lymed out

my quest to getting these suckas out!

Archive for the category “nutrition”

Human Guinea Pig ~ Take # 354


If you are squeamish and don’t like to talk about stuff in your intestines, I invite you to hit the X on the top of your browser.

I’ll start off the post with this text between my BFF and I.

photo

So, BFF, here are my thoughts.

I was recommended by a good friend of mine to go get some Colonics (or Colonic Hydrotherapy, or Colon Irrigation). Basically the purpose of it is to clean out your colon. A regular enema only goes so far up, cleaning the lower part, the sigmoid and part of the descending colon. A colonic, will cleanse the entire length. If you are a newbie, you may be impacted and they recommend you do a series of 6 colonics at first. Like 2 the first week, then 1 the week after etc. For me personally, I think this is way too much and I would be scared to shock my system. Why would you be impacted? Because you basically have poo in your colon that may be stuck for YEARS, which can cause parasites, bacteria and other not so nice stuff to grow in there.

I was very apprehensive in trying this. It literally took me 2 years to brave it. But this was part of my game plan. So, 2 years later, I arrive at my destination.

Walking into the Naturopath Cilnic:
I was told that the Colonic woman is a sweetheart. She is very grandmotherly and will put you at ease immediately. And boy were they right! Picture a little 5 foot woman with a strong South American accent. She greeted me with the warmest handshake and took me into the Colonics room. She showed me their sterilization process and began to tell me the process of a colonic. She kept emphasizing that she will try to make me feel as comfortable as possible. At first when I entered the room, I was like OMG. Here’s a quick drawing from my iPad.

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Keep in mind that the bathroom there is a Stall. It does NOT have walls. The entire time she was talking, I was thinking about how I am going to use the toilet while she is RIGHT THERE. It’s kind of like thinking how you are about to do a discreet #2 in an office washroom with co-workers in the next stall.

I put that thought out of my head and figured I would deal with it later. She told me to go and use the bathroom now if I needed to and to take everything off bottom-wise and wrap myself with a towel. So I did all that, and then went up onto the table. I was greeted by a large poster that has a drawing of a colon. She told me then that the goal of Colonics is to reach the very end of the colon.

She told me to lie on my right side facing the wall and to take a deep breath. There goes in the sterilized metal contraption! YAY! That wasn’t as bad as I thought. Nothing different about this than a papsmear (although different location).

I was told now to lie on my back. The she got some cream and started massaging my stomach. I am guessing to move things around. This was my view.

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She began to open up the pipes. I am not exactly sure how it works, but she called it a TIE-OFF. So basically what happens is that she will let water flow into your colon and she will tell you to hold it as long as you can. When you can’t hold it anymore, you say Stop! and she will tie-off, where she will shut off the incoming water and then open another valve where the water will drain into Lawrd knows where.  Then the cramps will cease. In the midst of all this, there is a large mirror suspended from the ceiling where you get to see what comes out of the tube. This throws in some much needed entertainment. As things were coming out, she would tell me, “Oh! that is Ammonia!”, “Oh! that is Yeast/Candida!”, “Oh! that is Mucous!”, “Oh! that is Gas Bubbles!”. I felt pretty victorious as I kept seeing stuff coming out. Mind you, it took about the 5th tie off to see anything. I was beginning to think that my innards were very compacted. In between each tie-off, she would put a warm heating pad on my stomach and continue to massage my stomach. At one point, she had some vibrator contraption on my stomach.

I will tell you quite honestly, it wasn’t the metal contraption that was uncomfortable. It was the cramps that you must endure which each tie-off. It literally felt like you went and ate a bucket full of bad Mexican and then got stuck in traffic on the way home with nowhere to expel your stomach. This went on for about 30 minutes and I am guestimating about 10 tie-offs. In the meantime, she mentioned that water was also circulating in my colon. And also, she decided to do a blast of cold water in one of the tie-offs. Not so much fun with that one.

After the whole thing, she assisted me in getting up and asked if I felt faint. I said no, however the entire time, I was shaking. Like an adrenaline shake. Not a shivering shake. Not sure what’s up with that. She said that was normal. Then she said to go into the stall and make sure I put both feet on the stool while expelling the rest. I’m like “Ok! if you say so!”.

I get into the stall and felt no ways about expelling whatever was left. I was almost at the same point as when I gave birth. I didn’t care who was in the room, just get it out. NOW!

I made all sorts of noises I am sure, but listen, this little woman has probably seen it all. She doesn’t care. And neither should I.

After this, she told me to have a cup of herbal tea in their reception, and if I needed to use the rest room again, I can do so.

I had my peppermint tea, made some jokes with the receptionist and was on my way home only 10 minutes away thank goodness. As soon as I got home, I had a little soup because I was STARVING. Literally within 2 minutes, I had to dash to the bathroom again, and I am sure stuff was leaking out! My husband was sitting there laughing the whole time, and I kept screaming “Don’t worry! You’re next! I am making your appointment next week!!!“.

I had another 2 encounters or so with the bathroom and then I was fine.

So that is the story. Now, if the Colonic person been some hot dude, there was absolutely NO WAY that I would have done this.

Here are some tips if you want to have a Colonic:

  • Don’t eat 2 hours before
  • After your colonic, eat steamed or cook veggies, soups and avoid red meat
  • Minimize carbohydrates to avoid constipation
  • Drink 2L of water, herbal teas
  • Take 30 billion Probiotic (Ultra Flora by Metagenics – recommended)
  • After, take a fiber supplement

My Green Monster


I’ve seen this documentary advertised sometime last year on Netflix and have been meaning to watch it and finally, I sat down and searched Netflix and of course, big surprise, it isn’t available in Canada. The documentary is called Fat, Sick & Nearly Dead.

I was completely moved by it. Before I was researching on my Blendtec Blender, I was considering a juicer. What discouraged me from getting a juicer was because of the amount of produce and veggies that you need to have in order to make just one cup. And the work involved. Cuz I’m lazy.

Before watching this documentary, I considered it again and did some more research. Then I watched the documentary. After watching it, I got on my computer and looked for a juicer. I didn’t want to purchase one too hastily, so I let the thought marinade in my head for another week and then I saw a sale for the Breville 5 Speed Juicer on sale for $249 ($40 off) with free shipping. I purchased it immediately. Yes it’s a bit pricy, but it’s well worth it. And I love it. It’s a Centrifugal Juicer, not a Masticating Juicer. You can read the pros and cons of each here.

It’s not hard to use at all. I had no idea how to juice, or what to do, I  just watched the documentary, read the manual, found some recipes online, went to the grocery store and bob’s your uncle.

breville

Why I wanted to Juice.

  • Juicing (80% green veggies, 20% fruits). You absorb all the nutrients from these fruits and vegetables in one single cup. As you can see from the picture below, there’s no way I would eat all that in a day.
  • My neighbour has been raving about it for a year and she is a living testimony of how effective it is.
  • My other neighbour mentioned to me that she knew a woman with lung cancer, got treatment, started to juice and the cancer is not there anymore.
  • Watching the documentary solidified (for me) the importance of juicing.
  • I want to get really healthy. Not to lose the weight but for nutritional purposes.
  • We are what we eat!
  • http://articles.mercola.com/sites/articles/archive/2011/11/13/benefits-of-juicing.aspx

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What the juicer does.
Some may wonder if the Juicer is the same as a Blender. A juicer extracts the juice from fruits and vegetables. A blender liquifies and emulsifies ingredients. For more on the difference, read this great post here.

What I made.
This was my first juice. I used some celery, carrots, a couple apples, and thumb of ginger. I had no lemon. So it didn’t taste particularly great. So I made a mental note to purchase some lemons the next time to balance the ginger.

Many people advocate that you should buy organic because of the pesticides. However right now, we are in the middle of winter with -5 degree weather so I won’t be finding any local vegetables and produce here so I’ll have to make do.

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My Green Monster

{makes about 2.5 glasses}

  • Handful of Spinach
  • 3 Leaves of Kale
  • 3 Stalks of Celery
  • 3 Carrots
  • 2 Granny Smith Apples
  • 1 Red Gala Apple
  • Half a Cucumber
  • Half a Lemon (a must!)
  • Thumb of Ginger

Tastes Flipping Fantastic. The ginger really gives it a kick. I drink one cup immediately, give another half to 5 year old (with a tea spoon of honey and he loves it) and throw the rest into an air tight mason jar into the fridge. This needs to be consumed within the day because it will oxidize and lose nutrients. What to do with the rest of the fiber? I compost it. There isn’t a whole lot. Some use it to bake muffins or something, but I find that a little gross.

03

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Negativity

I searched for negative reviews on juicing. And of course, there are naysayers. One particular article here, I can rebut almost all points. These points appear in almost all negative aspects of juicing. You can read more on the points in that article. While they are legitimate arguments, common sense wins every time. Here are my opinions on their points.

Expense
Yes it’s expensive, but I would rather pay $249 rather than $10,000+ on medical care (as I have).

Disinfection and Cleanup
It’s no different than cleaning and disinfecting your bathroom. Or cleaning your baby’s diaper. How lazy can can one be on their own health.

Microbes
Buy from local farms and well known sources, and wash your vegetables and fruits well.

Loss of Fiber
Who cares. I would risk the loss of fiber to gain the nutrients from juicing and get the fiber somewhere else. Duh!

Lack of Convenience
Unfortunately, our world has become fast paced. We need to stop and smell the roses. I say this because I was there. It’s all in priorities. The 15 minutes it takes to juice is the same 15 minutes you spent looking at someone’s facebook page.


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My tips on juicing

  • Organization is key. Have all your vegetables prepared and ready to go.
  • Clean and wash whatever is in your sink and put it away. Have a clean countertop.
  • It is a bit of a clean up, but as the documentary says, No Pain, No Gain. Deal with the washing!
  • You need to wash the filter immediately or else the fiber will get hard and stuck and you will cry when you try to wash it.
  • Some vegetables I prep for the next day, like peeling carrots and cutting up celery. Then store it in a glass airtight container and store in fridge

After my first juicing experience, I noticed a boost in energy within half an hour. My mind was telling me to take a nap, but my body wasn’t letting me. Each time gets better and better. I now drink 2 glasses a day and will be incorporating this into my lifestyle.


Juicing for Lyme

Here are some great blogs on those who juiced because they had Lyme.


My Final Comments

I hope this blog post inspires you to start juicing! I’m only a week into it and it’s been really great. I can’t wait to see the results after a year!

My Liver Sucks.


Hello Friends! I haven’t written in a while. There are a few reasons for my absence in posting.

1) I didn’t feel worthy to post (more below)
2) Life got in the way (this is a good thing right?)
3) I didn’t have any major milestone updates
4) I have been feeling oh so much better
5) I had a few crap days and I never like to blog on those days because the tone is never right. It will just be me complaining and who wants to hear complaining.

Within the past 3 weeks, I have talked to at least 3 people who’s immediate family had been hit with cancer. It is really heartbreaking to hear these stories because really, one never knows when and if it will happen. But that is a topic for another blog post altogether. All I know is that we should be grateful for our lives and what we have. While I’m listening to these emotional trials of life from my dear friends, in the same breath, I see others who are upset because they can’t figure out what to where at a Christmas party. I feel like screaming at them and saying “AT LEAST YOU GET TO GO TO A CHRISTMAS PARTY!”  What lyme has taught me is never take anything for granted. Be thankful for what you have and make every minute count. Be humble. Don’t sweat the small stuff. I ask for a special prayer request for a friend who’s sister is going through some very deep trials in health. I think that is another reason for my lack of posting. I didn’t feel anything I had to say would have been worth much because what I am going through is absolutely nothing in comparison. My prayers go out to her.

BLOOD LABS

labs

I got my December Blood Labs back. This time, my liver enzymes are at 60. My LLMD said that they need to lower or I will be taken off meds. I was reassured by many people including my ND, and my great friend over at The Lyme Maze that an ALT of 60 is nothing to write home about however it does indicate something going on. I was sent a detox plan from my LLMD:

DETOX

  • ALA (alpha lipoic acid) 300 mg at bedtime – I bought this
  • Milk Thistle – Use an 80% Silymarin extract. Useful in supporting liver functions. Take 175 mg three times daily. You can take with antibiotics. – am already taking this
  • NAC (N-Acetyl Cysteine) 500-600 mg. 1-2 twice a day with meals may take up to 2400mg a day.(Cysteine helps synthesize glutathione, one of the body’s most important natural detoxifiers.)
  • Vitamin C 1 gram three times a day. – am already taking this
  • Drink plenty of fluids.
  • Maintain 1-3 bowel movements a day. Increase fiber (vegetables fruit whole grain) and fluids.
  • Avoid all sugar, limit processed foods. Get adequate amount of protein as this will facilitate detoxification. Eat plenty of fruit and vegetables, but limit fried and fatty foods, like cheese. (Now I have been eating many grilled cheese sandwiches lately)
  • Continue antibiotics while on the supplements (unless I instruct you to stop them which would be for an AST over 60 or ALT over 75). Repeat blood tests AST, ALT, GGTP in 1-2 weeks.
  • If your liver enzymes are still elevated after taking the detox supplements, stop all antibiotics for a week and then have a repeat lab done for liver function tests including GGTP. If blood tests are normal continue the milk thistle for 4-6 more weeks. If blood tests are not normal, then remain off antibiotics and repeat the liver function tests in 7-10 more days adding hepatitis A. B, C, serum ferritin, transferrin saturation, serum iron, antigliadin antibodies , antiendomysial Abs and tissue transglutaminase, ANA, PT, serum albumin, fasting lipid profile, TSH, free T4 and T3 blood tests.
  • There is a homeopathic trio, called the Big Three by Pekana, sold by BioResource in the US. It cleanses liver, kidneys and lymph. It has been very helpful for patients who continue to have liver or kidney function elevation. (I ordered this)

NO NOT THE DUCK EGGS!!!

I went to get a food sensitivity test at my Naturopath. This test is different than the ones where they scratch your skin. Those ones test for immediate anaphylactic allergies (IgE) where it could be a life or death situation where you would get a reaction within minutes to hours of consuming food. The test that I got (which is about $250) tests for food intolerance. It’s a basic finger prick like a test for blood sugar levels. These are considered latent allergies (IgG). Normally, the body is able to elimate these antibody-antigen complexes, but with excess antigen, small complexes tend to deposit in blood vessel walls where they can cause tissue injury via the release of inflammatory mediators. [immunobiology 5th ed Janeway CA Jr et al. New York; Garland Science:2001]

Over time, this tissue injury may contribute to the development of a variety of health conditions such as IBS and migraine headaches. So with that said, I got my results back (took about 2 weeks). And look at what I am intolerant to:

allergy1

I have been eating eggs for breakfast like they were going out of style because I am not allowed to eat anything else. So great, now I need to eliminate the eggs for at least 6 months which basically leaves me with water for breakfast.

allergy2

allergy3

My 9 month phone consult with my LLMD

I talked with my doctor this morning. With each progressive consult, I do get a little bit ansy, but I feel like I’m really talking to an old friend. I told her my overall percentage is at about an 85% back to normal (except my 5 week flares). With each flare, the symptoms are more easily managed. The worse that a flare can do to me now is just really piss me off because I can’t go shopping or something. It won’t render me in bed or anything, I just feel blah, like mope around the house and feel sorry for myself. In the past month, I remember only once saying to my husband “This is a lyme day, don’t bother me.”

She said that if I am seeing improvement (which I am), I will be kept on the same Pulse A and B for another 3 months. I had absolutely no objection to this because I am doing pretty well on it. The only thing is that I goofed. Bad. For the past 6 months, I have only been taking 2 tinidazoles a day when it should have been 4! Anyway, no harm done, I will try to ramp up as tolerated.

So she said I can continue this same treatment and then if I want, I can get off it and start the next treatment which she calls the Alinia treatment for Babesia/Protozoan infection. Alinia isn’t sold in Canada (seriously, when does this ever get easy?) so I have to order it from the states and get them to ship it to a pharmacy in the US. Buffalo is about 2 hours from me, so that’s where I might need to go. Maybe I can throw in a weekend at Great Wolf Lodge while we are there.

When I start that treatment, I’ll let you know, right now there’s so much reading I have to do on that, and I have been procrastinating. I do know that it also involves a major diet change of low a fat Vegan diet (South Beach Diet or McDougall Diet). The reason for this is because the buggers like fat or something.

Anyway, my consults with her are bitter sweet. I love seeing what the next steps are and where to go from there, but after the chat, I have to do this.

kill

I hate pill counting. I can’t believe I still remember how to do long division. The only reason I did this was because I was too lazy to get my butt off the chair to get my calculator. In the beginning of treatment, I was all into the excel spreadsheets counting each pill and making sure that I had enough. If you have been following my blog, my earlier posts were very much like that. Now it’s like, Meh. So I had to call the pharmacy to ask how many pills I had left for refill. Oh ya, and just to add more crap to the mix, my insurance is cancelled on December 31. The reason is because they didn’t have enough members on the plan. I am not sure if I will find another private insurance. There isn’t much need for me to get one just for Chiro and ND Visits. And when I really think about it, the meds cost were the least of my issues.

So that’s it in a nutshell. I’m feeling very optimistic right now and I’m looking forward to the new year and what it has to bring. I will keep you posted on how the double dose of the tinidazole goes. If I don’t post in the next while, I wish you all a safe Merry Christmas and a Happy New Year!

What the blazes have I been up to?


Howdy, how are you all doing? Just to rest assure some readers who have emailed to see what’s up with me since I have been a bit MIA on this blog lately, I have not died, I am still chugging along gracefully.

I haven’t written in a while (gasp only 2 weeks geez!) because I’m living up to my name. I’m lymedout. Completely utterly Lymed The [Hell] Out. Insert what profanity you will in between the [  ].

I didn’t want to think of lyme, I didn’t want to talk of lyme, I didn’t want anything to do with it. Not that I want to now either. Mind you, I never really talk about lyme anyway (at least not to family). Sometimes they all think everything is shining stars and pretty rainbows, when really I’m sitting there trying to ignore the room spinning or feeling like my lunch is about to come up. We are all good at hiding things.

So the Good news: I’ve gained 5 pounds.
The Bad news: I’ve gained 5 pounds.

I have been getting better. I would say now that I’m at 80% maybe?

I notice that with each passing pulse, especially at the beginning, symptoms will come back. Though at a lesser scale. As my LLMD puts it, every time you switch back and forth, you are killing some stragglers. SUCK IT YOU STRAGGLERS!

My latest tiny herx lasted about 5 days last week. It wasn’t a ‘put you in the bed herx’, more like a ‘still go about your daily duties while enduring annoying symptoms’ type of herx. Just gotta deal with it. Sometimes I think that I’ve lived with these annoyances for a while now, that I don’t even notice it.

Also, because my ferritin levels are low, I was advised to go on iron supplements. These were to be taken with some OJ because it absorbs better.  Because of the mammoth amount of pills I’m taking, I forgot all about the orange juice AND I took it on an empty stomach. BAD IDEA. HELLO NAUSEA THAT PUT ME OUT FOR THE REST OF THE DAY AND ALSO SCREWED UP HALF THE NEXT DAY.

So, I’ve done up a little chart so you can see what I’m saying. My goal is to be past 100%. In summary, it’s been progressing very well. There are hiccups along the way but what can you expect. You have to look on the bright side. Like if a zombie apocalypse surprised us tomorrow. Imagine dealing with that too. I often wondered what I would eat if that happened, what with my hypoglycemic issues and all. I found a food source guide that would help out incase walkers came out of the dark. Check it out here. (yes I’ve been watching too much Walking Dead)

Ok jokes aside, remember I said I was going to do the Paleo Diet here after the Canadian Thanksgiving?  Well as completely expected, I haven’t started it. I have been feeling pretty good and started back on a whole variety of wonderful foods such as grains, cheese, chips, leftover Halloween candy and other gut rot items.

So, if I start this, it would have to be the new year, after Christmas. And then when the new year comes, I will probably blog saying that I won’t start it till after Easter.

In the meantime, I found this other site www.emeals.com that looks pretty interesting that just added Paleo into their menu. You don’t have to think, they do all the meal planning for you.

My blood labs are back. Same crap, different piles, I don’t even bat an eyelash now.

Moving on to other fun unrelated news, I started shopping for some Christmas gifts and picked this up for my cousin. There’s not a conversation that goes by without the discussion of bathroom related stories. Funny enough, this usually happens when we are all eating dinner together.

Although this cousin of mine is still in the “eww” stages of discussing bathroom habits, I said “Just wait till you have kids, then you will be talking brown stuff all day”. I neglected to add that once lyme is involved, it reaches a whole new level of whack.

You can pick up this little neat calendar at Calendar Clubs, or Amazon. Each day has a little tidbit of surprisingly good information.

Visit to my new Naturopath


First and foremost, thank you to all who took the time to email me about my last post here regarding my 5 year old’s IgeneX results. I had to let that sink in a little bit and was very stressed for about 3 days. My hubby is a very relaxed glass ALL full person and he didn’t think much of it. Perhaps because he hasn’t gone through the hell that I did, but he is the voice of reason and re-assurance. He read my LLMD’s interpretation and said to stop worrying because the answer is right there. Don’t treat based off labs. Don’t treat if asymptomatic.

I updated my last post as I also spoke with my Lyme Homeopath and Dr. Marty Ross regarding the same issue.

My Lyme Homeopath’s response (updated):

I emailed my Lyme Homeopath to get his interpretation of the results and he said this is suspicious of Lyme and to do a Lyme Challenge (if I wish to). The Lyme Challenge (which is what I did back in March 2012) is when you take herbs such as Cat’s Claw or Teasel Root for several days to see if it produces a herx. A 5 year old would most likely do 1/4 adult dose. I asked if this would “awaken the beast”. He said no. But I am not sure if I want to do this because I’m not trying to prove whether he has Lyme or not (like in my case). Infact I want to disprove it. If I were to treat him, I will not subject my 5 year old to harsh antibiotics. If anything, I will do as my LLMD advised on symptomatic kids and start him on the Cowden Condensed Protocol with specific dosages according to weight. However, I need to do more research on that and I need to monitor him on symptoms. In the meantime, my pantry will be cleared out of all skittles, gummi bears and chocolate chip cookies.

Another great point that he brought up was the mention of Dr. Dietrich Klinghardt where his theory is that 70% of people on earth are walking with Lyme antibodies and their immune systems can fight off the infection.

Homeopath’s Bottom line: Don’t treat if asymptomatic.

Dr. Marty Ross Response:

A western blot is a technique used to see if a person is making antibodies that attach to very specific proteins found on the Lyme germ covering. We identify the proteins by what they weigh. For instance, one of the proteins weighs 18 KDa (a KDa is a microscopic unit of weight.) On the western bot a + of ++ or +++ means that the tests detects antibodies against that protein. An ind could mean one of two things: there was a very weak antibody reaction so it is barely detected or during the test some dirt or another artifact showed up on the test strip. So an Ind could be a weak antibody reaction but is not always. A test is positive if there are antibodies against 2 of the following, 23-25, 31, 34, 39, 41 or 83-93. Ind do not count in determining a true positive. Having said this, I would interpret the results as very weakly positive given the number of ind findings at the 6 important proteins.

However, having a positive test or even a weakly positive test does not prove one has Lyme. We also have to consider is there a risk of getting it, the symptoms, any physical findings. So in the case of a person like your son who does not have any symptoms, I do not treat. It is possible that even if he has Lyme his immune system is dealing with it. I do not use antibiotics in this situation because they may not rid his body of the infection if it is present, it is also possible they could cause any Lyme to become dormant which is much harder to treat. Finally, even if he is on antibiotics, it is not clear how long to treat given that he does not have symptoms.

Yes, some of my patient had Lyme infection but not disease for many years and then they became symptomatic. Again though it is hard to tell who this will happen in.

Regarding the 18 +, the Europeans consider it to be one of the important proteins. I sometimes consider it, but prefer to look at the reaction to the six proteins I discussed earlier.

Dr. Ross’ Bottom line: Don’t treat if asymptomatic.

So there is God’s answer; via 2 highly reputable LLMD’s and a Homeopath who specializes in Lyme.


Back to the topic of this post, a few weeks ago I received an email from www.danceintherain.ca introducing a Naturopathic Doctor who was willing to take on 10 Lyme patients at a very discounted rate. This ND has many Lyme patients, however is not a specialist in Lyme and wanted to start learning and treating. She attended one of Dr. Murikami’s lectures while he was visiting here a few weeks ago and felt the need to reach out.

I quickly emailed her to see if I was a suitable candidate and I was. I drove 40 minutes today to Richmond Hill, Ontario and met with Dr. Angela Lee of Vital Checks. My appointment was 1.5 hours and we spoke about my entire medical history, current supplements and antibiotics I am on and took my blood pressure (I am low). I was quite surprised that many of her Lyme patients are also seeing the same LLMD as me (many doing fantastic).

I wanted to do an allergy test panel but will do at next appointment as she didn’t have available kits. Looking over my supplements and latest blood labs, I was recommended to take Iron because of low ferratin levels. That was about it as most of the supplements I am on covers almost all the important stuff. She will also be starting me on a weekly treatment of IV Vitamin Therapy (Myers’ Cocktail), tapering off to once a month as needed. Myers’ cocktail has been used to relieve respiratory symptoms of acute asthma attacks, upper respiratory tract infections, chronic sinusitis, and seasonal allergic rhinitis, pain associated with migraines, muscle spasms and fibromyalgia, as well as chronic fatigue syndrome and cardiovascular disease. {Wikipedia}. The IV infusion will last about an hour.

My question to you: Have any of you done the Myers’ Cocktail and if yes what was your experience with it? Good or bad? Did you herx? She advised me to eat something before or I may puke! Did I tell you I absolutely hate puking?

If any of you are in the area, she has a couple of spots left at this discounted rate (very very reasonable). Please contact Dr. Angela Lee directly at Vital Checks.


How I am doing

I have been doing very very well. I went to see my chiropractor today and he also noticed that I am getting back on track and holding my adjustments. I have been holding on to many many good days with minimal symptoms. I would say that I am about 85% back to my old self.

Some points

  • When I start the pulse every 10 days, an increase in symptoms flare, but at a very low level. Every round of pulses, my symptoms gets dramatically reduced.
  • My tremors, body buzzing have diminished to about a 1 out of 10. I rarely notice this now if at all. If it does come, I notice it only comes at around 6 in the morning. It doesn’t wake me up. It’s more like if I’m in between sleep and awake, I will notice it
  • The nausea, feeling of fullness still comes and goes. I notice I feel much better if I eat.
  • The drunk, stoned feeling has dimished
  • I usually get symptoms during ovulation and a day before cycle hits.

I can most definitely say that my days are no longer all about Lyme. I am enjoying life right now. Even if I could stay at this stage, it would be great. Lyme has given me the appreciation of life and everything God has to offer. My goal for the next while is to learn how to better support my immune system through diet and nutrition. I know I was supposed to do that Whole 30 Paleo challenge after thanksgiving however I still haven’t had the time to dream up 30 days of recipes. When I do, I will let you know.

Hope you are all doing well….

LLMD Office Visit – September 2012


DISCLAIMER: PLEASE SEE YOUR OWN LLMD FOR YOUR OWN SPECIFIC TREATMENT. DO NOT GO ON ANY LYME PROTOCOL WITHOUT FIRST SEEING AN LLMD.

Don’t ask me how I am finding the time to write this post. Today included a whole lot of running around and much of 4 hours were dedicated to waiting rooms, blood tests, medication refills and the like. If I added up how much time I have wasted due to this nonsense, I would have been able sew a quilt the size of a football field.

Saturday morning started with us driving up to Montreal, forgetting our passports for the NY Border crossing, turning back, but we eventually made it. Tuesday I was scheduled to see LLMD. Husband and 5 year old dropped me off and headed to the mall. I was 15 minutes early. The clinic was awfully quiet. The nurse took my vitals. She mentioned to me that the wait list now is up until January 2013.

Height: 60 in
Weight: 100lb (YIKES!!!!!)
Blood Pressure: 122/88 mmHg
Temp: 98.4 F
Pulse: 78 bpm
Resp Rate: 13 rpm

As the LLMD was in with a new patient, it went on longer than usual and I waited another 25 minutes. But I was welcomed with the biggest open arms. I asked if I can record the conversation on my phone because I will most likely forget what anybody said. The conversation started with me describing the second worst herx of my life (which actually ended on the Sunday). So as we speak, I’ve been about 4 days symptom free.

We went over my symptoms:

  • Burning Fingers, nausea, vertigo, drunk, head pressure, night terrors, anxiety, not hungry until moving around, all symptoms of underlying Babesia.
  • Metal taste – can be due to the Clarithromycin. Also due to heavy metal exposure. I asked if I should get the (3) silver fillings removed in my teeth. I was advised this was a wise idea but to make sure it’s done with a biological dentist. Even if you have an oral dam, you will still need to have oxygen, a mask on, air expeller etc. Since you are getting better, you will minimize the risk of mercury exposure by going to the right dentist. They will also give you IV Vitamin C after the treatment. If you do it, do it right.
  • Math is the first thing to go with adults and children. Even an accountant who can balance something in minutes will now take 20 minutes.
  • Hormones can change because of Lyme
  • Beware of drinking from plastic bottles, lotions, petroleum as they have plastics in them. Use extra virgin coconut oil.
  • Colon hydrotherapy and coffee enemas. Highly recommended.
  • Beware with GMO. No canola oil. Stay on a healthy organic diet.

I also typed up a list of questions for our visit which are summarized below:

Q: On the 1st and 2nd round of Pulse A and B, I did really well. On the 3rd round of Pulse B, things started to get a little worse. More cotton head, vertigo that lasted 2 weeks. One night had the shakes really badly, cold clammy, hot and cold. Was this a herx or candida flare up?
A:
Symptoms get worse in the spring and fall. Was a possible herx. If it were candida, it would persist. With a herx, you will feel all these symptoms that are horrible, but they will get better. Hasn’t seen that with candida. If it were candida, they wouldn’t really get over the herx, newer symptoms would persist such as abdominal distension, trouble digesting food, coated tongue, sore throat, lots more joint pain, peri-anal itching. Yeast makes acetaldehyde, a chemical not good for the body and the liver will turn that into alcohol. As my symptoms went away, it probably wasn’t a yeast issue.

Q: Can I mix 50% alcohol teasel root, Kombucha with tinidazole.
A:
No. You shouldn’t mix. Even if you dine in a restaurant, make sure you are aware of what they are marinating the meats with. Even a wine marinade will cause a bad reaction. Remember this rule applies to Metronidizole (Flagyl). Kombucha is a fermented tea, however it may not make enough alchohol to warrant a reaction. But do a quick google search just in case.

Q:  How to bring up WBC levels. Should I be concerned with blood labs at all? Mine has been a steady 3.7.
A:
Be happy with a 3.7. Sometimes they will come up on their own after treatment. If they fall below a 3.0, patients are taken off meds immediately. If it goes below 3, patients are required to skip a day of medication per week. Choose the same day every week (Monday) to skip. Another way to bring up WBC levels is Cordyceps, a mushroom that can support the WBC. Low WBC means chronic infection. It can be toxins or mercury, which would bring me back to the silver fillings issue.

Q:  Wanting to testing 5 year old at appointment / recent Spider Bite in Sept 1 / No symptoms but diarrhea.
A:
Symptoms of children are hyperactivity, but hard to diagnose because boys are hyperactive to begin with. Other signs are “my tummy hurts, “I’m tired, carry me” (on a constant basis). Treating children with Cowden Condensed Protocol and they usually do well with it. Diarreah is not typically a sign of lyme, it just means his immune system is in overdrive.

Q:  Do any of your patients relapse? And if so, what is the treatment and is it quick to “bounce back”?
A:
Patients do relapse. They are treated with Doxycycline and Clarithromycin and a pulse of Metronidazole just to prevent a cyst form of Lyme from popping back up. Within 4 – 6 weeks, patients improve. It’s not going to be like starting over from square one.

Q: What if I get bitten again?
A: You have no immunity. None. Nada. Be careful where you choose to vacation. It is not all about Lyme. Sandfleas can spread infection. People are coming from all over the world, they are bringing their infections and there is a greater exposure. They are getting bit my mosquitoes and sandfleas. Sandfleas are notorious for giving the bartonella infection. Beware of Cuba and Dominican Republic. Do not allow yourself be bitten. Sandfleas look like tiny grains of sand jumping. Be inquisitive. Keep watch on the beaches. Do not sit on sand. If there are not enough chairs, sit by the pool. Or better yet, sit on concrete! When on a resort, some have private beaches where there are grass. Don’t sit on the grass. Get Samento which really helps.

Q: What is the CD57 test?
A: At first when it was published, CD57 was diagnostic of Lyme. And only people with Lyme had a low CD57. However in recent discussions, patients who have low CD57 have improved, others who have high CD57 were the sickest people ever received. It doesn’t look like a fool proof answer to anything. If you want to measure it before you off antibiotic you can. Gamma Dynacare offers it in Toronto. Or you get it through Igenex.

Q: When I can think about getting pregnant?
A: Would like to prescribe Cefuroxime and Zithromax a few months before hand. And take it during pregnancy.

The best sentence of the day said by LLMD.

Be weary about trusting tests. It is not about proving it on a piece of paper. It’s about how you feel.

Treatment Plan: September – December 2012
I will be on the exact same treatment plan as I have been for the last 3 months because I’m doing really well on it. We may change it up in December 2012 or March 2013.

TREATMENT PROTOCOL #3
October 2012 – December 2012


  • PULSE  A: for 10 days
    Clindamycin 150 mg (1 pills 4x a day)
    Quinine 200 mg (2 pills a day)
    Bab2 (by Beyond Balance):  23-50 drops (2x a day)
  • PULSE  B: for 10 days
    Plaquenil 200 mg (1 pill 2x a day)
    Tinidazole 500 mg (1 pill 2x a day) – Due to my intolerance of Flagyl, I’m taking this instead. Say hi to Flagyl’s sister.
    Clarithromycin 500mg (1 pill 2x a day)

Rotate these 2 pulses every 10 days for 3 months.


More Stuff

I got my little buddy the #188 and #189 Western Blot with Igenex. LLMD’s nurse drew the blood. He was a trooper and didn’t cry at all. I will get the results in 3 weeks. If he is negative, I won’t look at the $200 as a waste of money. I will have peace of mind and also that may be a good sign for me to gauge how long I’ve had it. If he’s positive, that’s another story and a whole other can of worms.

I was also concerned about the white thrush on my tongue. I was prescribed with Diflucan, or I can go on Grapefruit Seed Extract, Fiji Tea, adding fresh organic garlic to food (raw and crushed). Garlic also stimulates the immune system, improves circulation, kills intestinal parasites and lowers blood pressure. It is a powerful antioxidant. I can also use Caprylic Acid, a fatty acid supplement derived from coconut oil and is specifically effective for killing candida overgrowth in the intestines. (should not be taken by people who have ulcerative colitis). I can also optionally start on InterFase by Klaire Lab for the treatment of biofilm.

However as LLMD prescribed me with the Diflucan, my Canadian doc thought that this was too harsh on my system so prescribed me with Oral Nystatin (shown above) for 10 days. I am not sure what to do with this so I have to read up.

I also inquired about B12 injections and so I was prescribed with syringes and stuff that needs to be purchased through a compounding pharmacy. It is for 3 times a week. I hear that a normal person would do it once a month. Great. More questions from the pharmacy. I am not exactly sure what to do with it all, but my good friend over at Lyme Maze has sent me lots of info on where and how to properly inject this stuff into your buttocks. Getting the stuff is another story.


What I did today.

We are heading to Orlando Disney tomorrow! Even though I should have been packing, I was busy for most of the day as mentioned trying to get the above prescription re-written and filled. I didn’t go to Costco this time, I went to a pharmacy beside the clinic and the pharmacist asked out of curiosity why I’m taking all these meds. I said Lyme. She nodded her head. She knew it. She had another person have the exact same thing with the US Prescriptions. She said that Lyme is very rare. I said it’s often misdiagnosed as something else and we got into the whole politics of it. She was very interested.

And I also did my monthly blood labs. I did manage to get a requisition for the CD57 blood test even with everyone scratching their heads as to what this test was about, not only the doctor, but the nurse and the medical lab person who draws the blood. They all know about the CD4 which is the HIV test. They don’t offer the CD57 it at CML Health Care, so I will need to go to Gamma Dynacare.

This past weekend out of town, my husband and I also celebrated our 12 year anniversary. Well that’s officially on paper. I have known him since I was 12 years old, which means we have been in each others lives for about 26 years. As I was sitting down about to type this post, I see a little card stuck underneath my keyboard. I opened it and the last paragraph was this. 🙂

Ok, this was a very long winded post, I will end this for now. I survived our 11 hour drive total and about $1000 gouge into my pocket in total for this round trip of meds, tests, gas, consult fees, herbs, meals. UGH!

I will reconnect with you after we have oodles of fun with Cinderella and her step sisters! There will be lots of walking, and food challenges I’m sure. Hope I survive!

I’m such a flippin hypocrite.


I think this has been the longest time between posts. That is because I have been running around like a chicken without a head feeling all great and then it’s all fun and games until someone loses an eye. I don’t know what precipitated the reasoning for it because it came out of nowhere. One thing that does come to mind would probably be bad eating.

I have been screaming to the hills and to anyone who would listen that food is our medicine. I was ready to embrace the Paleo way of life. However, what have I been doing? I have been eating breads, strawberry jam, spaghetti with sauce, ketchup, hotdogs, many variety of late night snacking of chips, Doritos, cheetoes, cheesies, “gluten free” brownies, all and any yeast ridden and sugary foods. It was inevitable.

OR, it could have been the germ cycle, bad karma, another lyme curve ball, whatever. Point is, you never know when it hits and that’s the stupid thing. I’m just so literally done with this. Sooooooo absolutely done.

Monday – started my Pulse A treatment. The all too familiar signals started creeping in. Cotton head, fatigue, buzzing head, heart palps. I did my usual Monday morning infrared sauna, which I think may have brought on a herx. I usually notice it getting worse as soon as I get out of the shower.

Tuesday – I was up and down all day with the majority of the day being on the couch. Cotton head again, in and out nausea, hunger, not hunger, weird stomach feeling, like a baby was moving in there. Stomach cramps, but more like menstrual cramps. I notice that symptoms come around ovulation time and according to my app, today is the day (see app below).

Wednesday – Another round of infrared, nausea-ish came throughout the day, I had to whip out the smelling concoction my neighbour made for me, something I haven’t used since May. The feeling of fullness came again, one bite into food and I would feel like gagging. 2 minutes later, I would feel hungry. Like seriously, make up your flipping mind. 5 minutes later, I would be fixed to the chair and couldn’t move because any movement would make me nauseous.  Even the sound 5 year old talking would make me nauseous. Even the sound of a stair creaking would make me nauseous.

Thursday (today) – symptoms diminishing, I see a light at the end of this god forsaken tunnel. I did the body brushing. I manage to do some grocery shopping with my mom for 2 hours in the morning, came home, made some lunch, picked up 5 year old from the bus stop and ran out again to do errands. The majority of the day was in and out cottonhead feeling again. Nausea was probably a 3 out of 10. Just did another emergency infrared in my basement tonight.

As I’m typing this, I’m much better. I hate writing when I feel like crap. Mainly because a) I feel like crap b) I don’t like writing when I feel like crap. I don’t want my posts to be like “OMG, please kill me, I’m dying here, I hate this, why me, what did I do to deserve this blah blah“. Which would scare people, especially newly diagnosed people and really, who wants to read that?

I remember when I was a Lyme newbie, I was searching endlessly on youtube (against my better judgement and warning from Lyme Buddy) and guess what the majority of videos were; people in the midst of herxes. Something very overwhelming to the youngling, wondering if their life was going to be this vast emptiness of despair and pain.

So, moving forward, whatever kind of herx I was in the past 4 days, was still some kind of herx and it did end or is ending. Not nearly as bad as my last major herx, but definitely one for the books. I would consider this my second major one. Yes people. Herxes end. They are just symptoms. I have finally got my head around this one.

As I was on the couch, I started googling (against my better judgement again), but I’m glad I did because I found this blog. lymechronicle.blogspot.ca. I mention this blog because his story is unique and very very similar if not identical to mine. We both started off as being diagnosed with Acid Reflux related issues. And guess what, we are seeing the same LLMD. And guess what, I think he lives within 15 minutes of me. So I sent him an email introducing myself and discussing my weekly woes and he confirmed with me that DIET IS KEY! And guess what again? He went Paleo! NOT a coincidence that I ran into him.

This Saturday, we make our way up to Montreal which is about a 4 hour drive. Then I see LLMD next Tuesday which is another hour out. Funny enough, I haven’t been overly anxious like I would have been in the past. I am hoping that by Saturday, this nightmare herx will be over. At least for the most part. But if it’s not, I’m not too overly concerned.

This morning in the shower, I had this peace come over me. Like I wasn’t worried about the symptoms, and the major journey that I will be taking in the next 2 weeks which involves a 14 hour drive + 6 hour flight which will end with seeing Mickey. I had this overwhelming sense of calm (in the midst of all my herxing) that I just knew God would take care of me. It’s definitely a peace that passeth all understanding.

So… what did I buy at the grocery store? Lots of fruits, nuts, dried fruit for snacks in the car. I know grains aren’t Paleo, but I did need my Ezekial 4:9 bread (at least for next week). I did a search on how to eat Paleo at Disney and there aren’t a whole whack of options so they say. But when I get back, I intend on doing a major shift in my diet.

IPAD app for the ladies: PINK PAD
I got this app about a year ago. I have been tracking all woman’s stuff on there plus all my herxes. You can see my little green “sick” icon on the days I’ve been sick this month and now there are many “happy faces” creeping back into the calendar. There’s a section for notes, weight, ovulation tracker, + a running summary and charting feature, etc. Very handy! Get Pink Pad here!

Ok that’s the end of my post for now… have a good night!

The Whole30® Program and the Paleo Way of Life


Ok guys, this post has been about 2 months in the making. I’m really excited to share with you about a book I bought and finally finished reading called “It Starts with Food.” by Melissa and Dallas Hartwig. How did I find it? I ran into this testimonial.


Lyme Disease

“Too sensitive to meds to bring down sugar levels in the high 300′s, and quite damaged from previous meds and 23 years of untreated Lyme disease, things just weren’t budging for me… until the Whole30. By day 10, blood sugars had dropped 150 points. Muscles that were long gone no matter what I did suddenly appeared overnight. Sleep was glorious for the first time in years and daytime energy was strong and available. I lose 10 pounds, dropped into normal sizes for shirts, and a lot of adipose fat disappeared.  And the knees that I was told were too young to replace…well, they are working beautifully. Ringing in the ears stopped, mental clarity returning…and I am hoping to ski, kayak, and bike again in the near future.”  Andrea B., Whole9 web site

“I was diagnosed with Lyme disease in October of 2009.  My symptoms were stiff neck,  headache… I hurt everywhere, I was tired all the time, I could not sleep through the night because I was in so much pain!  My doctor told me it could  6 months or more to start feeling better….  I thought to myself, I do not have 6 months to wait?  I searched the CrossFit site and found myself at the Whole30 and thought, let me try it – what do I have to lose?  Well, I had a lot to lose – like everyone of my Lyme disease symptoms (and a few pounds as well)! I started feeling better after day 3, and I just kept feeling better –  to the point of where I feel healthier now than I did before I had Lyme… as long as I stay the Whole9 course!”  Anita H., Albany, NY

“The Whole30 program has given me my life back. I was so sick when I went to Dr. Readinger (a Whole9 Nutrition Partner) – I think if I had not found him (and you) that I would have died. I owe my life to Dr. Readinger, Melissa, and Dallas. I am proof that this works, not just because I am saying it, it is clearly visible in my case. The bloated stomach is gone, my ankles are no longer the size of my thighs, my skin glows, my eyes are clear and white, even my fingernails are growing out nice and smooth! My life has changed totally since I started the Whole30 in March. The Whole9 way of eating will be a way of life for me now. This feeling of well being is euphoric!!” -Dawn B., Viroqua, W


What is Paleo?

The Paleo diet is the healthiest way you can eat because it is the ONLY nutritional approach that works with your genetics to help you stay lean, strong and energetic! Research in biology, biochemistry, Ophthalmology, Dermatology and many other disciplines indicate it is our modern diet, full of refined foods, trans fats and sugar, that is at the root of degenerative diseases such as obesity, cancer, diabetes, heart disease, Parkinson’s, Alzheimer’s, depression and infertility. – Robb Wolf

Now I do alot of research before I start to spread the word about a certain product/service. I am not endorsed or paid in anyway to do this post. I happened to stumble across their website one evening while trying to find healthy recipes. I started reading all their resources and was moved to buy their book from Amazon. 3 weeks later, I got it in the mail and read from cover to cover. This isn’t a recipe book (Although there are several recipes). If I can sum up the book in one sentence, it would be this: Everything that you have been taught growing up with regards to food has been all wrong. If you think whole homo milk is good for you and your baby, think again. I didn’t know that by eating potatoes, you might as well be eating sugar. They cover every food and discuss why and why not they are good for your body. They go in detail (and I mean down to the description of molecules) on how certain foods promote systemic inflammation. They discuss hormone imbalance, blood sugar levels, insulin resistance, in a clear and concise manner that makes you understand. They read your minds. Whatever you are thinking while reading the book, it will be addressed. Every possible avenue.

So, what is The Whole30® Program?

The Whole30 was designed by Melissa and Dallas Hartwig. It’s a challenge for you to go 30 days on a specific diet with the goal to reduce systemic inflammation brought on by 20, 30, 40 years of bad eating. If you fail, you start over from Day 1. If you visit their site , you will see thousands of people have done the Whole30 program with nothing but success. I tried to find a negative review on the Whole30 and I couldn’t. Believe me, I tried. I’m a skeptic for almost everything.

  • Melissa and Dallas Hartwig’s website
  • Whole30 Program Defined
    gives you a shopping grocery guide on what to do while on the Whole30, with Whole30 approved recipes.
  • Resources
    explains why they stand behind their research and links to many reasons why one should avoid certain foods. Answers questions as what’s the difference between grassfed and grassfinished. A great source of information.

What you CAN’T have.
Sugar of any kind, artificial or not. Legumes, dairy, grains, Alcohol, white potatoes, MSG, ingredients you can’t pronounce. You cannot go on the scale at all during the Whole30 because you want to focus on your total well being and not just weight loss. Read more here.

What you CAN have.
Real food – meat, seafood, eggs, tons of vegetables, some fruit, and plenty of good fats from fruits, oils, nuts and seeds. Eat foods with very few ingredients, all pronounceable ingredients, or better yet, no ingredients listed at all because they’re totally natural and unprocessed. Read more here.

How do I fit into all this?
As for me, I’ve been semi on this diet anyways, but lately I have been eating terrible. Just terrible. I was in agony about giving up the nightshades. Now I don’t even blink an eye when I’m faced with the Potato situation. I can avoid it. Now the hardest thing for me to give up is Rice. Because that’s what I grew up on. And Bread. We have all be trained to eat grains and grains and more grains for breakfast. The Paleo way is that you can eat your dinner for breakfast, if you want. There is no Breakfast, Lunch and Dinner. It’s Meal 1, 2, and 3. It’s re-wiring your brain to look at food in a totally different way.

After 30 days, you can re-introduce food back into your diet. But will you really want to? (bad foods). They don’t like the word “cheat” in their vocab. They prefer “treat”. And by giving yourself a treat, it means enjoying every bite, and consciously thinking about it. Not aimlessly eating a pack of chips while watching TV. Everything that goes into your body is NUTRITIOUS.

So, with that said, guess what. I am going to do the Whole30. And I intend to blog on it each day. I didn’t need to convince my neighbour to do it with me. She is a health nut. She is all for it. I have talked Husband’s ear to death about this and he said he is on board, BUT his biggest challenge will be getting past the bread, the rice, the cheese. I even bought him the Innovite Yeast Buster’s Kit for Candida which he is going to start this weekend. We are doing a major cleanup here.

Now here’s the bad part. Whole9 will make you start tomorrow. And if they got their wish, yesterday. We have a busy month ahead of us with me traveling to New York to see LLMD, driving back to Toronto, then Buffalo, then hopping on a plane to Disney in Orlando for 7 days. There’s no way I can do the Whole30 while traveling because I’m not experienced enough in choosing what I can and cannot eat on this new way of eating. I need to do up a meal plan for the month. So that’s what I’m going to do between now and then. Research more Whole30 approved recipes. My goal is to start the Whole30 after thanksgiving.

This is not them or me smelling snake oil. Why do I say this? Because their program is FREE. They even give you a shopping list. They have a daily email subscription to motivate you. Everything is handed to you on a silver platter. They have many affiliates and they don’t get paid to promote them. All they want for everyone is to be HEALTHY and eat foods that don’t promote systemic inflammation.

I’ve shared with you before an app that I bought on my iPad from Nom Nom Paleo. I also follow her blog. Her photos are amazing and really inspire you cook clean. I’ve tried several recipes from her stash. There are other good resources for going Paleo which I found were most helpful.

In summary, nobody can make you do anything you don’t want to do. But the question is, do you want to be healthy? I normally find that I preach and preach and sometimes this is not good and it turns people off (especially Husband). I realize that I must lead by example. Until the person realizes on their own and wants to do something about  their situation, there really is nothing you can do. So here you go, I have provided you the information and it’s up to you what you want to do with it.

SO, WITH THAT SAID, WHO’S UP FOR THE CHALLENGE WITH ME!??

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