lymed out

my quest to getting these suckas out!

Archive for the category “medication”

It has been….


1 year, 4 months, 23 days since my last entry post.
2 years, 6 months, 3 days since my last lyme med.
5 months, 2 days since my last menstrual period.
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baby

Yep. I am exactly 22 weeks today and I am 41.

I remember thinking back that my first set of “any” symptom was about 8 years ago. Before that I considered myself really healthy and hadn’t even seen a doctor 10 years prior to that. But here I am. I remember that when all my symptoms started, there was no way to expand my family because I was simply too sick and too tired and too old and that time was my enemy.

Well, screw all that. I figured out that if I don’t have another kid by 42, then I really won’t have a chance. This I consider my miracle baby because I had a dream about this baby a few years ago, right in my middle of my illness. (if you read that link, you will see why). I never thought that it would come true and believe me, I thought because I had this dream, that it would be easy as pie to actually conceive because God was in my favour, but it wasn’t. It took 7 months of trying and I was just ready to say forget it again just at that 7th month. But other insane supernatural things began to happen around this time, which I will probably have to explain in another post, but here we are now.

I have had every test done possible so far with my OB to test for the health of this baby and so far everything looks good. I am believing in that promise that God gave me so long ago that this baby will be healthy as can be.

This past week however has been one disaster after another:

  • Friday – started to get a sore throat (probs from 9 year old hacking)
  • Saturday – icky, headache
  • Sunday – had booked a trip for the weekend out of town and it was looking like I wasn’t going to have fun. Nights were terrible and it felt like someone poured liquid lava down my throat.
  • Monday – was determined not to have whatever ailing me to bring me down. Because I was preggo, this prohibited me from doing any sort of activity, but it was fun nonetheless watching my 65 year old mom do zip-lining with my husband for the first time. I felt like an old grandma taking kids to the amusement park because all I could do was sit on benches. I started experiencing that wierd cough I had last year similar to what I had after my pneumonia. It was bouts of uncontrollable coughing to the point of vomiting. When the attack comes, it’s enough to make you leave the presence of everyone out of embarrassment. You start tearing. Your face turns blue. The attacks came about 3-5 times a day.
  • Tuesday – on the drive home, husband made me a¬†doctors appt. My Doc was on mat leave so the replacement Doc said I had something but there were missing pieces due to my symptoms. The throat swab showed no strep. I had no fever or chills. So he diagnosis it as allergies most likely because he has no answer. Despite the fact that¬†I have never had any history of allergies
  • Wednesday Morning – my husband was a witness to one of my coughing fits and him being a person with seasonal allergies for most of his 42 years of life deemed that “my coughing was no allergy”.
    Wednesday Night
    РMy left eye began to hurt, like someone threw sand in it. Ughhhh Ok what now? After 30 min of rubbing it, I went to the mirror to see what in the living earth was going on. I saw pieces of yellow stuff. Gross! I wiped it away thinking something probably got stuck in it. But wait, there was more, up all the way behind my upper eyelid? WTH?? Hello Google. Hello pink eye.
    1:00 AM – Feel asleep dreaming of pink eye and then got¬†up to use the bathroom (which is now a nightly 6x habit due to the baby hugging my bladder). Had to blow my nose from bad congestion and then immediately later felt like something was falling out of it. If I had not switched on the light in the pitched black, then I would not have seen the Niagara Falls of a bloody mess spewing down my nose. I texted my husband (who was in the basement at that time doing gawd knows what), “come up, I think I’m dying.” I haven’t had a bloody nose since I was 16. Now, from my past experience, I knew that when a major blood clot came, that it signaled the end of the nose bleed. And guess what, it happened again. This blood clot was the nastiest thing if ever I have witnessed in my human existence. It was like a long 10 inch of a red alien thing that looked like it came out of Ripley’s stomach. I am pretty sure it had teeth.
  • Thursday¬†morning bright and early – went back to doc, but to the walk-in this time – “Your pink eye is viral, not bacterial” she says “so antibiotics won’t help. Plus you are pregnant, so I can’t give you anything. If it persists, come back in 3 days. But that’s a Saturday, and we won’t be open. Ok bye!” Well, according to Google, yellow pus = bacterial. Whatever. I went to my health food store, asked the lady and she told me to buy this. Guys, my eyes are white again.
  • Thursday¬†Night –¬†My cough however was getting worse. My ribs and muscles now hurt. At one point I coughed so bad, I had to change my panties because I peed! My friend mentioned whooping cough at some point, but I dismissed it. But that night when I was awoken from my precious¬†dream of red bloody aliens, I actually heard the “whooping” in between coughs as I couldn’t catch my breath. I figured out the reason I never heard it during the day was because I was trying to stifle it.¬†I found this site. And I am 100% certain that this is what I have. Same thing as last year only I was never diagnosed. So armed with info, guess what I did?
  • Friday morning bright and early – went back to the walk-in, got a different doctor, told him I think I have the whooping cough and that Zithromax was given to me last year. “Oh but Miss, have you been around or heard anyone with the whooping cough?”. Um No. “You don’t have the whooping cough, you have a bad viral something, but because you are pregnant, I can’t give you anything except Amoxicillin. Or you can drink lots of water and keep your humidifier on 24/7.” Gee thanks. I said No to the Amox and left. I decided this was just like lyme, but with something else. And really, I am just tired of trying to prove anything to anybody, so I said to hell with it, went to the mall and paid $220 for a haircut that I never knew would cost $220.

I have figured out now through this journey that nobody really gives a¬†shiznick¬†about you. I am not saying this because I am feeling offended or anything but this is the reality. With this latest crap of sickness, I don’t really care, I just know that I will get better, I’m not going to waste time trying to figure it out, go on Google, worry about the baby, I will just trust that everything will work itself out.

My guilty pleasure is¬†The Real Housewives of Beverly Hills¬†and¬†I have watched Yolanda Foster’s journey. This entire season, her lyme was questioned and she was shown in the spotlight as having Munchausen Syndrome. The editing was so good on it, it even made me question her illness and sanity¬†which in itself is insane seeing I went through the exact same thing as she! But I had to jolt myself back to reality. The thing is, nobody will get it unless they are in your shoes, in your body, in your head 24/7. Nobody will understand. And that makes you feel alone. I get it. For me, I find the situation worse when I have to try to convince other people of what I went through or what I am going through, it is just an added stress. So I have finally figured out that it’s useless to even bother talking about it to anyone who doesn’t understand. THEY. WILL. NOT. GET. IT.

Scrolling through my useless FB feed, this news pulls this up.¬†Paralysis: Vet Intern Discovers Dog’s Condition Caused By Tick Before Euthanization. Sure, this makes national headlines and yes, it’s a feel good story and I’m glad the dog is ok, but¬†if a frigging tick can do this to a dog, do people not realize what it can do to humans? Can I just say a big hashtag of DUMB?

Sorry enough ranting. Hope ya’ll are doing good.

Humaworm Parasite Cleanse {Day 22~28}


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Ok let us get my Husband out of the way. He is still continuing to do the half dose of Humaworm (or so I think, I haven’t been monitoring him at all). His take on it is that he doesn’t really see a difference. I should also mention that I have another friend on it and so far, he is loving it and he feels better. I won’t be continuing the progress on either of them.

As for me, I have been to hell and back and if wasn’t by the grace of God, I would probably be in some ditch by now run over by a car that I drove myself.

I was doing pretty good, amazing in fact until last Thursday when we went to Shoeless Joes for dinner. Why do all my problems start at sports bars? WHY I ASK!? I ordered a pretty tame meal, pasta with chicken. And because I was starving, I ate it fast and then I felt like barfing.

By Friday, I was feeling weird and I knew something was coming. By Saturday, we had an outing and that morning, I was very fatigued and lethargic and barfy. By Sunday, I was bad again in the AM, but continued the Humaworm and was ok by evening.

By Monday, crap hit the fan and I was really sick. I was in tears at why. Was it Humaworm? Was it a relapse because now I am on Day 22 with no Lyme ABX? Then I started spotting. It was not normal. Was it ovulation issues? My stomach was cramping pretty bad.

By Tuesday, I was a mess and my husband “advised” me that I get off Humaworm and if I didn’t, he would cut off all my hair in my sleep. Now I knew he meant business because under normal circumstances, he generally leaves me alone to do whatever I want and is rarely involved at any decision making on my part. That’s why I love him.

So I took his advice and on Day 23, I put the kibosh on Humaworm and waited another day before I went back on my STUPID LYME MEDICATION.

In between this week, I’m pretty sure that all I had was a banana, an apple and a piece of toast. I was starving, but then anything past 4 bites I was full and nauseous. At one point, I actually had the urge to vomit but nothing came out. So, I started to panic and against my better judgement, I started to you know what.

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I was wondering if I had some type of the stomach flu that was brought on my nothing, food poisoning, gastroparesis, appendicitis, a pissed off tapeworm, a herx, or some form of demonic possession. My BFF ordered me to go on a one week google fast. Instead of going to google, I must go to the Bible.

Today, I went for acupuncture and told her of my issues. I was surprised when she said she couldn’t find my pulse. I am pretty sure that’s not a good sign. Firstly, all of the blood labs has issues drawing my blood. Then this woman now says she can’t find my pulse. This is why my husband keeps saying he married a vampire. (Happy Halloween by the way).

At the end of the acupuncture session she says she doesn’t think I have the flu. She doesn’t know what it is. But she sure knows that I have major digestive issues.

Here is what I think went down:¬†I was off meds for 3 weeks, started downing 2500 mg capsules full of potent herbs for 22 days. Maybe it caught up with me and I had a relapse. Whatever it was, this “relapse” felt almost the same as Day 1 of Lyme. Almost.¬†I think the acupuncture session got my appetite back because I ate some spaghetti tonight without any issues…. so far.

Humaworm Summary

Do not be swayed by my posts. I strongly believe that Humaworm works. If you do your research and want to try it, by all means go ahead. It’s only $39 or so. As for me, I noticed that my pathways felt clearer, however when I had symptoms, it was hard to tell whether they were Lyme symptoms or Humaworm symptoms. Maybe I didn’t drink enough water. I don’t know. Whatever it was, I couldn’t go another day feeling like I did after the 3rd week. I am glad I made it that far and overall, I did pretty ok with it, I just wasn’t sure what happened that made it go sideways.

Either way, I still highly suggest this product. And if you take it, good luck and I would love for you to comment on your progress here. Who knows, I may take it again next year. I still have a full 30 day dose in my freezer.

After you read this post, you will drive yourself to the nut house.


Sept 11 was my 4th LLMD appointment. I see her every 6 months. She is a 5.5 hour drive from me. We left at 8:30 pm because my husband had to work. At about 2:00 am when we crossed the border into the USA, this happened.

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No, that is not the eye of Terminator, that is a cop. He said we were doing a 65 in a 35 zone. I am not sure what this means because I speak in kilometres. Moreover, it was 2 am, pitch black, country road, no signs anywhere. We played the foreigners game and he let us go.

We arrive at the hotel at 2:30 am. 6 year old loves staying at hotels and woke us up at 6:30 am because he was all excited. YAY.

I twiddled my thumbs until 10:15 am because my appointment was at 10:30 am. I later found out that my appointment was actually 10:00. I wasn’t aware the new policy that you have a PRE-appointment with a nurse. YAY.

It’s a 2 minute drive from the hotel to my doctors office, so that was the only thing easy about this day. I can sum up the appointment into 2 sentences.

I basically told her that I need something that will kick me in the pants for the last and final time and drive these mother !@#$%$^^ out of my body so that I can live in peace and lead a normal life. She is having me stay on the same treatment (Alinia, Artemesinin, Bab2)  but will adding 2 other antibiotics into the mix. Namely Malarone (never taken it) and Zithromax (which I was on last year).

Here is where it gets fun.

First of all, I will have to go and get Alinia AGAIN. I simply have no words. Here are my Alinia adventures here, here, here, and here.

Now my Malarone adventure beings here.

I leave her office with the 3 prescriptions in hand. Alinia, Zithromax, and Malarone. The receptionist gave me some discount cards which can be used at pharmacies.

Mission: Acquire the 140 pills of Malarone.

DRIVE TO TARGET
They don’t have Alinia, they don’t have Zithromax, but they do have Malarone (only 49 pills).

DRIVE BACK TO HOTEL TO PICK UP HUSBAND AND CHILD AND CHECK OUT

DRIVE TO WALGREENS
They have Alinia, they have Zithromax, they have Malarone. YAY
Pharmacist: Maam, your total for all these will be $5,490
Me: UM, Hang on, let me clean the wax out of my ears. COME AGAIN????
It turns out the Alinia was $4000.
Me: NO THANK YOU SIR! I will go back to my computer and buy it online and go through customs and curse all day. BUT I will take the Malarone and Zithromax for the cheap price of $900.
Pharmacist:  Great! Let me check if we have them in stock
Me: UGHHH
Pharmacist: Oh, sorry we only have 72 pills of Malarone.
Me: Target has 49. Can you guys somehow make it so that I can get this?
Pharmacist:¬†Yes, here’s the RX number, go and call Target and give them this and we will transfer them the files. Come back in 25 minutes and pick up your meds.
Me: Great. Thanks

I call Target. No answer. I get back in the car with Husband and Child and say to hell with it, we are driving back to Target. But wait! Lets check out Kmart and Walmart first.

DRIVE TO KMART
Me: Hi how much Malarone do you have in stock?
Pharmacist: 8 pills and we don’t have the generic.
Me: Thank you. Bye

DRIVE TO WALMART
Me: Hi how much Malarone do you have in stock?
Rep: Honey you are in the wrong line, you have to go over there.
Me: OMG SOMEONE SHOOT ME PLEASE?
Pharmacist: we have 15 pills
Me: Thank you. Bye

DRIVE BACK TO TARGET
Me: Hi, I was just here and went to Walgreens. They have 72. Can I get the other 49 from you?
Pharmacist: No sorry we don’t that.
Me: Walgreens says you can. Here’s the RX number
Pharmacist: Oh ok, then. Come back by 1:30, because we close for lunch and won’t open until 2:00 PM.
I look at my watch. It’s 1:12.

AT THIS POINT, I AM READY TO COMMIT MURDER.
If my math is correct, my presciption for Malarone is 140. Target has 49, Walgreens has 72 which only equals 121. LIGHTBULB! Walmart has 15!

DRIVE BACK TO WALMART
ME: Hi again. (with a super fake smile). Can I please get the 15 Malarone pills you have? Here is the RX number. Thank you and goodbye.

DRIVE BACK TO WALGREENS
Made it! Picked up the 72 pills
Husband: OMG YOU FINALLY HAVE SOMETHING IN YOUR HAND!
Child: MOMMY! WE HAVE BEEN DRIVING IN CIRCLES FOR 2 HOURS, IM HUNGRY WAAAAAA!

DRIVE BACK TO TARGET AT 1:29 pm
Made it! Picked up the 49 pills

DRIVE BACK TO WALMART
Made it! Picked up the 15 pills

Still short 4 pills. Do you think I care? HELL NO!!!!!!!¬†And here’s the cost of this week’s episode of the Amazing Race.

WALGREENS
Zithromax: $612.43 (with discount)$ 497.37 = $3.55 / pill
Malarone: $444.69 (with discount) $238.57 = $3.31 / pill

WALMART
Malarone: $87.08 (NO discount) = $5.80 / pill

TARGET
Malarone: $359.27 (NO discount) = $7.33 / pill

Total Spent on Doc and Meds: 1618.59
Hotel: $80
Food: $50
Gas: $120
Sanity: Priceless

Now, can someone please send me a medal?

OMG, I’m now 18 months into treatment and feeling worse.


Sorry for the title. I vowed in my entire existence that these words would never come out of my mouth let alone my keyboard. I have become my own worst enemy. I am a hypocrite. I am sorry.

Truth is, the past few weeks have kind of put me through the ringer. Yes, I know this is something that you don’t want to hear, especially the newbies. But don’t fret, this soon shall pass.

Most of my symptoms came after eating at Boston Pizza. I have made a promise to myself I would never eat there again. Reason being the last 2 times I ate there, 1) I found a dead fly in my spaghetti 2) I had the worst heart burn and gallbladder pain for 3 days. Rivaled the same pain as I did BEFORE I removed my gallbladder. Go figure.

Then Aunt Flo came to say hi 3 days after and then all hell broke loose. I thought I would recover after she left but nope. It is lingering! Last night wasn’t too hot. So what is it for me? I feel sick. Like I ate something rotten. My head feels spinny like I got drugged and forced to drink a bottle of vodka. My appetite is kind of gone. I crashed a bit hard last night and this morning couldn’t get out of bed until 9:30 am. My poor 6 year old wouldn’t have made it to camp if my husband wasn’t home to drive him.

So anyhow, this is where I am at. I am toying with the idea of purchasing this: HUMAWORM. They have a pretty informational website. I have read very good reviews, complete with pictures of toilet adventures of people digging through poop for evidence. If you have tried this, please comment, would love to hear your results, but don’t necessarily want to see your poop.

I see my lovely doc in a month and can’t wait to see what she has for me next. I’m being sarcastic. I seriously thought that I would be done and over this crap by end of this year. I am not too sure given the festivities that happened the past couple of weeks.

It’s good to have friends out there who know what you are going through. Kevin, (we see the same doc), gently pushed me to send an email to her. Here it is.

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“Hope all is well! I have a some concerns. I am on the Alinia/Artemisinin treatment and on full doses of everything. I couldn’t handle the vegan diet, so am eating meat. I have been doing excellent the past several months and my highest peak was 95%. But in the past 3 weeks or so, I seem to have regressed I would say back down to 75-80%, now having my first lyme symptoms which is freaking me a bit out. The biggies are nausea, loss of appetite, dizziness and vertigo and some minor fatigue. But enough for me sometimes to crash hard. These have been re-occuring symptoms but again the past few weeks/days have gotten severe. What do you make of this? What should I do? I see you in Sept 11. Should I wait until then to assess?

Response:

“This may be herx. Make sure to do detox/homeopathic detox/herx treatment. If you need to lower the doses of the supplements. Let me know if it still is a problem.”

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My question is, how can your herx be WORSE 6 months into a treatment regimen? Isn’t it supposed to get better? Just sayin’.

Today I also did the usual monthly blood work. Blah. My levels have been pretty steady the past few months. Ok so that’s it. Nothing else. I am hoping my next post will not be talking about poop. But if I decide to purchase the Humaworm, it may very well be. Stay tuned.

It’s the most wonderful time of the year.


So, I ran out of my Alinia and had to go get a refill now across the Niagara border. YAWN. BORING. We decided to make it an adventure and stay the night. Little 6 year old buddy doesn’t recollect ever seeing the falls even though we brought him there 2 years ago. Kids and their memories huh? GEEZ. You would think they would remember seeing something significant like 6 million cubic feet of water falling ever minute.

The truth shall set you free.

We felt like we were in the twilight zone. We literally breezed through the border crossing into the US. No lineups.

Border Patrol Guy: What is the nature of your business.
Me: Picking up medication.
Border Patrol Guy: How long will you be in the United States.
Me: About 10 minutes.
Border Patrol Guy:  What is this medication for.
Me: Lyme Disease.
Border Patrol Guy: (Pauses) I don’t even know what that is. But here you go (hands us back passports)
Me: Great. Thanks. (Douchebag)

10 minutes later, we come back but are now stuck in 25 minute border traffic.

Border Patrol Gal: What is the nature of your business.
Me: Picking up medication.
Border Patrol Gal: How long have you be in the United States.
Me: About 10 minutes.
Border Patrol Gal:  What is this medication for.
Me: Lyme Disease.
Border Patrol Gal: Why aren’t you allowed to get it in Canada?
Me: I don’t know, ask the Government
Border Patrol Gal: How much was it?
Me: About $50
Border Patrol Gal: Can I see your paper work?
Me: Yes, here you go. (prescription from LLMD, invoice for $50 for the meds, delivery notice to the mailbox)
Border Patrol Gal: Thank you, you are free to go. Have a nice day.
Me: Thanks!

So lesson learned. Don’t lie, don’t act skittish, don’t stress, just tell the truth. Have your paper work. Then all is golden.

There will no photos of border crossing, or stupid alinia pill shots, or traffic. Just some amazing shots I took of our little one day vacation over by the Falls. Of the 33 years that I have been living in Toronto, this was the first time that we did “Journey Behind the Falls“, a self guided tour where you are literally right beside the falls. When I say literally, I mean like you go down an elevator, put on a plastic rain coat and get soaked from just standing.

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This is a picture of the hallway at the Sheraton. I walked this by myself at 12:00 am and literally freaked myself out.

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In other news, this appeared in our local paper. Kevin, our local celebrity from “Lyme Savers” was also mentioned. Way to go Kevin!

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Last on my list of news, I downloaded a totally useless iPad game called “PLAGUE” INC.” for 99 cents. It allows you to create a disease and infect people all over the world. The goal is to see how fast you can make it go global. I named the disease “EMYL”, which is LYME backwards. It’s such a dumb mindless game and I really could have spent that 99 cents elsewhere like perhaps throwing it in the gutter, but I really paid for it so I can take these nice screenshots for you. See what I do for you?

Now I’m not totally sure why my iPad looks yellow here, because it’s actually white. But this game is stupid and I have already deleted it.

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Update my myself

I am not sure what to make of myself. For about a month or so, I have been operating on a low steady herx of about a 1 on the scale. I am not sure if the A-Bart is doing its job, or if I have just plateaued. I feel like I need that extra push to get me through that golden gate of 100%. It feels like I am near though. I have been semi symptom free now for maybe several days, but little symptoms come and go. I see the doctor beginning of September so we shall see what the future holds.

Lyme Awareness Poster for you to Share


What I really should have been doing was work, but my brain was telling me to design this poster. I was thinking more like an infographic, however I wasn’t in the mood to draw stick figures of doctors poking and prodding while scratching their heads, so instead, I opted to use just words.

Hope you enjoy and please feel free to share with everybody and anybody who will listen.

icon_pdf If you want a high res PDF of this file to print and stick over all the trees in your neighbourhood, click here. The dimensions are 8.5 x 17.

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Thanks to Paula over at The Lyme Maze for helping me proof read this with her sharp eye capabilities.

Another 4 months of Low Fat Veganism? NOT.


Today was my phone consultation with my Lyme Doc. I had to request an earlier appointment, because had I waited until June and if there was a chance that she would have kept me on the same meds, it would have been cutting it real close because it takes about a month to re-order a new fulfillment.

So my appointment was at 4 pm. I made sure my 6 year old had his grilled cheese, my ipad and a good pep talk about not bothering mommy while she was on the phone because the bug doctor was going to help me. He complied. Half an hour of You-tubing Super Mario! Hellz ya mommy!

We are required to fill out our symptoms chart prior to any meetings. So, now my report looks like this. I must say, there is quite some significant improvement since last February.

symptoms

I had a feeling that I would be kept on the same meds. However I was given the option to start a Rifampin treatment to target Bartonella. I was concerned about going back on any ABX because I am really loving this more natural herbal treatment. She concurred that most patients feel like it is a more “wholesome” treatment.

So she decided to let me stay on this treatment. The vegan diet thing has kind of gone by the wayside, and she had no problems with that. Just that I try to stick to low fat. So instead of using the Rifampin, I will introducing a new herb called A-Bart (Byron White Formulas). This works just as well and are tincture drops. I was told to start off really slow because it’s quite powerful. 1 drop in 4 TBSP and slowly increase.

I am also still on Bab2 and a load of other supplements.  I had to re-order some more which usually prompts the huffing and puffing because it meant that a notepad, a pen, a calendar and math were involved.

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So basically the conversation went something like this:

  • I have a really good immune system. Right now being at about 95% means that the germ load is down and that my immune system is keeping it at bay.
  • Just because I feel good doesn’t mean it’s over. It’s a stealth infection. Any opportunity it can surface it will.
  • When finishing treatment, I can quit cold turkey or wean off and see how I feel.
  • If I don’t have severe die off or any reaction to the A-Bart, that means I likely don’t have bartonella, or it’s gone.
  • If my symptoms come during period that is fine, however if it comes steadily each month again and the intensity gets worse, then to start treatment again and a few months should kill the stragglers.

I still have my Sept in office appointment and we will re-evaluate where I go from there. So hopefully it will be even more smooth sailing for me during the summer.

Cost for the next 4 months: about $558.47 (not including daily supplements such as probiotics, B12, B6, multivitamins.)
Pills to be swallowed: about 1990
Tincture Bottles: about 8

That’s pretty much it.

No news is good news. Right?


After my last post, I slowly morphed from Gollum back to myself. I did however squeeze in a quick emergency acupuncture treatment to try to rid my nausea before my big trip. Which by the way was absolutely FANTASTIC.

Prior to the trip, I applied for trip insurance which was a complete spectacle. I was wanting to apply to some 1-800 number trip insurance company but no, my husband had to stick his nose in and get his company insurance broker to assist in our application to ensure that I was properly taken care of. Which meant that I had to fill out a medical questionnaire. Which meant that I had to explain the lyme, the UTI that I had last month and the gallbladder I had taken out 3 years ago. Which then meant that I was covered for basically everything EXCEPT lyme, a UTI and any gallbladder related injury while vacationing. STUPID!

So anyway, the vacation went something like this.

  • One night at the Sheraton
  • 3 Nights at Bay Lake Tower at the Disney Resort
  • 2 Days at Universal Studios
  • 4 Nights on the Disney Dream Cruise
  • Many days of eating bad things

I must also mention that on the first night of the cruise, I thought I was going to die because the ship was really rocky and my vertigo was going bonkers sending me into panic mode at the thought of being stuck on this ship for the next 4 days. Also, the ship was motoring to the first port so fast and the engines were vibrating and I couldn’t tell if it was the ship or my lyme symptoms. So the first night was really rough for me, but I soon mellowed out. But I must mention that I have been back on land now for almost 7 days and I still feel the ship moving!

As for medication, I did pack them all, tinctures, shot glasses and all, I made sure to brush my teeth only with Evian or Dasani bottled water which amuses my husband on every trip we go to. But I’m like, hey if you want to spend the next week on the toilet when we get home, by all means. I missed many doses of medication because I didn’t feel like running back to our stateroom not to mention it was a killjoy. Bah.

The trip also included 4 Hours at the walkin because my son got a bad allergic reaction in his eyes from the chlorine water. Yes that is 4 hours and there were only 4 people ahead of us. Crazy!

Ok, no more lyme or medical talk. The rest of this post will just be eye candy of pure bliss and gluttony. What happened to my low fat vegan diet? The pictures will speak for themselves.

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Bumblebee @ Universal Orlando

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Tall Scary Dude from The Mummy

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Me and my little buddy in front of a fake New York Public Library

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Aboard the Cruise

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Adults only section of the ship

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Sailing away party

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This ride rocks!

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Kids Club

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Lobby Area

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Movie Theater – we watched Wreck it Ralph and Oz the Great and Powerful

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One of their lounges

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Another shot of the lobby

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Sunrise on our balcony

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Mid Day

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Seriously, this water slide kicks a$$

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Docked in the Bahamas to do some shopping

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Shot of the ship

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A view of Atlantis Paradise Island Bahamas

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Sunset on our balcony

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Castaway Cay

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Exploring while bike riding at Castaway Cay

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Breakfast Buffet

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More Breakfast Buffet

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Lunch Buffet

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OMG Apple Crumble!!!

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Cheesecake

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You don’t wanna know

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BBQ Lunch

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No words can describe

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Banana Split!

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I took this picture JUST FOR YOU! (on our bike tour on an island)

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A stop at the Kennedy Space Center before our flight back home.

So now we are back and I’m going head first back on treatment and ready to kick some more butt!

The big variety show


Crawling out of the Bad Station

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I’ve been told that Lindsay Price is my doppelganger, so I found this image appropriate for this illustration, but I am seriously no way near what she looks like, I am probably more closer to gollum right now at this point.

We went to help some friends set up for an event on Friday night and I don’t know what happened, but something landed me in bed / couch for the next 48 hours. My 6 year old doesn’t like to say the word “hell”. He calls it the “Bad Station”.

“Mommy, do bad people go to the Bad Station when they die?”

So I guess that’s where I’ve been. At the Bad Station. I’m pulling out of it as I type this (I hope), but I’m pretty sure it’s a huge die off. I haven’t had one like this since here which was about 10 months ago. And on Saturday, I had to go to a party with a guest list of 150 people while trying not to puke or fall down from vertigo. There are many possible factors why this happened.

  1. It was the 7th day into my new pulse with the headliner artemisinin. I am on 200 mg (2 pills 2x a day).
  2. Bab 2 – I’m at about 20 drops 3x a day.
  3. I was doing this crest 14 day teeth whitening because we are going on a trip and not sure how harmful it is.

artSo this set of symptoms were very heightened. On Saturday night, I was literally ready to die at 3 am. I don’t like to be overly dramatic when it comes to herxes, but this was pretty bad. It was like the worst flue ever minus the fever. I felt like barf, I was hot and cold, I got chest palps, I had burning in my hands and legs, my head was drunk, I had a headache out the wazoo. A fleeting thought of going to the ER breezed through my head, but I knew that would have been a waste of time, and my mental state then was if it was my time to go, then it was my time to go, I was just so sick of fighting this.

Sunday had me pretty much on the couch googling Artemisinin and die off along with playing Mario Kart with the 6 year old.
“Mommy! it’s your turn, comon!”
“Wait! I’m trying to find out if Artemisinin makes u want to die!”

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Whatever the case is, I think I might need to lower the dose because we are on a plane next Wednesday. And god forbid that I experience anything on our trip. I will kill someone.

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Here’s the Bab2 by Beyond Balance that I am on that treats Babesia. Check out the the Suggested Use disclaimer. It should actually say “Discontinue if NO unusual symptoms occur”.

Adventures in plant eating

So this vegan, low fat diet is killing me. To my vegetarian friends, I love you all, thanks for sending me all the recipes and stuff, I need to still go through them, but man, this diet is HARD. I am currently being treated for Protomyxzoa Rheumatica (Formerly FL1953). My doc said if I can’t handle it, I can go on the South Beach Diet and eat only lean cuts of meat. The key is to minimize the intake of fat, which is what the organism feeds on. It’s all very complicated and I don’t know how to explain it and I don’t feel like explaining it.

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Wendy’s baked potato with Sour Cream and chives. Probs not on the low fat list.

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Yummy cantaloupe!

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Never heard of this until I saw it some blog and bought it. Tastes like turkey! You gotta wonder what they put in this stuff to make it taste like turkey?

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This dish was an epic fail. It tasted HORRIBLE. It was a curry tofu I tried to make.

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Tofu!

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Vegan Burger!

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Who doesn’t like asparagus?

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This is an apple cinnamon crock pot oatmeal that came out really good. Here’s the recipe.

Detox

Went to get my blood drawn for my monthly labs and this happened again. Everything on my labs were within normal range! Can you believe that! EXCEPT, my liver enzymes are up again. They are at around 54. Doc told me to go on a liver detox again. So I am doing this detox by Pekana. Put all the drops in 1 litre of water and drink throughout the day. It should flush liver and kidney.

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Good Old IgeneX

Last but not least, I got my husbands IgeneX results. 12 days in total wait. Not bad. I included my IgeneX and our son’s IgeneX. My husband has no symptoms. He shows an IND on 2 specific bands which are 34 and 39. However, 41 can be anything. I’m not going to spend too much time on this because he has no symptoms and remember, Lyme is all about symptoms. If you are new to Lyme and need to know how to interpret results, read my post here. If you want to know the difference between IGM and IGG, click here.

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We are off to Disney World Resort next week coupled with a 4 day cruise on Disney’s Fantasy Cruise Ship. Can’t wait! In the meantime, I found this excerpt and would like to share it with you. I don’t remember which LLMD who wrote this, but it was in the Lyme Book I bought. God has helped me so much this past year and I’m 100% certain that this has played a role in my continued healing.

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“Casting all your care upon him; for he careth for you.”

1 Peter 5:7

Wanna meet Dr. Murakami?


Hello Everyone! Kevin from lymechronicle.blogspot.ca has been a busy bee lately. He has started a project called Lyme Savers. Their mission is to alleviate some of the financial burdens associated with chronic Lyme Disease – allowing patients to get the help they both require and deserve to return to good health. They are having a Lyme Walk in Whitby on May 11, 2013.

Also, he has arranged for Dr. Murakami to come and speak! Dr. Murakami will be here on May 10, 2013. I was fortunate to be able to speak with Dr. Murakami last year over the phone. He graciously advised me on which tests to get and listened to me ramble on and on about symptoms. Dr. Murikami has helped thousands of Lyme patients recover. Here is more info on his website: murakamicentreforlyme.org. Please help spread the word and we hope to see you there! I will be! Would love to see any comments below if you can make it! Details below.

 

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