lymed out

my quest to getting these suckas out!

Archive for the category “healing”

It has been….


1 year, 4 months, 23 days since my last entry post.
2 years, 6 months, 3 days since my last lyme med.
5 months, 2 days since my last menstrual period.
🙂

baby

Yep. I am exactly 22 weeks today and I am 41.

I remember thinking back that my first set of “any” symptom was about 8 years ago. Before that I considered myself really healthy and hadn’t even seen a doctor 10 years prior to that. But here I am. I remember that when all my symptoms started, there was no way to expand my family because I was simply too sick and too tired and too old and that time was my enemy.

Well, screw all that. I figured out that if I don’t have another kid by 42, then I really won’t have a chance. This I consider my miracle baby because I had a dream about this baby a few years ago, right in my middle of my illness. (if you read that link, you will see why). I never thought that it would come true and believe me, I thought because I had this dream, that it would be easy as pie to actually conceive because God was in my favour, but it wasn’t. It took 7 months of trying and I was just ready to say forget it again just at that 7th month. But other insane supernatural things began to happen around this time, which I will probably have to explain in another post, but here we are now.

I have had every test done possible so far with my OB to test for the health of this baby and so far everything looks good. I am believing in that promise that God gave me so long ago that this baby will be healthy as can be.

This past week however has been one disaster after another:

  • Friday – started to get a sore throat (probs from 9 year old hacking)
  • Saturday – icky, headache
  • Sunday – had booked a trip for the weekend out of town and it was looking like I wasn’t going to have fun. Nights were terrible and it felt like someone poured liquid lava down my throat.
  • Monday – was determined not to have whatever ailing me to bring me down. Because I was preggo, this prohibited me from doing any sort of activity, but it was fun nonetheless watching my 65 year old mom do zip-lining with my husband for the first time. I felt like an old grandma taking kids to the amusement park because all I could do was sit on benches. I started experiencing that wierd cough I had last year similar to what I had after my pneumonia. It was bouts of uncontrollable coughing to the point of vomiting. When the attack comes, it’s enough to make you leave the presence of everyone out of embarrassment. You start tearing. Your face turns blue. The attacks came about 3-5 times a day.
  • Tuesday – on the drive home, husband made me a doctors appt. My Doc was on mat leave so the replacement Doc said I had something but there were missing pieces due to my symptoms. The throat swab showed no strep. I had no fever or chills. So he diagnosis it as allergies most likely because he has no answer. Despite the fact that I have never had any history of allergies
  • Wednesday Morning – my husband was a witness to one of my coughing fits and him being a person with seasonal allergies for most of his 42 years of life deemed that “my coughing was no allergy”.
    Wednesday Night
    – My left eye began to hurt, like someone threw sand in it. Ughhhh Ok what now? After 30 min of rubbing it, I went to the mirror to see what in the living earth was going on. I saw pieces of yellow stuff. Gross! I wiped it away thinking something probably got stuck in it. But wait, there was more, up all the way behind my upper eyelid? WTH?? Hello Google. Hello pink eye.
    1:00 AM – Feel asleep dreaming of pink eye and then got up to use the bathroom (which is now a nightly 6x habit due to the baby hugging my bladder). Had to blow my nose from bad congestion and then immediately later felt like something was falling out of it. If I had not switched on the light in the pitched black, then I would not have seen the Niagara Falls of a bloody mess spewing down my nose. I texted my husband (who was in the basement at that time doing gawd knows what), “come up, I think I’m dying.” I haven’t had a bloody nose since I was 16. Now, from my past experience, I knew that when a major blood clot came, that it signaled the end of the nose bleed. And guess what, it happened again. This blood clot was the nastiest thing if ever I have witnessed in my human existence. It was like a long 10 inch of a red alien thing that looked like it came out of Ripley’s stomach. I am pretty sure it had teeth.
  • Thursday morning bright and early – went back to doc, but to the walk-in this time – “Your pink eye is viral, not bacterial” she says “so antibiotics won’t help. Plus you are pregnant, so I can’t give you anything. If it persists, come back in 3 days. But that’s a Saturday, and we won’t be open. Ok bye!” Well, according to Google, yellow pus = bacterial. Whatever. I went to my health food store, asked the lady and she told me to buy this. Guys, my eyes are white again.
  • Thursday Night – My cough however was getting worse. My ribs and muscles now hurt. At one point I coughed so bad, I had to change my panties because I peed! My friend mentioned whooping cough at some point, but I dismissed it. But that night when I was awoken from my precious dream of red bloody aliens, I actually heard the “whooping” in between coughs as I couldn’t catch my breath. I figured out the reason I never heard it during the day was because I was trying to stifle it. I found this site. And I am 100% certain that this is what I have. Same thing as last year only I was never diagnosed. So armed with info, guess what I did?
  • Friday morning bright and early – went back to the walk-in, got a different doctor, told him I think I have the whooping cough and that Zithromax was given to me last year. “Oh but Miss, have you been around or heard anyone with the whooping cough?”. Um No. “You don’t have the whooping cough, you have a bad viral something, but because you are pregnant, I can’t give you anything except Amoxicillin. Or you can drink lots of water and keep your humidifier on 24/7.” Gee thanks. I said No to the Amox and left. I decided this was just like lyme, but with something else. And really, I am just tired of trying to prove anything to anybody, so I said to hell with it, went to the mall and paid $220 for a haircut that I never knew would cost $220.

I have figured out now through this journey that nobody really gives a shiznick about you. I am not saying this because I am feeling offended or anything but this is the reality. With this latest crap of sickness, I don’t really care, I just know that I will get better, I’m not going to waste time trying to figure it out, go on Google, worry about the baby, I will just trust that everything will work itself out.

My guilty pleasure is The Real Housewives of Beverly Hills and I have watched Yolanda Foster’s journey. This entire season, her lyme was questioned and she was shown in the spotlight as having Munchausen Syndrome. The editing was so good on it, it even made me question her illness and sanity which in itself is insane seeing I went through the exact same thing as she! But I had to jolt myself back to reality. The thing is, nobody will get it unless they are in your shoes, in your body, in your head 24/7. Nobody will understand. And that makes you feel alone. I get it. For me, I find the situation worse when I have to try to convince other people of what I went through or what I am going through, it is just an added stress. So I have finally figured out that it’s useless to even bother talking about it to anyone who doesn’t understand. THEY. WILL. NOT. GET. IT.

Scrolling through my useless FB feed, this news pulls this up. Paralysis: Vet Intern Discovers Dog’s Condition Caused By Tick Before Euthanization. Sure, this makes national headlines and yes, it’s a feel good story and I’m glad the dog is ok, but if a frigging tick can do this to a dog, do people not realize what it can do to humans? Can I just say a big hashtag of DUMB?

Sorry enough ranting. Hope ya’ll are doing good.

And then his happened


I have been off meds since Nov 27, 2013. I thought that I was finally done with this blog! Apparently not! Here is what happened in fast motion.

July 1, 2014 – Canada Day, my friends and I wanted to see fireworks. I was so excited. I see them all putting on the OFF repellent but only God knows why I didn’t think twice about spraying the hell out of my legs and arms since I was wearing a racerback tank top and really short shorts.

We ventured off to a horse track. Yes, where real horses ride. I was right up on the actual track at 9:45 PM. The fireworks were fun.

The next day at 8:00 pm, I am sitting in the car in front of a bank with my husband. My leg starts getting real itchy and I was wearing a long skirt. I lift it up and see this.

I look at my husband and say “What the hell is that???????????!!!!”
He says “It looks like a bulls eye”.
We stare at each other. I start driving to the walk-in clinic while yelling at him to google: “What medication to take when you first see lyme”, “What medication to take when you have a bullseye”, “Does bullseye rash mean lyme?”, “Lyme Re-infection”, “Am I going to die?”.

All walk-in’s are closed at 8:00 PM. Damnit.

I vowed to myself that I would NEVER, NEVER go back to the ER unless I collapsed on the floor and can’t get up, or if my heart stops, or if someone shoots me in the face. However I thought this time was pretty prudent. Although pissed off that it was neither of the above 3 reasons.

Get to the first ER, the line up was out the wazoo. Drove another 30 km to another ER. Good. Waited only 1.5 hours.

Get into the second waiting room. ER doc is nice and handsome probably mid to high 30’s. High, I see we have a rash case here? I told him of my lyme history in 1 sentence and lifted my skirt. The rash was on the inside of my left thigh. He said “That’s Lyme! Let me go get my prescription pad and write you some antibiotics.” Off he goes.

Another nurse walks in. “Hi, you are the rash girl. Can I take a look?….. Wow! that’s some rash!” Off she goes.

Another doc walks in. “Hi, I hear you have a rash? I’ve never seen this rash, can I take a look?…. Holy cow, that’s crazy!” Off he goes.

“HEY! IF ANYONE WANTS TO SEE A LYME RASH, GO TO ROOM 2!”

Doc comes back and gives me 21 days of doxycycline 100mg BID (twice a day). Gets me blood work to do the Canadian testing. Gets me an appointment with the Infectious Disease doc. (who hasn’t called me yet).

Go home. I am in shock. Yes, at the events unfolding before my eyes, but even more so, these docs believed I had lyme and didn’t try to pass it off as some ringworm rash.

Email my LLMD and Naturopath the next day. Meds are not enough. You need 200 mg of doxycycline BID for a minimum of 6 weeks. Naturopath told me to add 30 drops 2x a day of Samento (which thankfully I had in my stash).

Emailed Acupuncturist. She said that this will NOT be like starting from square one because I have been doing the acupuncture and chinese herbs.

Go back to Dr. Handsome Chest Hairs and explain the situation. “But don’t you need to have the tick embedded in you to get lyme?”. Um No. Get more meds.

All done.

———————-

Any symptoms? None other than the side effects of the medication? I don’t know. A little vertigo? Some nausea? I had to cease my chinese herbal medicine that was treating my fibroid. Can’t take so much stuff. Can’t go out in the sun now because of the doxycycline, which completely sucks, you know because it’s summer and all, but oh well.

It’s all very surreal. My question is though, did this rash come up BECAUSE I already had it? And it was just a manifestation of the bite? Who knows.

I am thankful I caught it in less than 24 hours and they treat it as an acute infection.

I am thankful that the entire time I was starting to panic, that this verse kept popping up in my head. Psalm 103:3 …. 3 who forgives all your sins and heals all your diseases…” I kept repeating this over and over and my panic subsided… ”

God’s got my back! And He’s got yours too. Let Him in.

 

Human Guinea Pig ~ Take # 354


If you are squeamish and don’t like to talk about stuff in your intestines, I invite you to hit the X on the top of your browser.

I’ll start off the post with this text between my BFF and I.

photo

So, BFF, here are my thoughts.

I was recommended by a good friend of mine to go get some Colonics (or Colonic Hydrotherapy, or Colon Irrigation). Basically the purpose of it is to clean out your colon. A regular enema only goes so far up, cleaning the lower part, the sigmoid and part of the descending colon. A colonic, will cleanse the entire length. If you are a newbie, you may be impacted and they recommend you do a series of 6 colonics at first. Like 2 the first week, then 1 the week after etc. For me personally, I think this is way too much and I would be scared to shock my system. Why would you be impacted? Because you basically have poo in your colon that may be stuck for YEARS, which can cause parasites, bacteria and other not so nice stuff to grow in there.

I was very apprehensive in trying this. It literally took me 2 years to brave it. But this was part of my game plan. So, 2 years later, I arrive at my destination.

Walking into the Naturopath Cilnic:
I was told that the Colonic woman is a sweetheart. She is very grandmotherly and will put you at ease immediately. And boy were they right! Picture a little 5 foot woman with a strong South American accent. She greeted me with the warmest handshake and took me into the Colonics room. She showed me their sterilization process and began to tell me the process of a colonic. She kept emphasizing that she will try to make me feel as comfortable as possible. At first when I entered the room, I was like OMG. Here’s a quick drawing from my iPad.

02

Keep in mind that the bathroom there is a Stall. It does NOT have walls. The entire time she was talking, I was thinking about how I am going to use the toilet while she is RIGHT THERE. It’s kind of like thinking how you are about to do a discreet #2 in an office washroom with co-workers in the next stall.

I put that thought out of my head and figured I would deal with it later. She told me to go and use the bathroom now if I needed to and to take everything off bottom-wise and wrap myself with a towel. So I did all that, and then went up onto the table. I was greeted by a large poster that has a drawing of a colon. She told me then that the goal of Colonics is to reach the very end of the colon.

She told me to lie on my right side facing the wall and to take a deep breath. There goes in the sterilized metal contraption! YAY! That wasn’t as bad as I thought. Nothing different about this than a papsmear (although different location).

I was told now to lie on my back. The she got some cream and started massaging my stomach. I am guessing to move things around. This was my view.

01

She began to open up the pipes. I am not exactly sure how it works, but she called it a TIE-OFF. So basically what happens is that she will let water flow into your colon and she will tell you to hold it as long as you can. When you can’t hold it anymore, you say Stop! and she will tie-off, where she will shut off the incoming water and then open another valve where the water will drain into Lawrd knows where.  Then the cramps will cease. In the midst of all this, there is a large mirror suspended from the ceiling where you get to see what comes out of the tube. This throws in some much needed entertainment. As things were coming out, she would tell me, “Oh! that is Ammonia!”, “Oh! that is Yeast/Candida!”, “Oh! that is Mucous!”, “Oh! that is Gas Bubbles!”. I felt pretty victorious as I kept seeing stuff coming out. Mind you, it took about the 5th tie off to see anything. I was beginning to think that my innards were very compacted. In between each tie-off, she would put a warm heating pad on my stomach and continue to massage my stomach. At one point, she had some vibrator contraption on my stomach.

I will tell you quite honestly, it wasn’t the metal contraption that was uncomfortable. It was the cramps that you must endure which each tie-off. It literally felt like you went and ate a bucket full of bad Mexican and then got stuck in traffic on the way home with nowhere to expel your stomach. This went on for about 30 minutes and I am guestimating about 10 tie-offs. In the meantime, she mentioned that water was also circulating in my colon. And also, she decided to do a blast of cold water in one of the tie-offs. Not so much fun with that one.

After the whole thing, she assisted me in getting up and asked if I felt faint. I said no, however the entire time, I was shaking. Like an adrenaline shake. Not a shivering shake. Not sure what’s up with that. She said that was normal. Then she said to go into the stall and make sure I put both feet on the stool while expelling the rest. I’m like “Ok! if you say so!”.

I get into the stall and felt no ways about expelling whatever was left. I was almost at the same point as when I gave birth. I didn’t care who was in the room, just get it out. NOW!

I made all sorts of noises I am sure, but listen, this little woman has probably seen it all. She doesn’t care. And neither should I.

After this, she told me to have a cup of herbal tea in their reception, and if I needed to use the rest room again, I can do so.

I had my peppermint tea, made some jokes with the receptionist and was on my way home only 10 minutes away thank goodness. As soon as I got home, I had a little soup because I was STARVING. Literally within 2 minutes, I had to dash to the bathroom again, and I am sure stuff was leaking out! My husband was sitting there laughing the whole time, and I kept screaming “Don’t worry! You’re next! I am making your appointment next week!!!“.

I had another 2 encounters or so with the bathroom and then I was fine.

So that is the story. Now, if the Colonic person been some hot dude, there was absolutely NO WAY that I would have done this.

Here are some tips if you want to have a Colonic:

  • Don’t eat 2 hours before
  • After your colonic, eat steamed or cook veggies, soups and avoid red meat
  • Minimize carbohydrates to avoid constipation
  • Drink 2L of water, herbal teas
  • Take 30 billion Probiotic (Ultra Flora by Metagenics – recommended)
  • After, take a fiber supplement

Humaworm Parasite Cleanse {Day 1~7}


1-7

That whole Spinal Tap and Blood Patch ordeal set me back a few weeks, but cheers to another round of human guinea pig starring ME. Here is the scoop:

  • To read up on what all this Humaworm stuff is about, read my previous post.
  • After 1.5 years of taking Lyme meds, I am on a 30 day antibiotic break ok’d by my Lyme Doc.  
  • With Humaworm, you take it 12 hours apart. 1/2 before breakfast and 1/2 before dinner on an empty stomach so that the buggers eat the herbs and die. Make sure you drink at least 8 cups of water all day to flush out toxins and to avoid constipation.
  • I also forced got Husband to take it with me, however he started 2 days after me.
  • I am not paid to write this post nor review it. Visit Humaworm for more info and see what types of herbs they pack into this tiny little capsule.

OUR STATS:

ME: I am a 38 year old female, 5 foot 1 and about 114 pounds. Have been in Lyme treatment for 1.5 years after 2 years of mysterious symptoms. Am currently at about 90-95% recovery.
HUSBAND: He is a 39 year old male 5 foot 11 about 210 pounds. History of asthma, seasonal allergies, shellfish allergy and sinus and nasal issues. He says that he normally breathes through one nostril at a time. Had surgery for deviated septum in 2002. Has an iron clad stomach and can pound down any food related competition involving burgers. However early in Jan 2013, he went to Haiti for business and most likely brought back a friend because he was sick for a week (despite the $350 vaccinations). To sum it up, he said it felt like a samurai sword was going through his stomach. Other than that, no major health issues.


Day 1
Me: 
Normal BM in the am however I don’t think that the Humaworm worked into my system then. Did some errands and then in the afternoon felt very sick to my stomach. It could be the herx that I am going through from my acupuncture detox the last week because I have been on a steady herx now for about 4 days and today was the worse. In and out I felt like vomiting, then I was hungry, then I felt barfy. It’s hard to distinguish but I am guessing it’s herx symptoms. At about 4 pm, had a headache and needed to lie down.

Day 2
Me: 
Had 3 BM’s in the morning, (ya I know! not normal for me!) Much better today however very gassy. Like I swallowed a box of air. Was scared I couldn’t make it to this thing I had to do, but I persevered and went which is about 50km from my house with no emergency washroom trips that I was anticipating. A little bit dizzy and drunk but who knows if it’s from Lyme.

Day 3
Me:
Some vertigo is coming back, but different type of vertigo. I don’t get the heartburn that alot of people complain about. I have drinking water like crazy and I didn’t have a BM today and I am quite scared because “they” say that you should have 3 BM’s a day while on Humaworm. I don’t see how that is physically possible since I don’t eat alot, but if you are backed up, then you should do an enema and there’s no way I am going to try that. I will stick with my sauna detoxes and water. I also had in and out bits of nausea, and some weird tingling in legs. Not sure if this is the Humworm, or the fact that I have now been off meds for 3 days or if it’s Lyme related. This peeing thing is working my last nerve. As soon as I go and finish, I go do whatever I have to do, then have to go again. This is worse than pregnancy urination.

Husband Day 1: He had a headache coming on before he woke up, then took the 2 pills at 7 am, then the headache got progressively worse and at 2:30pm he was couch bound for about 3 hours leaving me to entertain 6 year old. Is it related to Humaworm? I don’t know. Does it work that fast on Day 1? Does that mean he is really toxic? He has never done a cleanse before.

Day 4
Me:
I was all concerned last night because on Day 3, I didn’t have a BM, so I was googling until 11:30pm about this, and this, and this, and wondering how on earth I’m going to execute it and what would happen if 6 year old accidentally walks into the bathroom and starts questioning why I’m lying on the floor with a tube shoved up my butt. Good news is that I did have a small BM in this morning at 6:45am, although it was kind of forced due to my paranoia. I got 6 year old to school at 7:15am and went back to bed for half hour. Then had the urge to go to the loo. I was ecstatic! I was set and ready to see creepy critters, but there was nothing out of the ordinary. After my shower I felt very good, just some minor vertigo again. Went out and did errands.

Husband Day 2: Poor guy didn’t get off the couch from the day before. He went straight to bed with that massive headache and didn’t wake up until 7:00am this morning. He must have take 8 tylenols. He still doesn’t believe that the Humaworm can work that fast. But again, he’s never had a headache that landed him in bed for 16 hours. He also said his mouth felt like a garbage truck. This is definitely a Humaworm thing because it makes your tongue feel rotten. He went about his day, did some meetings at work, called me on the way home saying the headache is coming back, came home at about 5:00pm and went to bed. Our friends wanted to see a movie with them but I said “No can do, Husband is in bed fatigued and headached“. I was asked what happened. I said “A worm is mighty pissed!!!“. I kept asking him if he wanted to go to the ER and he looked really sly and said “Why they are going to ask me what I am taking, and I am going to say that I bought these herbal pills online. Then they might go ahead and do a spinal tap.” I wasn’t amused. The night dose, he halfed the dose to only 1 pill.

Day 5
Me: 
I had a normal BM in the morning and I think I saw something but I was so grossed out, I didn’t look further. I’ve been feeling a bit of tremors and body vibrations again. I am still on full dose.
Husband Day 3:
He took 1 pill instead of 2 this morning. Headache is still probably about a 2/10. We debated why he has been hit hard, and I had hardly anything happen yet. I think it’s because I have been in some type of treatment for 1.5 years and maybe my bacteria load is down? It was a PA day, so 6 year old was home, we took him to play some glow in the dark mini golf and then saw Cloudy with a Chance of Meatballs 2 in the afternoon, I felt nauseous for about an hour, Husband’s headache was ramping up but tolerable. Evening dose for him was again 1 pill.

Day 6
Me:
Nothing out of the ordinary. Same thing.
Husband Day 4:
Is still at half a dose. Headache is still a 2/10.

Day 7
Me: Today, we had a very busy day starting off at 9 am. Church then his whole fam came over for Thanksgiving dinner. I am trying to still take my supplements, but I have kind of let that slide. It was a draining day and at about 9pm, I felt kind of sick. I drank maybe 2 glasses of water all day which maybe why.
Husband Day 5: 
Still at half dose. He is scared to up to full dose. You can safely say that he now has had a headache without any relief since beginning. I told him that I don’t think he can stay at half dose for the 30 days, that would kinda defeat the purpose. I was scared that he would only upset his worms and then they would become resistant. He wasn’t understanding why the worms liked his head and I told him that I think that they go for the weakest part of your body. (I am only saying this because I remember my Holistic Lyme guy saying that Lyme attacks your weakest link). Which makes sense because he has bad allergies and sinus issues. Anyway, I emailed Humaworm about the half dose and am waiting for a response.
*UPDATE* Humaworm’s Response – “… the 60 days should be effective. Just takes longer. Perhaps, after two weeks, on off days he can increase the dose to see if it is better… I am so sorry that he has experienced the headaches…. “

SUMMARY OF WEEK 1

ME: I went head on at full dose the whole week. I have been having these tingly sensations. Like detox tingly sensations that seems like pathways are being opened. The other times I have experienced this is the first time I did this Liver Cleanse 4 years ago (Pre-Lyme) to get rid of gallstones. It’s a good sensation, almost like feeling as if blood is going to places that were blocked or something. I also feel this when the acupuncture helps open up pathways. I also notice that about half an hour after the pills, I feel dizzy. I also realize now that it has been 7 days being off all Lyme meds and nothing unusual has happened. I get the minor symptoms, body vibrations, some nausea and the vertigo. If you are concerned about doing everyday stuff, you can, Humaworm doesn’t have you chained to the toilet (as I thought). You can still go shopping, go to school, go to work. As for the poop stuff, I didn’t notice any major thing going on.

HUSBAND: He has never done a real detox ever, he ate rather poorly (I think) for most of his life and is well known for his love of burgers and all things bacon and meat. His die off was pretty severe, which really only consisted of bad headache, and some gassiness, but enough for him to go down to half a dose. Not sure when he will go back up to the right dosage but I say to wait until the headaches clear and then go back up. The problem in his situation is that he has to work and sometimes it is labour intensive.

Bottom line: This Humaworm thing is POTENT.

It might cost me $7695 to have my own baby.


states

I ventured off to the States to see my Doc. This will be my 3rd in office visit and my 1 year appointment. Overall, it went very well. When has it not? My doc is the best. She makes you feel so relaxed and spends time answering your questions, sharing her expertise. And what’s best about her is that she admits she doesn’t have all the answers. Lyme is such an unknown realm. I can tell she keeps really updated with new findings and research. That is very important as Lyme keep evolving.

So I had to go off meds for about a week and a half due to this recent bugger here. Which was good because I went back and gorged on meat like it was going out of style. Symptom wise, they were slowly but surely creeping back. The body buzzing, slight tremor feeling and vertigo all came back to pay me a visit while on my little medication hiatus, reminding me that their fun wasn’t over.

So I will continue on the same treatment plan now which is kind of unpublished so I won’t go into too much detail however it involves the vegan diet and I will be targeting Babesia specifically with one antibiotic and a mammoth supply of supplements that will make me go bankrupt and cry.

I had documented on my progress chart that I was at about 85-90% and she was very happy to hear that. I asked how much longer treatment will be and was told maybe end of this year or next year. “WHATTT?” I screamed! That took me by surprise! This is what she keeps telling me over and over and I need to print it off and paste it on my forehead.

Lyme is not about tests. It’s about symptoms.

I have spoken to many other patients who see the same doc and who were put on Mepron, so I asked why I was never put on Mepron. And Mepron will for sure drain your bank account like a sucking leech, I’ve heard that it is $1000+ a month. So anyway, the reason was most likely due to my symptoms at the beginning. If a person was really fragile, then they would most likely be put on Mepron. If the person was functioning and their immune system was doing some work, then they would most likely be put on the pulses. Also findings were if people were put on the pulses and they were really sick in the beginning, they would have severe die-off. So the Mepron is to lessen that load so to say.

So, the reason for my dramatic over the top title of this post.

I asked when would it be possible for me to have another kid. You know, to stop all those stupid questions from people asking me when I’m having another kid. I usually answer these questions with another question like “When are you having YOURS?” Who cares if the aunt is in her 70’s. Read more comebacks here. Some are brutal.

Well, here is the deal if you don’t know. There are many cases of congenital Lyme. I think that is how my 6 year old may have been exposed. For me, I don’t think I am quite ready yet at this stage but if I did later on, and depending on my symptoms then, especially if the babesia symptoms were still lingering, she will have me on a couple of antibiotics AND the Mepron. Mepron at the pregnancy dosage would cost about $7000 for 9 months. Kill me now. Also, she said that you can get the cord blood tested. Where? I don’t know. If you know how to do this in Ontario, someone please tell me, I’m too lazy to search right now. I just did 90 squats.

So, here is my 30 day squat challenge. That is because I need to look Bikini Hot when we go on our cruise in 3 weeks. After all, I gained 10 pounds and my skeletor profile is no longer. BOO.

Here is the squat chart for you if you feel motivated.

Day 1 50
Day 2 55
Day 3 60
Day 4 Rest
Day 5 70
Day 6 75
Day 7 80
Day 8 Rest
Day 9 100
Day 10 105
Day 11 110
Day 12 Rest
Day 13 130
Day 14 135
Day 15 140
Day 16 Rest
Day 17 150
Day 18 155
Day 19 160
Day 20 Rest
Day 21 180
Day 22 185
Day 23 Rest
Day 24 190
Day 25 195
Day 26 200
Day 27 Rest
Day 28 205
Day 29 210
Day 30 215

So overall the appointment went well. $1295 Cha ching! Damn! That is a frigging plane ticket to the Maldives. But of course, Hubby always puts things in perspective for me saying if I don’t get well, there will be no Maldives.

While we were at my docs, I also got him tested with the Igenex #188 and #189. Just because. And I don’t tell anyone because they will think I’m paranoid and crazy. But screw them. While the nurse was drawing his blood, my 6 year old was looking on and the Nurse says to him, “Isn’t your daddy brave?” My 6 year old looks at her and says “Um, I did this last year.

In other Lyme news, guess what? The Niagara Falls lights AND the Peace Bridge are going to turn green on May 17, 2013!  Marlene is an awesome Lyme Advocate. See more info here as well as more info on the Brampton Lyme Walk that she is organizing.

This post is very scattered and off tangent, not my usual style, but I have been on this computer now for 12 hours straight and if I am here any longer, I might just turn into a computer.

My Green Monster


I’ve seen this documentary advertised sometime last year on Netflix and have been meaning to watch it and finally, I sat down and searched Netflix and of course, big surprise, it isn’t available in Canada. The documentary is called Fat, Sick & Nearly Dead.

I was completely moved by it. Before I was researching on my Blendtec Blender, I was considering a juicer. What discouraged me from getting a juicer was because of the amount of produce and veggies that you need to have in order to make just one cup. And the work involved. Cuz I’m lazy.

Before watching this documentary, I considered it again and did some more research. Then I watched the documentary. After watching it, I got on my computer and looked for a juicer. I didn’t want to purchase one too hastily, so I let the thought marinade in my head for another week and then I saw a sale for the Breville 5 Speed Juicer on sale for $249 ($40 off) with free shipping. I purchased it immediately. Yes it’s a bit pricy, but it’s well worth it. And I love it. It’s a Centrifugal Juicer, not a Masticating Juicer. You can read the pros and cons of each here.

It’s not hard to use at all. I had no idea how to juice, or what to do, I  just watched the documentary, read the manual, found some recipes online, went to the grocery store and bob’s your uncle.

breville

Why I wanted to Juice.

  • Juicing (80% green veggies, 20% fruits). You absorb all the nutrients from these fruits and vegetables in one single cup. As you can see from the picture below, there’s no way I would eat all that in a day.
  • My neighbour has been raving about it for a year and she is a living testimony of how effective it is.
  • My other neighbour mentioned to me that she knew a woman with lung cancer, got treatment, started to juice and the cancer is not there anymore.
  • Watching the documentary solidified (for me) the importance of juicing.
  • I want to get really healthy. Not to lose the weight but for nutritional purposes.
  • We are what we eat!
  • http://articles.mercola.com/sites/articles/archive/2011/11/13/benefits-of-juicing.aspx

05

What the juicer does.
Some may wonder if the Juicer is the same as a Blender. A juicer extracts the juice from fruits and vegetables. A blender liquifies and emulsifies ingredients. For more on the difference, read this great post here.

What I made.
This was my first juice. I used some celery, carrots, a couple apples, and thumb of ginger. I had no lemon. So it didn’t taste particularly great. So I made a mental note to purchase some lemons the next time to balance the ginger.

Many people advocate that you should buy organic because of the pesticides. However right now, we are in the middle of winter with -5 degree weather so I won’t be finding any local vegetables and produce here so I’ll have to make do.

01

My Green Monster

{makes about 2.5 glasses}

  • Handful of Spinach
  • 3 Leaves of Kale
  • 3 Stalks of Celery
  • 3 Carrots
  • 2 Granny Smith Apples
  • 1 Red Gala Apple
  • Half a Cucumber
  • Half a Lemon (a must!)
  • Thumb of Ginger

Tastes Flipping Fantastic. The ginger really gives it a kick. I drink one cup immediately, give another half to 5 year old (with a tea spoon of honey and he loves it) and throw the rest into an air tight mason jar into the fridge. This needs to be consumed within the day because it will oxidize and lose nutrients. What to do with the rest of the fiber? I compost it. There isn’t a whole lot. Some use it to bake muffins or something, but I find that a little gross.

03

02


Negativity

I searched for negative reviews on juicing. And of course, there are naysayers. One particular article here, I can rebut almost all points. These points appear in almost all negative aspects of juicing. You can read more on the points in that article. While they are legitimate arguments, common sense wins every time. Here are my opinions on their points.

Expense
Yes it’s expensive, but I would rather pay $249 rather than $10,000+ on medical care (as I have).

Disinfection and Cleanup
It’s no different than cleaning and disinfecting your bathroom. Or cleaning your baby’s diaper. How lazy can can one be on their own health.

Microbes
Buy from local farms and well known sources, and wash your vegetables and fruits well.

Loss of Fiber
Who cares. I would risk the loss of fiber to gain the nutrients from juicing and get the fiber somewhere else. Duh!

Lack of Convenience
Unfortunately, our world has become fast paced. We need to stop and smell the roses. I say this because I was there. It’s all in priorities. The 15 minutes it takes to juice is the same 15 minutes you spent looking at someone’s facebook page.


04

My tips on juicing

  • Organization is key. Have all your vegetables prepared and ready to go.
  • Clean and wash whatever is in your sink and put it away. Have a clean countertop.
  • It is a bit of a clean up, but as the documentary says, No Pain, No Gain. Deal with the washing!
  • You need to wash the filter immediately or else the fiber will get hard and stuck and you will cry when you try to wash it.
  • Some vegetables I prep for the next day, like peeling carrots and cutting up celery. Then store it in a glass airtight container and store in fridge

After my first juicing experience, I noticed a boost in energy within half an hour. My mind was telling me to take a nap, but my body wasn’t letting me. Each time gets better and better. I now drink 2 glasses a day and will be incorporating this into my lifestyle.


Juicing for Lyme

Here are some great blogs on those who juiced because they had Lyme.


My Final Comments

I hope this blog post inspires you to start juicing! I’m only a week into it and it’s been really great. I can’t wait to see the results after a year!

My Liver Sucks.


Hello Friends! I haven’t written in a while. There are a few reasons for my absence in posting.

1) I didn’t feel worthy to post (more below)
2) Life got in the way (this is a good thing right?)
3) I didn’t have any major milestone updates
4) I have been feeling oh so much better
5) I had a few crap days and I never like to blog on those days because the tone is never right. It will just be me complaining and who wants to hear complaining.

Within the past 3 weeks, I have talked to at least 3 people who’s immediate family had been hit with cancer. It is really heartbreaking to hear these stories because really, one never knows when and if it will happen. But that is a topic for another blog post altogether. All I know is that we should be grateful for our lives and what we have. While I’m listening to these emotional trials of life from my dear friends, in the same breath, I see others who are upset because they can’t figure out what to where at a Christmas party. I feel like screaming at them and saying “AT LEAST YOU GET TO GO TO A CHRISTMAS PARTY!”  What lyme has taught me is never take anything for granted. Be thankful for what you have and make every minute count. Be humble. Don’t sweat the small stuff. I ask for a special prayer request for a friend who’s sister is going through some very deep trials in health. I think that is another reason for my lack of posting. I didn’t feel anything I had to say would have been worth much because what I am going through is absolutely nothing in comparison. My prayers go out to her.

BLOOD LABS

labs

I got my December Blood Labs back. This time, my liver enzymes are at 60. My LLMD said that they need to lower or I will be taken off meds. I was reassured by many people including my ND, and my great friend over at The Lyme Maze that an ALT of 60 is nothing to write home about however it does indicate something going on. I was sent a detox plan from my LLMD:

DETOX

  • ALA (alpha lipoic acid) 300 mg at bedtime – I bought this
  • Milk Thistle – Use an 80% Silymarin extract. Useful in supporting liver functions. Take 175 mg three times daily. You can take with antibiotics. – am already taking this
  • NAC (N-Acetyl Cysteine) 500-600 mg. 1-2 twice a day with meals may take up to 2400mg a day.(Cysteine helps synthesize glutathione, one of the body’s most important natural detoxifiers.)
  • Vitamin C 1 gram three times a day. – am already taking this
  • Drink plenty of fluids.
  • Maintain 1-3 bowel movements a day. Increase fiber (vegetables fruit whole grain) and fluids.
  • Avoid all sugar, limit processed foods. Get adequate amount of protein as this will facilitate detoxification. Eat plenty of fruit and vegetables, but limit fried and fatty foods, like cheese. (Now I have been eating many grilled cheese sandwiches lately)
  • Continue antibiotics while on the supplements (unless I instruct you to stop them which would be for an AST over 60 or ALT over 75). Repeat blood tests AST, ALT, GGTP in 1-2 weeks.
  • If your liver enzymes are still elevated after taking the detox supplements, stop all antibiotics for a week and then have a repeat lab done for liver function tests including GGTP. If blood tests are normal continue the milk thistle for 4-6 more weeks. If blood tests are not normal, then remain off antibiotics and repeat the liver function tests in 7-10 more days adding hepatitis A. B, C, serum ferritin, transferrin saturation, serum iron, antigliadin antibodies , antiendomysial Abs and tissue transglutaminase, ANA, PT, serum albumin, fasting lipid profile, TSH, free T4 and T3 blood tests.
  • There is a homeopathic trio, called the Big Three by Pekana, sold by BioResource in the US. It cleanses liver, kidneys and lymph. It has been very helpful for patients who continue to have liver or kidney function elevation. (I ordered this)

NO NOT THE DUCK EGGS!!!

I went to get a food sensitivity test at my Naturopath. This test is different than the ones where they scratch your skin. Those ones test for immediate anaphylactic allergies (IgE) where it could be a life or death situation where you would get a reaction within minutes to hours of consuming food. The test that I got (which is about $250) tests for food intolerance. It’s a basic finger prick like a test for blood sugar levels. These are considered latent allergies (IgG). Normally, the body is able to elimate these antibody-antigen complexes, but with excess antigen, small complexes tend to deposit in blood vessel walls where they can cause tissue injury via the release of inflammatory mediators. [immunobiology 5th ed Janeway CA Jr et al. New York; Garland Science:2001]

Over time, this tissue injury may contribute to the development of a variety of health conditions such as IBS and migraine headaches. So with that said, I got my results back (took about 2 weeks). And look at what I am intolerant to:

allergy1

I have been eating eggs for breakfast like they were going out of style because I am not allowed to eat anything else. So great, now I need to eliminate the eggs for at least 6 months which basically leaves me with water for breakfast.

allergy2

allergy3

My 9 month phone consult with my LLMD

I talked with my doctor this morning. With each progressive consult, I do get a little bit ansy, but I feel like I’m really talking to an old friend. I told her my overall percentage is at about an 85% back to normal (except my 5 week flares). With each flare, the symptoms are more easily managed. The worse that a flare can do to me now is just really piss me off because I can’t go shopping or something. It won’t render me in bed or anything, I just feel blah, like mope around the house and feel sorry for myself. In the past month, I remember only once saying to my husband “This is a lyme day, don’t bother me.”

She said that if I am seeing improvement (which I am), I will be kept on the same Pulse A and B for another 3 months. I had absolutely no objection to this because I am doing pretty well on it. The only thing is that I goofed. Bad. For the past 6 months, I have only been taking 2 tinidazoles a day when it should have been 4! Anyway, no harm done, I will try to ramp up as tolerated.

So she said I can continue this same treatment and then if I want, I can get off it and start the next treatment which she calls the Alinia treatment for Babesia/Protozoan infection. Alinia isn’t sold in Canada (seriously, when does this ever get easy?) so I have to order it from the states and get them to ship it to a pharmacy in the US. Buffalo is about 2 hours from me, so that’s where I might need to go. Maybe I can throw in a weekend at Great Wolf Lodge while we are there.

When I start that treatment, I’ll let you know, right now there’s so much reading I have to do on that, and I have been procrastinating. I do know that it also involves a major diet change of low a fat Vegan diet (South Beach Diet or McDougall Diet). The reason for this is because the buggers like fat or something.

Anyway, my consults with her are bitter sweet. I love seeing what the next steps are and where to go from there, but after the chat, I have to do this.

kill

I hate pill counting. I can’t believe I still remember how to do long division. The only reason I did this was because I was too lazy to get my butt off the chair to get my calculator. In the beginning of treatment, I was all into the excel spreadsheets counting each pill and making sure that I had enough. If you have been following my blog, my earlier posts were very much like that. Now it’s like, Meh. So I had to call the pharmacy to ask how many pills I had left for refill. Oh ya, and just to add more crap to the mix, my insurance is cancelled on December 31. The reason is because they didn’t have enough members on the plan. I am not sure if I will find another private insurance. There isn’t much need for me to get one just for Chiro and ND Visits. And when I really think about it, the meds cost were the least of my issues.

So that’s it in a nutshell. I’m feeling very optimistic right now and I’m looking forward to the new year and what it has to bring. I will keep you posted on how the double dose of the tinidazole goes. If I don’t post in the next while, I wish you all a safe Merry Christmas and a Happy New Year!

A reflection of the past year


Here’s a little synoposis of how my year went.

1. A year ago, I had my first colonoscopy and endoscopy. Read about that story here. If you really want to poop your pants from laughing, read this one as well from a very funny site that explains his experience with a colonoscopy. (Do not ask how I stumbled upon this).

I have been harassing Husband to get a colonoscopy. He has no symptoms of anything, it’s more preventative than anything. He didn’t seem too enthusiastic. I said “Listen, you don’t feel a thing. The most annoying thing is the day before when you handcuffed to the toilet. Remember? Like when you asked me to go to the mall with you to shop for snowblowers clearly knowing that I couldn’t leave the house.”

I asked my Naturopath if she can sign a form for me and she said ND’s can’t because they don’t have access to the Ohip #’s.

So she advised us to get a requisition from our family doctor, and that we must need a reason why we need a colonoscopy. They simply won’t grant you one just for the sake of preventative medicine unless you are at the age of risk (which in Canada is 50). So if a family member has a history of colon issues, then you can get one. For me, I lied to get mine. So I figure it sums up to this:

  • Medical Doctors are reactive in medical care. They will wait until you are basically screwed to help in any way.
  • Naturopaths / Homeopaths / Nutritionalists are proactive and preventative in care.

A year ago, I also knew something was off and that my year long GERD Diagnosis was wrong. That is because I started to get this body buzzing, vibrations, muscle spasms. GERD doesn’t do that now does it?

2. A year ago, my vertigo got worse. GERD doesn’t do that now does it?

3. A year ago, I started my Chiro treatment.

4. A year ago, I seriously hunkered down to figure out what was going on. I doctor hopped like nobody’s business.

As I reflect back, there have been many pits of despair. When I think about them, and if you are in one right now, just think that what you are going through is probably a little bit better than Lana Winters.

Although I’m sure in some cases of Lyme, you can probably relate to her. If you aren’t an American Horror Story fan, skip this photo.

Yesterday we finished our landscaping. Last year we had this patch of grass that I wanted to make Zen like. Well a year later, it looked like this.

This is what happens when you don’t mow the lawn. I emailed the landscaper with instructions on what to do and OMG, look what he did. (I had to patch the photo together so ignore the railings that don’t line up)

I can now say my entire backyard is grass free. I can stop being paranoid about bugs.

From my last post, I have been really really well. I think that as I type this I am feeling about 95%. My state of well being is lasting longer. The only thing that is bothering me right now is this ball / orb that flashes on the bottom of my left eye. I am still waiting on my appointment with the ophthalmologist. And also the results of my allergy panel from my naturopath.

Christmas is approaching; I can’t wait to do some shopping! Last year, I was really miserable and wasn’t in the Christmas spirit at all, let alone in any spirit, but I am so happy to say that now everything is so much better and my life is almost back.

Here’s a shot of buddy putting up the tree all by himself. He was harassing us for a week to put it up. That was November 1. Finally, we pulled out the tree, and set it up and left him with the pile of balls. I somehow navigated to the computer and Husband went into the shower. 1 hour later, I come and see that all the balls were in one tiny area at the bottom left of the tree. I screamed at what a marvelous job he did and started re-arranging the balls so it didn’t look so whack. “Mommy you are ruining my tree! Now it’s like I never did it!” Sighhhh…..

Life is good!

Thinking about y’all.

Visit to my new Naturopath


First and foremost, thank you to all who took the time to email me about my last post here regarding my 5 year old’s IgeneX results. I had to let that sink in a little bit and was very stressed for about 3 days. My hubby is a very relaxed glass ALL full person and he didn’t think much of it. Perhaps because he hasn’t gone through the hell that I did, but he is the voice of reason and re-assurance. He read my LLMD’s interpretation and said to stop worrying because the answer is right there. Don’t treat based off labs. Don’t treat if asymptomatic.

I updated my last post as I also spoke with my Lyme Homeopath and Dr. Marty Ross regarding the same issue.

My Lyme Homeopath’s response (updated):

I emailed my Lyme Homeopath to get his interpretation of the results and he said this is suspicious of Lyme and to do a Lyme Challenge (if I wish to). The Lyme Challenge (which is what I did back in March 2012) is when you take herbs such as Cat’s Claw or Teasel Root for several days to see if it produces a herx. A 5 year old would most likely do 1/4 adult dose. I asked if this would “awaken the beast”. He said no. But I am not sure if I want to do this because I’m not trying to prove whether he has Lyme or not (like in my case). Infact I want to disprove it. If I were to treat him, I will not subject my 5 year old to harsh antibiotics. If anything, I will do as my LLMD advised on symptomatic kids and start him on the Cowden Condensed Protocol with specific dosages according to weight. However, I need to do more research on that and I need to monitor him on symptoms. In the meantime, my pantry will be cleared out of all skittles, gummi bears and chocolate chip cookies.

Another great point that he brought up was the mention of Dr. Dietrich Klinghardt where his theory is that 70% of people on earth are walking with Lyme antibodies and their immune systems can fight off the infection.

Homeopath’s Bottom line: Don’t treat if asymptomatic.

Dr. Marty Ross Response:

A western blot is a technique used to see if a person is making antibodies that attach to very specific proteins found on the Lyme germ covering. We identify the proteins by what they weigh. For instance, one of the proteins weighs 18 KDa (a KDa is a microscopic unit of weight.) On the western bot a + of ++ or +++ means that the tests detects antibodies against that protein. An ind could mean one of two things: there was a very weak antibody reaction so it is barely detected or during the test some dirt or another artifact showed up on the test strip. So an Ind could be a weak antibody reaction but is not always. A test is positive if there are antibodies against 2 of the following, 23-25, 31, 34, 39, 41 or 83-93. Ind do not count in determining a true positive. Having said this, I would interpret the results as very weakly positive given the number of ind findings at the 6 important proteins.

However, having a positive test or even a weakly positive test does not prove one has Lyme. We also have to consider is there a risk of getting it, the symptoms, any physical findings. So in the case of a person like your son who does not have any symptoms, I do not treat. It is possible that even if he has Lyme his immune system is dealing with it. I do not use antibiotics in this situation because they may not rid his body of the infection if it is present, it is also possible they could cause any Lyme to become dormant which is much harder to treat. Finally, even if he is on antibiotics, it is not clear how long to treat given that he does not have symptoms.

Yes, some of my patient had Lyme infection but not disease for many years and then they became symptomatic. Again though it is hard to tell who this will happen in.

Regarding the 18 +, the Europeans consider it to be one of the important proteins. I sometimes consider it, but prefer to look at the reaction to the six proteins I discussed earlier.

Dr. Ross’ Bottom line: Don’t treat if asymptomatic.

So there is God’s answer; via 2 highly reputable LLMD’s and a Homeopath who specializes in Lyme.


Back to the topic of this post, a few weeks ago I received an email from www.danceintherain.ca introducing a Naturopathic Doctor who was willing to take on 10 Lyme patients at a very discounted rate. This ND has many Lyme patients, however is not a specialist in Lyme and wanted to start learning and treating. She attended one of Dr. Murikami’s lectures while he was visiting here a few weeks ago and felt the need to reach out.

I quickly emailed her to see if I was a suitable candidate and I was. I drove 40 minutes today to Richmond Hill, Ontario and met with Dr. Angela Lee of Vital Checks. My appointment was 1.5 hours and we spoke about my entire medical history, current supplements and antibiotics I am on and took my blood pressure (I am low). I was quite surprised that many of her Lyme patients are also seeing the same LLMD as me (many doing fantastic).

I wanted to do an allergy test panel but will do at next appointment as she didn’t have available kits. Looking over my supplements and latest blood labs, I was recommended to take Iron because of low ferratin levels. That was about it as most of the supplements I am on covers almost all the important stuff. She will also be starting me on a weekly treatment of IV Vitamin Therapy (Myers’ Cocktail), tapering off to once a month as needed. Myers’ cocktail has been used to relieve respiratory symptoms of acute asthma attacks, upper respiratory tract infections, chronic sinusitis, and seasonal allergic rhinitis, pain associated with migraines, muscle spasms and fibromyalgia, as well as chronic fatigue syndrome and cardiovascular disease. {Wikipedia}. The IV infusion will last about an hour.

My question to you: Have any of you done the Myers’ Cocktail and if yes what was your experience with it? Good or bad? Did you herx? She advised me to eat something before or I may puke! Did I tell you I absolutely hate puking?

If any of you are in the area, she has a couple of spots left at this discounted rate (very very reasonable). Please contact Dr. Angela Lee directly at Vital Checks.


How I am doing

I have been doing very very well. I went to see my chiropractor today and he also noticed that I am getting back on track and holding my adjustments. I have been holding on to many many good days with minimal symptoms. I would say that I am about 85% back to my old self.

Some points

  • When I start the pulse every 10 days, an increase in symptoms flare, but at a very low level. Every round of pulses, my symptoms gets dramatically reduced.
  • My tremors, body buzzing have diminished to about a 1 out of 10. I rarely notice this now if at all. If it does come, I notice it only comes at around 6 in the morning. It doesn’t wake me up. It’s more like if I’m in between sleep and awake, I will notice it
  • The nausea, feeling of fullness still comes and goes. I notice I feel much better if I eat.
  • The drunk, stoned feeling has dimished
  • I usually get symptoms during ovulation and a day before cycle hits.

I can most definitely say that my days are no longer all about Lyme. I am enjoying life right now. Even if I could stay at this stage, it would be great. Lyme has given me the appreciation of life and everything God has to offer. My goal for the next while is to learn how to better support my immune system through diet and nutrition. I know I was supposed to do that Whole 30 Paleo challenge after thanksgiving however I still haven’t had the time to dream up 30 days of recipes. When I do, I will let you know.

Hope you are all doing well….

LLMD Office Visit – September 2012


DISCLAIMER: PLEASE SEE YOUR OWN LLMD FOR YOUR OWN SPECIFIC TREATMENT. DO NOT GO ON ANY LYME PROTOCOL WITHOUT FIRST SEEING AN LLMD.

Don’t ask me how I am finding the time to write this post. Today included a whole lot of running around and much of 4 hours were dedicated to waiting rooms, blood tests, medication refills and the like. If I added up how much time I have wasted due to this nonsense, I would have been able sew a quilt the size of a football field.

Saturday morning started with us driving up to Montreal, forgetting our passports for the NY Border crossing, turning back, but we eventually made it. Tuesday I was scheduled to see LLMD. Husband and 5 year old dropped me off and headed to the mall. I was 15 minutes early. The clinic was awfully quiet. The nurse took my vitals. She mentioned to me that the wait list now is up until January 2013.

Height: 60 in
Weight: 100lb (YIKES!!!!!)
Blood Pressure: 122/88 mmHg
Temp: 98.4 F
Pulse: 78 bpm
Resp Rate: 13 rpm

As the LLMD was in with a new patient, it went on longer than usual and I waited another 25 minutes. But I was welcomed with the biggest open arms. I asked if I can record the conversation on my phone because I will most likely forget what anybody said. The conversation started with me describing the second worst herx of my life (which actually ended on the Sunday). So as we speak, I’ve been about 4 days symptom free.

We went over my symptoms:

  • Burning Fingers, nausea, vertigo, drunk, head pressure, night terrors, anxiety, not hungry until moving around, all symptoms of underlying Babesia.
  • Metal taste – can be due to the Clarithromycin. Also due to heavy metal exposure. I asked if I should get the (3) silver fillings removed in my teeth. I was advised this was a wise idea but to make sure it’s done with a biological dentist. Even if you have an oral dam, you will still need to have oxygen, a mask on, air expeller etc. Since you are getting better, you will minimize the risk of mercury exposure by going to the right dentist. They will also give you IV Vitamin C after the treatment. If you do it, do it right.
  • Math is the first thing to go with adults and children. Even an accountant who can balance something in minutes will now take 20 minutes.
  • Hormones can change because of Lyme
  • Beware of drinking from plastic bottles, lotions, petroleum as they have plastics in them. Use extra virgin coconut oil.
  • Colon hydrotherapy and coffee enemas. Highly recommended.
  • Beware with GMO. No canola oil. Stay on a healthy organic diet.

I also typed up a list of questions for our visit which are summarized below:

Q: On the 1st and 2nd round of Pulse A and B, I did really well. On the 3rd round of Pulse B, things started to get a little worse. More cotton head, vertigo that lasted 2 weeks. One night had the shakes really badly, cold clammy, hot and cold. Was this a herx or candida flare up?
A:
Symptoms get worse in the spring and fall. Was a possible herx. If it were candida, it would persist. With a herx, you will feel all these symptoms that are horrible, but they will get better. Hasn’t seen that with candida. If it were candida, they wouldn’t really get over the herx, newer symptoms would persist such as abdominal distension, trouble digesting food, coated tongue, sore throat, lots more joint pain, peri-anal itching. Yeast makes acetaldehyde, a chemical not good for the body and the liver will turn that into alcohol. As my symptoms went away, it probably wasn’t a yeast issue.

Q: Can I mix 50% alcohol teasel root, Kombucha with tinidazole.
A:
No. You shouldn’t mix. Even if you dine in a restaurant, make sure you are aware of what they are marinating the meats with. Even a wine marinade will cause a bad reaction. Remember this rule applies to Metronidizole (Flagyl). Kombucha is a fermented tea, however it may not make enough alchohol to warrant a reaction. But do a quick google search just in case.

Q:  How to bring up WBC levels. Should I be concerned with blood labs at all? Mine has been a steady 3.7.
A:
Be happy with a 3.7. Sometimes they will come up on their own after treatment. If they fall below a 3.0, patients are taken off meds immediately. If it goes below 3, patients are required to skip a day of medication per week. Choose the same day every week (Monday) to skip. Another way to bring up WBC levels is Cordyceps, a mushroom that can support the WBC. Low WBC means chronic infection. It can be toxins or mercury, which would bring me back to the silver fillings issue.

Q:  Wanting to testing 5 year old at appointment / recent Spider Bite in Sept 1 / No symptoms but diarrhea.
A:
Symptoms of children are hyperactivity, but hard to diagnose because boys are hyperactive to begin with. Other signs are “my tummy hurts, “I’m tired, carry me” (on a constant basis). Treating children with Cowden Condensed Protocol and they usually do well with it. Diarreah is not typically a sign of lyme, it just means his immune system is in overdrive.

Q:  Do any of your patients relapse? And if so, what is the treatment and is it quick to “bounce back”?
A:
Patients do relapse. They are treated with Doxycycline and Clarithromycin and a pulse of Metronidazole just to prevent a cyst form of Lyme from popping back up. Within 4 – 6 weeks, patients improve. It’s not going to be like starting over from square one.

Q: What if I get bitten again?
A: You have no immunity. None. Nada. Be careful where you choose to vacation. It is not all about Lyme. Sandfleas can spread infection. People are coming from all over the world, they are bringing their infections and there is a greater exposure. They are getting bit my mosquitoes and sandfleas. Sandfleas are notorious for giving the bartonella infection. Beware of Cuba and Dominican Republic. Do not allow yourself be bitten. Sandfleas look like tiny grains of sand jumping. Be inquisitive. Keep watch on the beaches. Do not sit on sand. If there are not enough chairs, sit by the pool. Or better yet, sit on concrete! When on a resort, some have private beaches where there are grass. Don’t sit on the grass. Get Samento which really helps.

Q: What is the CD57 test?
A: At first when it was published, CD57 was diagnostic of Lyme. And only people with Lyme had a low CD57. However in recent discussions, patients who have low CD57 have improved, others who have high CD57 were the sickest people ever received. It doesn’t look like a fool proof answer to anything. If you want to measure it before you off antibiotic you can. Gamma Dynacare offers it in Toronto. Or you get it through Igenex.

Q: When I can think about getting pregnant?
A: Would like to prescribe Cefuroxime and Zithromax a few months before hand. And take it during pregnancy.

The best sentence of the day said by LLMD.

Be weary about trusting tests. It is not about proving it on a piece of paper. It’s about how you feel.

Treatment Plan: September – December 2012
I will be on the exact same treatment plan as I have been for the last 3 months because I’m doing really well on it. We may change it up in December 2012 or March 2013.

TREATMENT PROTOCOL #3
October 2012 – December 2012


  • PULSE  A: for 10 days
    Clindamycin 150 mg (1 pills 4x a day)
    Quinine 200 mg (2 pills a day)
    Bab2 (by Beyond Balance):  23-50 drops (2x a day)
  • PULSE  B: for 10 days
    Plaquenil 200 mg (1 pill 2x a day)
    Tinidazole 500 mg (1 pill 2x a day) – Due to my intolerance of Flagyl, I’m taking this instead. Say hi to Flagyl’s sister.
    Clarithromycin 500mg (1 pill 2x a day)

Rotate these 2 pulses every 10 days for 3 months.


More Stuff

I got my little buddy the #188 and #189 Western Blot with Igenex. LLMD’s nurse drew the blood. He was a trooper and didn’t cry at all. I will get the results in 3 weeks. If he is negative, I won’t look at the $200 as a waste of money. I will have peace of mind and also that may be a good sign for me to gauge how long I’ve had it. If he’s positive, that’s another story and a whole other can of worms.

I was also concerned about the white thrush on my tongue. I was prescribed with Diflucan, or I can go on Grapefruit Seed Extract, Fiji Tea, adding fresh organic garlic to food (raw and crushed). Garlic also stimulates the immune system, improves circulation, kills intestinal parasites and lowers blood pressure. It is a powerful antioxidant. I can also use Caprylic Acid, a fatty acid supplement derived from coconut oil and is specifically effective for killing candida overgrowth in the intestines. (should not be taken by people who have ulcerative colitis). I can also optionally start on InterFase by Klaire Lab for the treatment of biofilm.

However as LLMD prescribed me with the Diflucan, my Canadian doc thought that this was too harsh on my system so prescribed me with Oral Nystatin (shown above) for 10 days. I am not sure what to do with this so I have to read up.

I also inquired about B12 injections and so I was prescribed with syringes and stuff that needs to be purchased through a compounding pharmacy. It is for 3 times a week. I hear that a normal person would do it once a month. Great. More questions from the pharmacy. I am not exactly sure what to do with it all, but my good friend over at Lyme Maze has sent me lots of info on where and how to properly inject this stuff into your buttocks. Getting the stuff is another story.


What I did today.

We are heading to Orlando Disney tomorrow! Even though I should have been packing, I was busy for most of the day as mentioned trying to get the above prescription re-written and filled. I didn’t go to Costco this time, I went to a pharmacy beside the clinic and the pharmacist asked out of curiosity why I’m taking all these meds. I said Lyme. She nodded her head. She knew it. She had another person have the exact same thing with the US Prescriptions. She said that Lyme is very rare. I said it’s often misdiagnosed as something else and we got into the whole politics of it. She was very interested.

And I also did my monthly blood labs. I did manage to get a requisition for the CD57 blood test even with everyone scratching their heads as to what this test was about, not only the doctor, but the nurse and the medical lab person who draws the blood. They all know about the CD4 which is the HIV test. They don’t offer the CD57 it at CML Health Care, so I will need to go to Gamma Dynacare.

This past weekend out of town, my husband and I also celebrated our 12 year anniversary. Well that’s officially on paper. I have known him since I was 12 years old, which means we have been in each others lives for about 26 years. As I was sitting down about to type this post, I see a little card stuck underneath my keyboard. I opened it and the last paragraph was this. 🙂

Ok, this was a very long winded post, I will end this for now. I survived our 11 hour drive total and about $1000 gouge into my pocket in total for this round trip of meds, tests, gas, consult fees, herbs, meals. UGH!

I will reconnect with you after we have oodles of fun with Cinderella and her step sisters! There will be lots of walking, and food challenges I’m sure. Hope I survive!

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