lymed out

my quest to getting these suckas out!

Archive for the category “herxheimer”

Humaworm Parasite Cleanse {Day 22~28}


22-28

Ok let us get my Husband out of the way. He is still continuing to do the half dose of Humaworm (or so I think, I haven’t been monitoring him at all). His take on it is that he doesn’t really see a difference. I should also mention that I have another friend on it and so far, he is loving it and he feels better. I won’t be continuing the progress on either of them.

As for me, I have been to hell and back and if wasn’t by the grace of God, I would probably be in some ditch by now run over by a car that I drove myself.

I was doing pretty good, amazing in fact until last Thursday when we went to Shoeless Joes for dinner. Why do all my problems start at sports bars? WHY I ASK!? I ordered a pretty tame meal, pasta with chicken. And because I was starving, I ate it fast and then I felt like barfing.

By Friday, I was feeling weird and I knew something was coming. By Saturday, we had an outing and that morning, I was very fatigued and lethargic and barfy. By Sunday, I was bad again in the AM, but continued the Humaworm and was ok by evening.

By Monday, crap hit the fan and I was really sick. I was in tears at why. Was it Humaworm? Was it a relapse because now I am on Day 22 with no Lyme ABX? Then I started spotting. It was not normal. Was it ovulation issues? My stomach was cramping pretty bad.

By Tuesday, I was a mess and my husband “advised” me that I get off Humaworm and if I didn’t, he would cut off all my hair in my sleep. Now I knew he meant business because under normal circumstances, he generally leaves me alone to do whatever I want and is rarely involved at any decision making on my part. That’s why I love him.

So I took his advice and on Day 23, I put the kibosh on Humaworm and waited another day before I went back on my STUPID LYME MEDICATION.

In between this week, I’m pretty sure that all I had was a banana, an apple and a piece of toast. I was starving, but then anything past 4 bites I was full and nauseous. At one point, I actually had the urge to vomit but nothing came out. So, I started to panic and against my better judgement, I started to you know what.

google-favicon

I was wondering if I had some type of the stomach flu that was brought on my nothing, food poisoning, gastroparesis, appendicitis, a pissed off tapeworm, a herx, or some form of demonic possession. My BFF ordered me to go on a one week google fast. Instead of going to google, I must go to the Bible.

Today, I went for acupuncture and told her of my issues. I was surprised when she said she couldn’t find my pulse. I am pretty sure that’s not a good sign. Firstly, all of the blood labs has issues drawing my blood. Then this woman now says she can’t find my pulse. This is why my husband keeps saying he married a vampire. (Happy Halloween by the way).

At the end of the acupuncture session she says she doesn’t think I have the flu. She doesn’t know what it is. But she sure knows that I have major digestive issues.

Here is what I think went down: I was off meds for 3 weeks, started downing 2500 mg capsules full of potent herbs for 22 days. Maybe it caught up with me and I had a relapse. Whatever it was, this “relapse” felt almost the same as Day 1 of Lyme. Almost. I think the acupuncture session got my appetite back because I ate some spaghetti tonight without any issues…. so far.

Humaworm Summary

Do not be swayed by my posts. I strongly believe that Humaworm works. If you do your research and want to try it, by all means go ahead. It’s only $39 or so. As for me, I noticed that my pathways felt clearer, however when I had symptoms, it was hard to tell whether they were Lyme symptoms or Humaworm symptoms. Maybe I didn’t drink enough water. I don’t know. Whatever it was, I couldn’t go another day feeling like I did after the 3rd week. I am glad I made it that far and overall, I did pretty ok with it, I just wasn’t sure what happened that made it go sideways.

Either way, I still highly suggest this product. And if you take it, good luck and I would love for you to comment on your progress here. Who knows, I may take it again next year. I still have a full 30 day dose in my freezer.

Humaworm Parasite Cleanse {Day 15~21}


15-21

Against my desired intentions, my Humaworm updates are going to get pretty lame. Life got in the way, the days were gelling together, blah blah blah.

Me:
I am feeling very very very good. Pathways continue to open, circulation is getting better. No toilet mishaps, well maybe one, and that’s because I ate spicy instant Chinese noodles which no doubt had a severe helping of MSG. Have I seen any worms? No. But that’s because I barely look. Towards the end of the week, I was feeling extremely UGHHH. Like Lyme UGHHH.

Husband:
He stopped being a chicken and upped back to full dose on day 18. When he did the full dose, the headache came back within half an hour, but a very tolerable headache. I asked him if he can breath better and he thought about it and said “Why yes!” He never really was a good communicator. But then again, what husbands are? Near the end of the week, the headache was building every day again and he couldn’t handle it so he went back down to one dose. He missed a dose on one occasion.

Now look what I gone and did.


Something is screwy with WordPress. I originally wrote this 6 days ago, but wondered why it was like crickets over here… I usually get some type of response or likes and so I went back to login and it says it’s in draft mode? UGH. So here it is.

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That last herx I had wasn’t pretty, it lasted for about 10 days and left me pretty much feeling like pure crud. So to celebrate the awesomeness of it all, I went and purchased this.

humaworm

I did my research. I read alot on curezone.com, fished through alot of testimonials, emailed back and forth with the Humaworm client rep for about a week. And finally decided Hey, Why Not. What’s the worst that could happen? I purchased 2 sets, one for my hubs and one for me so we can hold hands and go through this together while we ride off into the sunset.

Many say that we de-worm our pets, but never ourselves. And to that I would like to say, “Hmmm….yes, that’s true, but we also don’t frolick outside 18/7, bathe once a month and lick our own butts.” However, they do have a point.

Now my only concern with this Humaworm thing is that you can’t take Probiotics. I guess because it cancels each other out. I will need to speak to my doc about this because I will probably go on a one month med hiatus.

I found a rather humorous blog of a guy who did the Humaworm parasite cleanse and wrote about each day. READ IT HERE. Nothing to be scared about. I am confident that whatever this Humaworm does to me, it will not come near to the trip I took to Hades last year flying first class.

NOW

So as far as now, I am still alive and feeling pretty bloody fantastic. I have been relatively symptoms free for about 2 weeks. However am battling some pretty bad headaches. Now I remember that my good old LLMD said to me once “You will feel pretty gross and stuff and then all of a sudden, you will just feel better.” Now the emphasis on the “better” was something like an “a-ha moment“, something like the picture below. I am referring to that split second when the music goes “ahhhh..” kind of angelic like. I am hoping this feeling will stay.

simpsons

JAPANESE ACUPUNCTURE

So my mom told me to go with her to see this Japanese Acupuncturist. My mom had been seeing her for about 3 months and she cured her of numbness and tingling in her arm that was bothering her for months. So I went last week and told this Japanese lady of my story and in her cute little Japanese accent, she described to me that Lyme is just a label that Westerners use. In fact, most diagnosis’s are labels.

What acupuncture does is balance out your body so that it repairs your immune system so that it can help you fight whatever is messing with you. She said my digestive system is very weak. The 1 hour session consisted of much prodding on my abdomen and pushing on alot of organs. I have done acupuncture before but it was never like this! I am usually used to the acupuncturist sticking 4 needles in me and then leaving me to die in the room for 30 minutes. Kidding. No seriously, she was basically in the room with me for that entire hour going around the table that I was lying on. 30 minutes I was lying on my back (you had to disrobe and lie under sheets) and she would be inserting needles, taking them out, applying acupressure in a certain spot etc. Then the other 30 minutes was lying on my stomach. And the whole rigmarole was then focussed on my back. At one point, I smelled incense and I think she was burning the needles. I did a little more research and found out it is called Moxibustion.

The whole experience was very calming and I will be seeing her again in 2 days and then probably once a month. However, later that day I had a headache the size of Texas. Anyway, I am sure this was a huge toxin release, but I am very excited to continue this treatment. Read more on the difference between Japanese and traditional Chinese Acupuncture here.

Update: So I went and saw her again, and told her about my headaches and electrical shocks in my head. She was like Hmmmm… She went about and did her treatment and then at the end said my head was very “puffy” and “soft”. It is supposed to be hard and she made me feel the base of her skull. My head being soft meant it was congested. I remember the last time, I felt this kind of release, like water pouring over my head, like blood was being let in or something and some type of pathway was opened up….

UPCOMING POSTS:

  • LLMD Visit is in 2 days
  • My next series of posts will probably be about the Humaworm (Starting Sept 16, 2013). I will most likely do a 30 day diary.

OMG, I’m now 18 months into treatment and feeling worse.


Sorry for the title. I vowed in my entire existence that these words would never come out of my mouth let alone my keyboard. I have become my own worst enemy. I am a hypocrite. I am sorry.

Truth is, the past few weeks have kind of put me through the ringer. Yes, I know this is something that you don’t want to hear, especially the newbies. But don’t fret, this soon shall pass.

Most of my symptoms came after eating at Boston Pizza. I have made a promise to myself I would never eat there again. Reason being the last 2 times I ate there, 1) I found a dead fly in my spaghetti 2) I had the worst heart burn and gallbladder pain for 3 days. Rivaled the same pain as I did BEFORE I removed my gallbladder. Go figure.

Then Aunt Flo came to say hi 3 days after and then all hell broke loose. I thought I would recover after she left but nope. It is lingering! Last night wasn’t too hot. So what is it for me? I feel sick. Like I ate something rotten. My head feels spinny like I got drugged and forced to drink a bottle of vodka. My appetite is kind of gone. I crashed a bit hard last night and this morning couldn’t get out of bed until 9:30 am. My poor 6 year old wouldn’t have made it to camp if my husband wasn’t home to drive him.

So anyhow, this is where I am at. I am toying with the idea of purchasing this: HUMAWORM. They have a pretty informational website. I have read very good reviews, complete with pictures of toilet adventures of people digging through poop for evidence. If you have tried this, please comment, would love to hear your results, but don’t necessarily want to see your poop.

I see my lovely doc in a month and can’t wait to see what she has for me next. I’m being sarcastic. I seriously thought that I would be done and over this crap by end of this year. I am not too sure given the festivities that happened the past couple of weeks.

It’s good to have friends out there who know what you are going through. Kevin, (we see the same doc), gently pushed me to send an email to her. Here it is.

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“Hope all is well! I have a some concerns. I am on the Alinia/Artemisinin treatment and on full doses of everything. I couldn’t handle the vegan diet, so am eating meat. I have been doing excellent the past several months and my highest peak was 95%. But in the past 3 weeks or so, I seem to have regressed I would say back down to 75-80%, now having my first lyme symptoms which is freaking me a bit out. The biggies are nausea, loss of appetite, dizziness and vertigo and some minor fatigue. But enough for me sometimes to crash hard. These have been re-occuring symptoms but again the past few weeks/days have gotten severe. What do you make of this? What should I do? I see you in Sept 11. Should I wait until then to assess?

Response:

“This may be herx. Make sure to do detox/homeopathic detox/herx treatment. If you need to lower the doses of the supplements. Let me know if it still is a problem.”

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My question is, how can your herx be WORSE 6 months into a treatment regimen? Isn’t it supposed to get better? Just sayin’.

Today I also did the usual monthly blood work. Blah. My levels have been pretty steady the past few months. Ok so that’s it. Nothing else. I am hoping my next post will not be talking about poop. But if I decide to purchase the Humaworm, it may very well be. Stay tuned.

This stuff is kinda nasty.


a-bart

Hmmm. What to write. What to write.

Well, I started A-Bart 3 days ago. It tastes pretty gross. Apparently it’s very potent and even one drop of it can send you into some fit of despair. As says my doc. She advised me to start one drop in 4 TBSP of water and work my way up to 5 drops 2x a day. Or even start at half a drop. Hmm. If you can tell me how to do half a drop out of an eyedropper, please let me know.

I have been progressively getting better however the last 2 weeks, I have been feeling a bit wierdo. Like symptoms from way back are popping up. It’s almost like things are happening in reverse. I read somewhere that as you get better, the first symptoms that appeared will be the last symptoms to go. Does this make sense? So for me here’s my latest annoyances.

  • It feels like I am regurgitating food. Like there is pieces of food stuck in my throat. I know. Gross right? This was one of my very first symptoms that prompted me to see a GI doc and drink this nasty chalky liquid stuff while teeter tottering on a table. And they came to the conclusion that I had Acid Reflux.
  • This trembling that cannot be seen by anyone but me. I asked my husband if he saw my head shaking and he’s like “huh?”. “Oh you mean like old people?”. I said yes. So I tried to sit very still for 60 seconds while he watched my head. He couldn’t see it.
  • Sometimes when I’m at a height of a flare, I feel really nauseous. Like even the sound of my 6 old running up the stairs will make the nauseousness worse. I tried to explain it to my husband and God bless his soul, but he was as confused as a homeless man on house arrest (I couldn’t even come up with that joke, I had to google it). Ok seriously, does that make sense? I said it’s like when a person has a migraine and even a pin dropping would make their migraine worse. Like over-sensitivity to lights. But instead over-sensitivity of sound that makes you wanna barf. Yes? No? OK. I give up.

Here are 2 video’s of Kevin from Lymesavers.ca when he and Dr. Murakami appeared on a local TV Show. I met him at a coffee shop a couple of weeks ago and we spent an hour discussing the sordidness of Lyme. I swear that my story is EXACTLY the same as his. If you put my body on that couch talking to that woman (who BTW needs to find a new profession), I would have said the exact same thing. WORD FOR WORD.

ks

dr.m

Last but not least, this is a bit of old news, but my secret guilty pleasure is watching The Real Housewives of Beverly Hills. One of the housewives on there who is married to the musician David Foster recently found out she had Lyme. She realized that while filming the show, things were not right and finally at the season finale reunion (you know with all the shouting back and forth), she knew that when she couldn’t defend herself properly with all the other women, that something was very wrong. Lyme had infected her brain resulting in Neuroborreliosis. Anyway, here’s her story. And I hope she can bring Lyme to light with her celebrity.

It might cost me $7695 to have my own baby.


states

I ventured off to the States to see my Doc. This will be my 3rd in office visit and my 1 year appointment. Overall, it went very well. When has it not? My doc is the best. She makes you feel so relaxed and spends time answering your questions, sharing her expertise. And what’s best about her is that she admits she doesn’t have all the answers. Lyme is such an unknown realm. I can tell she keeps really updated with new findings and research. That is very important as Lyme keep evolving.

So I had to go off meds for about a week and a half due to this recent bugger here. Which was good because I went back and gorged on meat like it was going out of style. Symptom wise, they were slowly but surely creeping back. The body buzzing, slight tremor feeling and vertigo all came back to pay me a visit while on my little medication hiatus, reminding me that their fun wasn’t over.

So I will continue on the same treatment plan now which is kind of unpublished so I won’t go into too much detail however it involves the vegan diet and I will be targeting Babesia specifically with one antibiotic and a mammoth supply of supplements that will make me go bankrupt and cry.

I had documented on my progress chart that I was at about 85-90% and she was very happy to hear that. I asked how much longer treatment will be and was told maybe end of this year or next year. “WHATTT?” I screamed! That took me by surprise! This is what she keeps telling me over and over and I need to print it off and paste it on my forehead.

Lyme is not about tests. It’s about symptoms.

I have spoken to many other patients who see the same doc and who were put on Mepron, so I asked why I was never put on Mepron. And Mepron will for sure drain your bank account like a sucking leech, I’ve heard that it is $1000+ a month. So anyway, the reason was most likely due to my symptoms at the beginning. If a person was really fragile, then they would most likely be put on Mepron. If the person was functioning and their immune system was doing some work, then they would most likely be put on the pulses. Also findings were if people were put on the pulses and they were really sick in the beginning, they would have severe die-off. So the Mepron is to lessen that load so to say.

So, the reason for my dramatic over the top title of this post.

I asked when would it be possible for me to have another kid. You know, to stop all those stupid questions from people asking me when I’m having another kid. I usually answer these questions with another question like “When are you having YOURS?” Who cares if the aunt is in her 70’s. Read more comebacks here. Some are brutal.

Well, here is the deal if you don’t know. There are many cases of congenital Lyme. I think that is how my 6 year old may have been exposed. For me, I don’t think I am quite ready yet at this stage but if I did later on, and depending on my symptoms then, especially if the babesia symptoms were still lingering, she will have me on a couple of antibiotics AND the Mepron. Mepron at the pregnancy dosage would cost about $7000 for 9 months. Kill me now. Also, she said that you can get the cord blood tested. Where? I don’t know. If you know how to do this in Ontario, someone please tell me, I’m too lazy to search right now. I just did 90 squats.

So, here is my 30 day squat challenge. That is because I need to look Bikini Hot when we go on our cruise in 3 weeks. After all, I gained 10 pounds and my skeletor profile is no longer. BOO.

Here is the squat chart for you if you feel motivated.

Day 1 50
Day 2 55
Day 3 60
Day 4 Rest
Day 5 70
Day 6 75
Day 7 80
Day 8 Rest
Day 9 100
Day 10 105
Day 11 110
Day 12 Rest
Day 13 130
Day 14 135
Day 15 140
Day 16 Rest
Day 17 150
Day 18 155
Day 19 160
Day 20 Rest
Day 21 180
Day 22 185
Day 23 Rest
Day 24 190
Day 25 195
Day 26 200
Day 27 Rest
Day 28 205
Day 29 210
Day 30 215

So overall the appointment went well. $1295 Cha ching! Damn! That is a frigging plane ticket to the Maldives. But of course, Hubby always puts things in perspective for me saying if I don’t get well, there will be no Maldives.

While we were at my docs, I also got him tested with the Igenex #188 and #189. Just because. And I don’t tell anyone because they will think I’m paranoid and crazy. But screw them. While the nurse was drawing his blood, my 6 year old was looking on and the Nurse says to him, “Isn’t your daddy brave?” My 6 year old looks at her and says “Um, I did this last year.

In other Lyme news, guess what? The Niagara Falls lights AND the Peace Bridge are going to turn green on May 17, 2013!  Marlene is an awesome Lyme Advocate. See more info here as well as more info on the Brampton Lyme Walk that she is organizing.

This post is very scattered and off tangent, not my usual style, but I have been on this computer now for 12 hours straight and if I am here any longer, I might just turn into a computer.

If it has a face, you can’t eat it.


This was the answer that my good vegetarian friend had told me once when I asked her what she eats.

So guess what. I can’t eat anything with a face now either. Oh, it can’t be that bad. Oh but yes, it can. I have been ordered to go Vegan. And fat free. For 120 days. Do you know what this means to a person who has been trying out the paleo diet for the past 6 months? It’s a total reversal of everything that I have been doing.

Now, before the haters start hating, I have nothing against vegetarianism or veganism. I just feel like I’m being bounced around like a yoyo and this nightmare will never end. I was just becoming fairly comfortable with minimizing my grains, eating healthy fats and spending oodles of money for grass fed meat which now will sit in my freezer until July.

So why this diet? It’s my new Lyme treatment which I have started last week. It involves the drug that cannot be mentioned or else I will start to get really angry, along with a long list of new herbal supplements and the like. Alot of tincture drops and my pill box doesn’t have enough slots per hour.

ughh

How is it going? Well, I have been UNhappily herxing for 6 days straight. On family day, we went to a restaurant with the in-laws and nieces and nephews, and being on this new vegan diet, I wasn’t in the mood for salad, so I asked the waitress if I could just get a bunch of sides which was basically bland rice, mashed potatoes and soggy vegetables. She looked at me like I was smoking some bad crack and I didn’t even bother explaining. About halfway through, I had to bail and drive home because I felt like I was going to faint.

I haven’t really done any research on vegan food and I have totally left this to the last minute which is totally not me. I think I’m in denial that I can’t eat meat but today was the straw that broke the camel’s back. I think I’ve had just about enough of eating water and bread so I’ve spent the past day looking up recipes and enlisting help from friends who were vegetarians.

Other than that, my appetite has been kinda shot for the past week. I don’t feel like eating. I am pretty sure it’s my herx because that’s what happens when it comes. I have this odd feeling of barf and then I get ravenously hungry and then I look in the fridge and I want to cry. I am not really worried about 6 year old because he apparently hates meat because when I cook it, he would be walking to the garbage can every other bite to spit out the chicken or steak.

My husband is pretty cool and the other day he came home with vegetarian samosas. They were undoubtedly deep fried, but right now who cares. I am still juicing every day. These herxes are coming in waves, coinciding with Mother Nature’s monthly unwelcomed visitor which is making everything feel worse x 100. My brain feels like mush and then it feels fine, and then it feels like I’m drunk and then I’m normal, and then I will feel a shooting pain in my head and then my left arm can’t even lift a shopping bag.

Am I home bound? No. I still go and do stuff but it’s annoying because this new treatment requires me drinking the herbal stuff and I will be damned if I have to carry these bottles and shot glasses everywhere I go.

It has been 1 year since I was officially diagnosed with Lyme. I have been in treatment for about  11 months. January 2013 has been the best that I ever felt. Nearing about 90% back to my old self. With my last phone call with my doc, I was given the option to continue the same course of treatment or to start the new treatment. I decided to start the new one because I have been doing the same thing for almost 9 months. Switching up has definitely produced my recent herxes which means the damned buggers are still having little parties in my body.

In other news, our basement has finally finished the big reno after 1 year. December 2012 had me pretty much painting the whole sordid thing against my doc’s orders, but I wasn’t ready to pay $2000 to someone for a job I can do myself.

bathroom

This is a shot of my sauna on the left and the new bathroom on the right. I still use it every other day for detox. It’s kind of funny how I designed the basement around this sauna, but I’m glad I did, it’s a mini spa. And when I’m done, I can literally jump into that awesome shower!

Hope you are all doing well, this is just a little update on how I’m doing, hopefully next post, I won’t be in such a terrible funk. If any of you have some good resources on vegan recipes, do share!

Hi. We kinda need 17,151 signatures by Feb 10, 2013.


buttAs you may or may not be aware, Lyme Disease is very hard to treat. I’ll put it as simply as humanly possible.

The ISDA (Infectious Diseases Society of America) Guidelines are in the dark ages. They think that it is something rare and if you do get it, that the cure is easily obtainable with 30 days of antibiotics.

But here is the problem. They don’t diagnose it. This misdiagnose it. AND, even if they were to diagnose it, they don’t have the right testing methods to do so. By this time, months and years have passed and those 30 days that could have cured you now turn into years of treatment that drain your bank account.

I can go on and on about the different scenarios that we face but then you will be here all night listening to me ramble and by the time I finish writing this post, I will be ready to commit murder.

Oh ya, Canada follows the same guidelines as the US.

So here is the bottom line, please click here and let your voice be heard. That is a large number of signatures needed 6 days. Can we do it? How can we make this go viral? Tweet celebrities? Justin Beiber? Help.

https://petitions.whitehouse.gov/petition/reform-infectious-disease-society-america-treatment-guidelines-lyme-disease/Pj9jG0pX

My Liver Sucks.


Hello Friends! I haven’t written in a while. There are a few reasons for my absence in posting.

1) I didn’t feel worthy to post (more below)
2) Life got in the way (this is a good thing right?)
3) I didn’t have any major milestone updates
4) I have been feeling oh so much better
5) I had a few crap days and I never like to blog on those days because the tone is never right. It will just be me complaining and who wants to hear complaining.

Within the past 3 weeks, I have talked to at least 3 people who’s immediate family had been hit with cancer. It is really heartbreaking to hear these stories because really, one never knows when and if it will happen. But that is a topic for another blog post altogether. All I know is that we should be grateful for our lives and what we have. While I’m listening to these emotional trials of life from my dear friends, in the same breath, I see others who are upset because they can’t figure out what to where at a Christmas party. I feel like screaming at them and saying “AT LEAST YOU GET TO GO TO A CHRISTMAS PARTY!”  What lyme has taught me is never take anything for granted. Be thankful for what you have and make every minute count. Be humble. Don’t sweat the small stuff. I ask for a special prayer request for a friend who’s sister is going through some very deep trials in health. I think that is another reason for my lack of posting. I didn’t feel anything I had to say would have been worth much because what I am going through is absolutely nothing in comparison. My prayers go out to her.

BLOOD LABS

labs

I got my December Blood Labs back. This time, my liver enzymes are at 60. My LLMD said that they need to lower or I will be taken off meds. I was reassured by many people including my ND, and my great friend over at The Lyme Maze that an ALT of 60 is nothing to write home about however it does indicate something going on. I was sent a detox plan from my LLMD:

DETOX

  • ALA (alpha lipoic acid) 300 mg at bedtime – I bought this
  • Milk Thistle – Use an 80% Silymarin extract. Useful in supporting liver functions. Take 175 mg three times daily. You can take with antibiotics. – am already taking this
  • NAC (N-Acetyl Cysteine) 500-600 mg. 1-2 twice a day with meals may take up to 2400mg a day.(Cysteine helps synthesize glutathione, one of the body’s most important natural detoxifiers.)
  • Vitamin C 1 gram three times a day. – am already taking this
  • Drink plenty of fluids.
  • Maintain 1-3 bowel movements a day. Increase fiber (vegetables fruit whole grain) and fluids.
  • Avoid all sugar, limit processed foods. Get adequate amount of protein as this will facilitate detoxification. Eat plenty of fruit and vegetables, but limit fried and fatty foods, like cheese. (Now I have been eating many grilled cheese sandwiches lately)
  • Continue antibiotics while on the supplements (unless I instruct you to stop them which would be for an AST over 60 or ALT over 75). Repeat blood tests AST, ALT, GGTP in 1-2 weeks.
  • If your liver enzymes are still elevated after taking the detox supplements, stop all antibiotics for a week and then have a repeat lab done for liver function tests including GGTP. If blood tests are normal continue the milk thistle for 4-6 more weeks. If blood tests are not normal, then remain off antibiotics and repeat the liver function tests in 7-10 more days adding hepatitis A. B, C, serum ferritin, transferrin saturation, serum iron, antigliadin antibodies , antiendomysial Abs and tissue transglutaminase, ANA, PT, serum albumin, fasting lipid profile, TSH, free T4 and T3 blood tests.
  • There is a homeopathic trio, called the Big Three by Pekana, sold by BioResource in the US. It cleanses liver, kidneys and lymph. It has been very helpful for patients who continue to have liver or kidney function elevation. (I ordered this)

NO NOT THE DUCK EGGS!!!

I went to get a food sensitivity test at my Naturopath. This test is different than the ones where they scratch your skin. Those ones test for immediate anaphylactic allergies (IgE) where it could be a life or death situation where you would get a reaction within minutes to hours of consuming food. The test that I got (which is about $250) tests for food intolerance. It’s a basic finger prick like a test for blood sugar levels. These are considered latent allergies (IgG). Normally, the body is able to elimate these antibody-antigen complexes, but with excess antigen, small complexes tend to deposit in blood vessel walls where they can cause tissue injury via the release of inflammatory mediators. [immunobiology 5th ed Janeway CA Jr et al. New York; Garland Science:2001]

Over time, this tissue injury may contribute to the development of a variety of health conditions such as IBS and migraine headaches. So with that said, I got my results back (took about 2 weeks). And look at what I am intolerant to:

allergy1

I have been eating eggs for breakfast like they were going out of style because I am not allowed to eat anything else. So great, now I need to eliminate the eggs for at least 6 months which basically leaves me with water for breakfast.

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My 9 month phone consult with my LLMD

I talked with my doctor this morning. With each progressive consult, I do get a little bit ansy, but I feel like I’m really talking to an old friend. I told her my overall percentage is at about an 85% back to normal (except my 5 week flares). With each flare, the symptoms are more easily managed. The worse that a flare can do to me now is just really piss me off because I can’t go shopping or something. It won’t render me in bed or anything, I just feel blah, like mope around the house and feel sorry for myself. In the past month, I remember only once saying to my husband “This is a lyme day, don’t bother me.”

She said that if I am seeing improvement (which I am), I will be kept on the same Pulse A and B for another 3 months. I had absolutely no objection to this because I am doing pretty well on it. The only thing is that I goofed. Bad. For the past 6 months, I have only been taking 2 tinidazoles a day when it should have been 4! Anyway, no harm done, I will try to ramp up as tolerated.

So she said I can continue this same treatment and then if I want, I can get off it and start the next treatment which she calls the Alinia treatment for Babesia/Protozoan infection. Alinia isn’t sold in Canada (seriously, when does this ever get easy?) so I have to order it from the states and get them to ship it to a pharmacy in the US. Buffalo is about 2 hours from me, so that’s where I might need to go. Maybe I can throw in a weekend at Great Wolf Lodge while we are there.

When I start that treatment, I’ll let you know, right now there’s so much reading I have to do on that, and I have been procrastinating. I do know that it also involves a major diet change of low a fat Vegan diet (South Beach Diet or McDougall Diet). The reason for this is because the buggers like fat or something.

Anyway, my consults with her are bitter sweet. I love seeing what the next steps are and where to go from there, but after the chat, I have to do this.

kill

I hate pill counting. I can’t believe I still remember how to do long division. The only reason I did this was because I was too lazy to get my butt off the chair to get my calculator. In the beginning of treatment, I was all into the excel spreadsheets counting each pill and making sure that I had enough. If you have been following my blog, my earlier posts were very much like that. Now it’s like, Meh. So I had to call the pharmacy to ask how many pills I had left for refill. Oh ya, and just to add more crap to the mix, my insurance is cancelled on December 31. The reason is because they didn’t have enough members on the plan. I am not sure if I will find another private insurance. There isn’t much need for me to get one just for Chiro and ND Visits. And when I really think about it, the meds cost were the least of my issues.

So that’s it in a nutshell. I’m feeling very optimistic right now and I’m looking forward to the new year and what it has to bring. I will keep you posted on how the double dose of the tinidazole goes. If I don’t post in the next while, I wish you all a safe Merry Christmas and a Happy New Year!

What the blazes have I been up to?


Howdy, how are you all doing? Just to rest assure some readers who have emailed to see what’s up with me since I have been a bit MIA on this blog lately, I have not died, I am still chugging along gracefully.

I haven’t written in a while (gasp only 2 weeks geez!) because I’m living up to my name. I’m lymedout. Completely utterly Lymed The [Hell] Out. Insert what profanity you will in between the [  ].

I didn’t want to think of lyme, I didn’t want to talk of lyme, I didn’t want anything to do with it. Not that I want to now either. Mind you, I never really talk about lyme anyway (at least not to family). Sometimes they all think everything is shining stars and pretty rainbows, when really I’m sitting there trying to ignore the room spinning or feeling like my lunch is about to come up. We are all good at hiding things.

So the Good news: I’ve gained 5 pounds.
The Bad news: I’ve gained 5 pounds.

I have been getting better. I would say now that I’m at 80% maybe?

I notice that with each passing pulse, especially at the beginning, symptoms will come back. Though at a lesser scale. As my LLMD puts it, every time you switch back and forth, you are killing some stragglers. SUCK IT YOU STRAGGLERS!

My latest tiny herx lasted about 5 days last week. It wasn’t a ‘put you in the bed herx’, more like a ‘still go about your daily duties while enduring annoying symptoms’ type of herx. Just gotta deal with it. Sometimes I think that I’ve lived with these annoyances for a while now, that I don’t even notice it.

Also, because my ferritin levels are low, I was advised to go on iron supplements. These were to be taken with some OJ because it absorbs better.  Because of the mammoth amount of pills I’m taking, I forgot all about the orange juice AND I took it on an empty stomach. BAD IDEA. HELLO NAUSEA THAT PUT ME OUT FOR THE REST OF THE DAY AND ALSO SCREWED UP HALF THE NEXT DAY.

So, I’ve done up a little chart so you can see what I’m saying. My goal is to be past 100%. In summary, it’s been progressing very well. There are hiccups along the way but what can you expect. You have to look on the bright side. Like if a zombie apocalypse surprised us tomorrow. Imagine dealing with that too. I often wondered what I would eat if that happened, what with my hypoglycemic issues and all. I found a food source guide that would help out incase walkers came out of the dark. Check it out here. (yes I’ve been watching too much Walking Dead)

Ok jokes aside, remember I said I was going to do the Paleo Diet here after the Canadian Thanksgiving?  Well as completely expected, I haven’t started it. I have been feeling pretty good and started back on a whole variety of wonderful foods such as grains, cheese, chips, leftover Halloween candy and other gut rot items.

So, if I start this, it would have to be the new year, after Christmas. And then when the new year comes, I will probably blog saying that I won’t start it till after Easter.

In the meantime, I found this other site www.emeals.com that looks pretty interesting that just added Paleo into their menu. You don’t have to think, they do all the meal planning for you.

My blood labs are back. Same crap, different piles, I don’t even bat an eyelash now.

Moving on to other fun unrelated news, I started shopping for some Christmas gifts and picked this up for my cousin. There’s not a conversation that goes by without the discussion of bathroom related stories. Funny enough, this usually happens when we are all eating dinner together.

Although this cousin of mine is still in the “eww” stages of discussing bathroom habits, I said “Just wait till you have kids, then you will be talking brown stuff all day”. I neglected to add that once lyme is involved, it reaches a whole new level of whack.

You can pick up this little neat calendar at Calendar Clubs, or Amazon. Each day has a little tidbit of surprisingly good information.

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