lymed out

my quest to getting these suckas out!

Archive for the category “naturopath”

Human Guinea Pig ~ Take # 354


If you are squeamish and don’t like to talk about stuff in your intestines, I invite you to hit the X on the top of your browser.

I’ll start off the post with this text between my BFF and I.

photo

So, BFF, here are my thoughts.

I was recommended by a good friend of mine to go get some Colonics (or Colonic Hydrotherapy, or Colon Irrigation). Basically the purpose of it is to clean out your colon. A regular enema only goes so far up, cleaning the lower part, the sigmoid and part of the descending colon. A colonic, will cleanse the entire length. If you are a newbie, you may be impacted and they recommend you do a series of 6 colonics at first. Like 2 the first week, then 1 the week after etc. For me personally, I think this is way too much and I would be scared to shock my system. Why would you be impacted? Because you basically have poo in your colon that may be stuck for YEARS, which can cause parasites, bacteria and other not so nice stuff to grow in there.

I was very apprehensive in trying this. It literally took me 2 years to brave it. But this was part of my game plan. So, 2 years later, I arrive at my destination.

Walking into the Naturopath Cilnic:
I was told that the Colonic woman is a sweetheart. She is very grandmotherly and will put you at ease immediately. And boy were they right! Picture a little 5 foot woman with a strong South American accent. She greeted me with the warmest handshake and took me into the Colonics room. She showed me their sterilization process and began to tell me the process of a colonic. She kept emphasizing that she will try to make me feel as comfortable as possible. At first when I entered the room, I was like OMG. Here’s a quick drawing from my iPad.

02

Keep in mind that the bathroom there is a Stall. It does NOT have walls. The entire time she was talking, I was thinking about how I am going to use the toilet while she is RIGHT THERE. It’s kind of like thinking how you are about to do a discreet #2 in an office washroom with co-workers in the next stall.

I put that thought out of my head and figured I would deal with it later. She told me to go and use the bathroom now if I needed to and to take everything off bottom-wise and wrap myself with a towel. So I did all that, and then went up onto the table. I was greeted by a large poster that has a drawing of a colon. She told me then that the goal of Colonics is to reach the very end of the colon.

She told me to lie on my right side facing the wall and to take a deep breath. There goes in the sterilized metal contraption! YAY! That wasn’t as bad as I thought. Nothing different about this than a papsmear (although different location).

I was told now to lie on my back. The she got some cream and started massaging my stomach. I am guessing to move things around. This was my view.

01

She began to open up the pipes. I am not exactly sure how it works, but she called it a TIE-OFF. So basically what happens is that she will let water flow into your colon and she will tell you to hold it as long as you can. When you can’t hold it anymore, you say Stop! and she will tie-off, where she will shut off the incoming water and then open another valve where the water will drain into Lawrd knows where.  Then the cramps will cease. In the midst of all this, there is a large mirror suspended from the ceiling where you get to see what comes out of the tube. This throws in some much needed entertainment. As things were coming out, she would tell me, “Oh! that is Ammonia!”, “Oh! that is Yeast/Candida!”, “Oh! that is Mucous!”, “Oh! that is Gas Bubbles!”. I felt pretty victorious as I kept seeing stuff coming out. Mind you, it took about the 5th tie off to see anything. I was beginning to think that my innards were very compacted. In between each tie-off, she would put a warm heating pad on my stomach and continue to massage my stomach. At one point, she had some vibrator contraption on my stomach.

I will tell you quite honestly, it wasn’t the metal contraption that was uncomfortable. It was the cramps that you must endure which each tie-off. It literally felt like you went and ate a bucket full of bad Mexican and then got stuck in traffic on the way home with nowhere to expel your stomach. This went on for about 30 minutes and I am guestimating about 10 tie-offs. In the meantime, she mentioned that water was also circulating in my colon. And also, she decided to do a blast of cold water in one of the tie-offs. Not so much fun with that one.

After the whole thing, she assisted me in getting up and asked if I felt faint. I said no, however the entire time, I was shaking. Like an adrenaline shake. Not a shivering shake. Not sure what’s up with that. She said that was normal. Then she said to go into the stall and make sure I put both feet on the stool while expelling the rest. I’m like “Ok! if you say so!”.

I get into the stall and felt no ways about expelling whatever was left. I was almost at the same point as when I gave birth. I didn’t care who was in the room, just get it out. NOW!

I made all sorts of noises I am sure, but listen, this little woman has probably seen it all. She doesn’t care. And neither should I.

After this, she told me to have a cup of herbal tea in their reception, and if I needed to use the rest room again, I can do so.

I had my peppermint tea, made some jokes with the receptionist and was on my way home only 10 minutes away thank goodness. As soon as I got home, I had a little soup because I was STARVING. Literally within 2 minutes, I had to dash to the bathroom again, and I am sure stuff was leaking out! My husband was sitting there laughing the whole time, and I kept screaming “Don’t worry! You’re next! I am making your appointment next week!!!“.

I had another 2 encounters or so with the bathroom and then I was fine.

So that is the story. Now, if the Colonic person been some hot dude, there was absolutely NO WAY that I would have done this.

Here are some tips if you want to have a Colonic:

  • Don’t eat 2 hours before
  • After your colonic, eat steamed or cook veggies, soups and avoid red meat
  • Minimize carbohydrates to avoid constipation
  • Drink 2L of water, herbal teas
  • Take 30 billion Probiotic (Ultra Flora by Metagenics – recommended)
  • After, take a fiber supplement

My Liver Sucks.


Hello Friends! I haven’t written in a while. There are a few reasons for my absence in posting.

1) I didn’t feel worthy to post (more below)
2) Life got in the way (this is a good thing right?)
3) I didn’t have any major milestone updates
4) I have been feeling oh so much better
5) I had a few crap days and I never like to blog on those days because the tone is never right. It will just be me complaining and who wants to hear complaining.

Within the past 3 weeks, I have talked to at least 3 people who’s immediate family had been hit with cancer. It is really heartbreaking to hear these stories because really, one never knows when and if it will happen. But that is a topic for another blog post altogether. All I know is that we should be grateful for our lives and what we have. While I’m listening to these emotional trials of life from my dear friends, in the same breath, I see others who are upset because they can’t figure out what to where at a Christmas party. I feel like screaming at them and saying “AT LEAST YOU GET TO GO TO A CHRISTMAS PARTY!”  What lyme has taught me is never take anything for granted. Be thankful for what you have and make every minute count. Be humble. Don’t sweat the small stuff. I ask for a special prayer request for a friend who’s sister is going through some very deep trials in health. I think that is another reason for my lack of posting. I didn’t feel anything I had to say would have been worth much because what I am going through is absolutely nothing in comparison. My prayers go out to her.

BLOOD LABS

labs

I got my December Blood Labs back. This time, my liver enzymes are at 60. My LLMD said that they need to lower or I will be taken off meds. I was reassured by many people including my ND, and my great friend over at The Lyme Maze that an ALT of 60 is nothing to write home about however it does indicate something going on. I was sent a detox plan from my LLMD:

DETOX

  • ALA (alpha lipoic acid) 300 mg at bedtime – I bought this
  • Milk Thistle – Use an 80% Silymarin extract. Useful in supporting liver functions. Take 175 mg three times daily. You can take with antibiotics. – am already taking this
  • NAC (N-Acetyl Cysteine) 500-600 mg. 1-2 twice a day with meals may take up to 2400mg a day.(Cysteine helps synthesize glutathione, one of the body’s most important natural detoxifiers.)
  • Vitamin C 1 gram three times a day. – am already taking this
  • Drink plenty of fluids.
  • Maintain 1-3 bowel movements a day. Increase fiber (vegetables fruit whole grain) and fluids.
  • Avoid all sugar, limit processed foods. Get adequate amount of protein as this will facilitate detoxification. Eat plenty of fruit and vegetables, but limit fried and fatty foods, like cheese. (Now I have been eating many grilled cheese sandwiches lately)
  • Continue antibiotics while on the supplements (unless I instruct you to stop them which would be for an AST over 60 or ALT over 75). Repeat blood tests AST, ALT, GGTP in 1-2 weeks.
  • If your liver enzymes are still elevated after taking the detox supplements, stop all antibiotics for a week and then have a repeat lab done for liver function tests including GGTP. If blood tests are normal continue the milk thistle for 4-6 more weeks. If blood tests are not normal, then remain off antibiotics and repeat the liver function tests in 7-10 more days adding hepatitis A. B, C, serum ferritin, transferrin saturation, serum iron, antigliadin antibodies , antiendomysial Abs and tissue transglutaminase, ANA, PT, serum albumin, fasting lipid profile, TSH, free T4 and T3 blood tests.
  • There is a homeopathic trio, called the Big Three by Pekana, sold by BioResource in the US. It cleanses liver, kidneys and lymph. It has been very helpful for patients who continue to have liver or kidney function elevation. (I ordered this)

NO NOT THE DUCK EGGS!!!

I went to get a food sensitivity test at my Naturopath. This test is different than the ones where they scratch your skin. Those ones test for immediate anaphylactic allergies (IgE) where it could be a life or death situation where you would get a reaction within minutes to hours of consuming food. The test that I got (which is about $250) tests for food intolerance. It’s a basic finger prick like a test for blood sugar levels. These are considered latent allergies (IgG). Normally, the body is able to elimate these antibody-antigen complexes, but with excess antigen, small complexes tend to deposit in blood vessel walls where they can cause tissue injury via the release of inflammatory mediators. [immunobiology 5th ed Janeway CA Jr et al. New York; Garland Science:2001]

Over time, this tissue injury may contribute to the development of a variety of health conditions such as IBS and migraine headaches. So with that said, I got my results back (took about 2 weeks). And look at what I am intolerant to:

allergy1

I have been eating eggs for breakfast like they were going out of style because I am not allowed to eat anything else. So great, now I need to eliminate the eggs for at least 6 months which basically leaves me with water for breakfast.

allergy2

allergy3

My 9 month phone consult with my LLMD

I talked with my doctor this morning. With each progressive consult, I do get a little bit ansy, but I feel like I’m really talking to an old friend. I told her my overall percentage is at about an 85% back to normal (except my 5 week flares). With each flare, the symptoms are more easily managed. The worse that a flare can do to me now is just really piss me off because I can’t go shopping or something. It won’t render me in bed or anything, I just feel blah, like mope around the house and feel sorry for myself. In the past month, I remember only once saying to my husband “This is a lyme day, don’t bother me.”

She said that if I am seeing improvement (which I am), I will be kept on the same Pulse A and B for another 3 months. I had absolutely no objection to this because I am doing pretty well on it. The only thing is that I goofed. Bad. For the past 6 months, I have only been taking 2 tinidazoles a day when it should have been 4! Anyway, no harm done, I will try to ramp up as tolerated.

So she said I can continue this same treatment and then if I want, I can get off it and start the next treatment which she calls the Alinia treatment for Babesia/Protozoan infection. Alinia isn’t sold in Canada (seriously, when does this ever get easy?) so I have to order it from the states and get them to ship it to a pharmacy in the US. Buffalo is about 2 hours from me, so that’s where I might need to go. Maybe I can throw in a weekend at Great Wolf Lodge while we are there.

When I start that treatment, I’ll let you know, right now there’s so much reading I have to do on that, and I have been procrastinating. I do know that it also involves a major diet change of low a fat Vegan diet (South Beach Diet or McDougall Diet). The reason for this is because the buggers like fat or something.

Anyway, my consults with her are bitter sweet. I love seeing what the next steps are and where to go from there, but after the chat, I have to do this.

kill

I hate pill counting. I can’t believe I still remember how to do long division. The only reason I did this was because I was too lazy to get my butt off the chair to get my calculator. In the beginning of treatment, I was all into the excel spreadsheets counting each pill and making sure that I had enough. If you have been following my blog, my earlier posts were very much like that. Now it’s like, Meh. So I had to call the pharmacy to ask how many pills I had left for refill. Oh ya, and just to add more crap to the mix, my insurance is cancelled on December 31. The reason is because they didn’t have enough members on the plan. I am not sure if I will find another private insurance. There isn’t much need for me to get one just for Chiro and ND Visits. And when I really think about it, the meds cost were the least of my issues.

So that’s it in a nutshell. I’m feeling very optimistic right now and I’m looking forward to the new year and what it has to bring. I will keep you posted on how the double dose of the tinidazole goes. If I don’t post in the next while, I wish you all a safe Merry Christmas and a Happy New Year!

My veins screwed up my happy hour.


I guess I can’t win them all.

Today was supposed to be my first weekly dose of Meyers Cocktail at my Naturopath. Meyers Cocktail basically is an IV drip of nutrients into your bloodstream to give you a boost. I was a bit apprehensive but I was all psyched up. 20 minutes into the session, nothing happened yet because my veins decided to play hide and seek once again. Remember this post?

Several attempts later and lots of gauze added to the mix, I didn’t need a Halloween costume for today, I could have walked out dressed like a mummy.

Mind you it was no fault but my veins. They are deep veins. That’s why it’s very difficult to draw blood out of me. My naturopath had a slight success finding a co-operating vein on my hand near my wrist, but it didn’t work out too well due to the placement of the needle. It started to burn and feel really achy, like someone smashed a door on my hand. She pulled out the needle quickly and we stopped the session. My anxiety was getting the better of me and I decided that maybe this wasn’t for me.

We chatted longer and then I said “Maybe we should try this again.” She said, “No, let’s leave it and revisit this later. The option is always open.” I just didn’t want to waste the already opened bag. She said, “No that’s the least of my worries.”

I got a little peeved that I couldn’t conquer this. The only other time I felt like this was with the flagyl. Oh well.

Note this was my experience only. It may very well work for you. If you have nice protruding veins.

Another reason for my visit was to do an allergy test. I asked what’s the difference between this allergy test vs the ones that you do at a doctor’s office with the skin test. Basically this is more a “sensitivity” or “intolerance test” whereas the skin test is for acute anaphylactic allergies.

I get the results in 2 weeks so I’ll keep you posted.

Happy Halloween.

Visit to my new Naturopath


First and foremost, thank you to all who took the time to email me about my last post here regarding my 5 year old’s IgeneX results. I had to let that sink in a little bit and was very stressed for about 3 days. My hubby is a very relaxed glass ALL full person and he didn’t think much of it. Perhaps because he hasn’t gone through the hell that I did, but he is the voice of reason and re-assurance. He read my LLMD’s interpretation and said to stop worrying because the answer is right there. Don’t treat based off labs. Don’t treat if asymptomatic.

I updated my last post as I also spoke with my Lyme Homeopath and Dr. Marty Ross regarding the same issue.

My Lyme Homeopath’s response (updated):

I emailed my Lyme Homeopath to get his interpretation of the results and he said this is suspicious of Lyme and to do a Lyme Challenge (if I wish to). The Lyme Challenge (which is what I did back in March 2012) is when you take herbs such as Cat’s Claw or Teasel Root for several days to see if it produces a herx. A 5 year old would most likely do 1/4 adult dose. I asked if this would “awaken the beast”. He said no. But I am not sure if I want to do this because I’m not trying to prove whether he has Lyme or not (like in my case). Infact I want to disprove it. If I were to treat him, I will not subject my 5 year old to harsh antibiotics. If anything, I will do as my LLMD advised on symptomatic kids and start him on the Cowden Condensed Protocol with specific dosages according to weight. However, I need to do more research on that and I need to monitor him on symptoms. In the meantime, my pantry will be cleared out of all skittles, gummi bears and chocolate chip cookies.

Another great point that he brought up was the mention of Dr. Dietrich Klinghardt where his theory is that 70% of people on earth are walking with Lyme antibodies and their immune systems can fight off the infection.

Homeopath’s Bottom line: Don’t treat if asymptomatic.

Dr. Marty Ross Response:

A western blot is a technique used to see if a person is making antibodies that attach to very specific proteins found on the Lyme germ covering. We identify the proteins by what they weigh. For instance, one of the proteins weighs 18 KDa (a KDa is a microscopic unit of weight.) On the western bot a + of ++ or +++ means that the tests detects antibodies against that protein. An ind could mean one of two things: there was a very weak antibody reaction so it is barely detected or during the test some dirt or another artifact showed up on the test strip. So an Ind could be a weak antibody reaction but is not always. A test is positive if there are antibodies against 2 of the following, 23-25, 31, 34, 39, 41 or 83-93. Ind do not count in determining a true positive. Having said this, I would interpret the results as very weakly positive given the number of ind findings at the 6 important proteins.

However, having a positive test or even a weakly positive test does not prove one has Lyme. We also have to consider is there a risk of getting it, the symptoms, any physical findings. So in the case of a person like your son who does not have any symptoms, I do not treat. It is possible that even if he has Lyme his immune system is dealing with it. I do not use antibiotics in this situation because they may not rid his body of the infection if it is present, it is also possible they could cause any Lyme to become dormant which is much harder to treat. Finally, even if he is on antibiotics, it is not clear how long to treat given that he does not have symptoms.

Yes, some of my patient had Lyme infection but not disease for many years and then they became symptomatic. Again though it is hard to tell who this will happen in.

Regarding the 18 +, the Europeans consider it to be one of the important proteins. I sometimes consider it, but prefer to look at the reaction to the six proteins I discussed earlier.

Dr. Ross’ Bottom line: Don’t treat if asymptomatic.

So there is God’s answer; via 2 highly reputable LLMD’s and a Homeopath who specializes in Lyme.


Back to the topic of this post, a few weeks ago I received an email from www.danceintherain.ca introducing a Naturopathic Doctor who was willing to take on 10 Lyme patients at a very discounted rate. This ND has many Lyme patients, however is not a specialist in Lyme and wanted to start learning and treating. She attended one of Dr. Murikami’s lectures while he was visiting here a few weeks ago and felt the need to reach out.

I quickly emailed her to see if I was a suitable candidate and I was. I drove 40 minutes today to Richmond Hill, Ontario and met with Dr. Angela Lee of Vital Checks. My appointment was 1.5 hours and we spoke about my entire medical history, current supplements and antibiotics I am on and took my blood pressure (I am low). I was quite surprised that many of her Lyme patients are also seeing the same LLMD as me (many doing fantastic).

I wanted to do an allergy test panel but will do at next appointment as she didn’t have available kits. Looking over my supplements and latest blood labs, I was recommended to take Iron because of low ferratin levels. That was about it as most of the supplements I am on covers almost all the important stuff. She will also be starting me on a weekly treatment of IV Vitamin Therapy (Myers’ Cocktail), tapering off to once a month as needed. Myers’ cocktail has been used to relieve respiratory symptoms of acute asthma attacks, upper respiratory tract infections, chronic sinusitis, and seasonal allergic rhinitis, pain associated with migraines, muscle spasms and fibromyalgia, as well as chronic fatigue syndrome and cardiovascular disease. {Wikipedia}. The IV infusion will last about an hour.

My question to you: Have any of you done the Myers’ Cocktail and if yes what was your experience with it? Good or bad? Did you herx? She advised me to eat something before or I may puke! Did I tell you I absolutely hate puking?

If any of you are in the area, she has a couple of spots left at this discounted rate (very very reasonable). Please contact Dr. Angela Lee directly at Vital Checks.


How I am doing

I have been doing very very well. I went to see my chiropractor today and he also noticed that I am getting back on track and holding my adjustments. I have been holding on to many many good days with minimal symptoms. I would say that I am about 85% back to my old self.

Some points

  • When I start the pulse every 10 days, an increase in symptoms flare, but at a very low level. Every round of pulses, my symptoms gets dramatically reduced.
  • My tremors, body buzzing have diminished to about a 1 out of 10. I rarely notice this now if at all. If it does come, I notice it only comes at around 6 in the morning. It doesn’t wake me up. It’s more like if I’m in between sleep and awake, I will notice it
  • The nausea, feeling of fullness still comes and goes. I notice I feel much better if I eat.
  • The drunk, stoned feeling has dimished
  • I usually get symptoms during ovulation and a day before cycle hits.

I can most definitely say that my days are no longer all about Lyme. I am enjoying life right now. Even if I could stay at this stage, it would be great. Lyme has given me the appreciation of life and everything God has to offer. My goal for the next while is to learn how to better support my immune system through diet and nutrition. I know I was supposed to do that Whole 30 Paleo challenge after thanksgiving however I still haven’t had the time to dream up 30 days of recipes. When I do, I will let you know.

Hope you are all doing well….

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