After you have collected the sample, you will need to either drive it back here pronto or put it in the fridge.” I thought, “Hmmm, Husband will take it, thinking it’s his lunch.” So I said, “Ok, I’ll put it in the fridge.”

So I get home with the bag of goodies and Husband says, “How was the walk-in.” I said “Guess what you are doing tomorrow!”

————————————————————

UPDATE ON MY PROGRESS:

Yesterday was my birthday and I was adamant that I wouldn’t let myself feel sick due to the new introduction of Flagyl. Well, I was ok for most part of the day minus the frequent bathroom trips. I even forgot all about Lyme because Husband and 5 year old surprised me with a matching set of a Coach Purse + a wallet! (really I shouldn’t put that specimen sample in the fridge should I?)

So in the evening, because of the fact that I can’t eat in restaurants, we ordered in. And guess what happened. As my mom, husband and 5 year old sat around the table to have my birthday dinner, I was fell asleep on the couch for 2 hours.

I truly hope you enjoyed this post. If you have any C. Diff related stories, please share. My results will come back in about 10 days.

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