lymed out

my quest to getting these suckas out!

Archive for the tag “lyme disease”

Just as expected.


That fax worked yesterday. Someone called back, however stupid me I had my phone accidentally on silent. I have the voice to text feature on my cell phone and this is what I get.

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Nice huh? Just to be safe, I checked my voice mail anyway to make sure I didn’t have lung disease. I hate checking voicemail, it takes sooooo long to call in, enter your password, press 1, blah blah. That is why I have the voice to text feature! Which of course as you can see above is a fail.

And just to be double safe, I called her extension and confirmed verbally that the negative results were a “good thing”. “Yes!” she exclaimed, “You don’t have Lyme disease!”

Yay! Knowing that the Canadian Health Care System and successful Lyme testing is an oxymoron, this negative result has made me happy. I am not in any position now to try to disprove it and complain. My last and final test will be to retest with Igenex. But that will cost $200 and as much as I want to do that right now, that $200 can be better spent elsewhere.

Again, follow me on my new blog yada yada yada.

Humaworm Parasite Cleanse {Day 22~28}


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Ok let us get my Husband out of the way. He is still continuing to do the half dose of Humaworm (or so I think, I haven’t been monitoring him at all). His take on it is that he doesn’t really see a difference. I should also mention that I have another friend on it and so far, he is loving it and he feels better. I won’t be continuing the progress on either of them.

As for me, I have been to hell and back and if wasn’t by the grace of God, I would probably be in some ditch by now run over by a car that I drove myself.

I was doing pretty good, amazing in fact until last Thursday when we went to Shoeless Joes for dinner. Why do all my problems start at sports bars? WHY I ASK!? I ordered a pretty tame meal, pasta with chicken. And because I was starving, I ate it fast and then I felt like barfing.

By Friday, I was feeling weird and I knew something was coming. By Saturday, we had an outing and that morning, I was very fatigued and lethargic and barfy. By Sunday, I was bad again in the AM, but continued the Humaworm and was ok by evening.

By Monday, crap hit the fan and I was really sick. I was in tears at why. Was it Humaworm? Was it a relapse because now I am on Day 22 with no Lyme ABX? Then I started spotting. It was not normal. Was it ovulation issues? My stomach was cramping pretty bad.

By Tuesday, I was a mess and my husband “advised” me that I get off Humaworm and if I didn’t, he would cut off all my hair in my sleep. Now I knew he meant business because under normal circumstances, he generally leaves me alone to do whatever I want and is rarely involved at any decision making on my part. That’s why I love him.

So I took his advice and on Day 23, I put the kibosh on Humaworm and waited another day before I went back on my STUPID LYME MEDICATION.

In between this week, I’m pretty sure that all I had was a banana, an apple and a piece of toast. I was starving, but then anything past 4 bites I was full and nauseous. At one point, I actually had the urge to vomit but nothing came out. So, I started to panic and against my better judgement, I started to you know what.

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I was wondering if I had some type of the stomach flu that was brought on my nothing, food poisoning, gastroparesis, appendicitis, a pissed off tapeworm, a herx, or some form of demonic possession. My BFF ordered me to go on a one week google fast. Instead of going to google, I must go to the Bible.

Today, I went for acupuncture and told her of my issues. I was surprised when she said she couldn’t find my pulse. I am pretty sure that’s not a good sign. Firstly, all of the blood labs has issues drawing my blood. Then this woman now says she can’t find my pulse. This is why my husband keeps saying he married a vampire. (Happy Halloween by the way).

At the end of the acupuncture session she says she doesn’t think I have the flu. She doesn’t know what it is. But she sure knows that I have major digestive issues.

Here is what I think went down: I was off meds for 3 weeks, started downing 2500 mg capsules full of potent herbs for 22 days. Maybe it caught up with me and I had a relapse. Whatever it was, this “relapse” felt almost the same as Day 1 of Lyme. Almost. I think the acupuncture session got my appetite back because I ate some spaghetti tonight without any issues…. so far.

Humaworm Summary

Do not be swayed by my posts. I strongly believe that Humaworm works. If you do your research and want to try it, by all means go ahead. It’s only $39 or so. As for me, I noticed that my pathways felt clearer, however when I had symptoms, it was hard to tell whether they were Lyme symptoms or Humaworm symptoms. Maybe I didn’t drink enough water. I don’t know. Whatever it was, I couldn’t go another day feeling like I did after the 3rd week. I am glad I made it that far and overall, I did pretty ok with it, I just wasn’t sure what happened that made it go sideways.

Either way, I still highly suggest this product. And if you take it, good luck and I would love for you to comment on your progress here. Who knows, I may take it again next year. I still have a full 30 day dose in my freezer.

After you read this post, you will drive yourself to the nut house.


Sept 11 was my 4th LLMD appointment. I see her every 6 months. She is a 5.5 hour drive from me. We left at 8:30 pm because my husband had to work. At about 2:00 am when we crossed the border into the USA, this happened.

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No, that is not the eye of Terminator, that is a cop. He said we were doing a 65 in a 35 zone. I am not sure what this means because I speak in kilometres. Moreover, it was 2 am, pitch black, country road, no signs anywhere. We played the foreigners game and he let us go.

We arrive at the hotel at 2:30 am. 6 year old loves staying at hotels and woke us up at 6:30 am because he was all excited. YAY.

I twiddled my thumbs until 10:15 am because my appointment was at 10:30 am. I later found out that my appointment was actually 10:00. I wasn’t aware the new policy that you have a PRE-appointment with a nurse. YAY.

It’s a 2 minute drive from the hotel to my doctors office, so that was the only thing easy about this day. I can sum up the appointment into 2 sentences.

I basically told her that I need something that will kick me in the pants for the last and final time and drive these mother !@#$%$^^ out of my body so that I can live in peace and lead a normal life. She is having me stay on the same treatment (Alinia, Artemesinin, Bab2)  but will adding 2 other antibiotics into the mix. Namely Malarone (never taken it) and Zithromax (which I was on last year).

Here is where it gets fun.

First of all, I will have to go and get Alinia AGAIN. I simply have no words. Here are my Alinia adventures here, here, here, and here.

Now my Malarone adventure beings here.

I leave her office with the 3 prescriptions in hand. Alinia, Zithromax, and Malarone. The receptionist gave me some discount cards which can be used at pharmacies.

Mission: Acquire the 140 pills of Malarone.

DRIVE TO TARGET
They don’t have Alinia, they don’t have Zithromax, but they do have Malarone (only 49 pills).

DRIVE BACK TO HOTEL TO PICK UP HUSBAND AND CHILD AND CHECK OUT

DRIVE TO WALGREENS
They have Alinia, they have Zithromax, they have Malarone. YAY
Pharmacist: Maam, your total for all these will be $5,490
Me: UM, Hang on, let me clean the wax out of my ears. COME AGAIN????
It turns out the Alinia was $4000.
Me: NO THANK YOU SIR! I will go back to my computer and buy it online and go through customs and curse all day. BUT I will take the Malarone and Zithromax for the cheap price of $900.
Pharmacist:  Great! Let me check if we have them in stock
Me: UGHHH
Pharmacist: Oh, sorry we only have 72 pills of Malarone.
Me: Target has 49. Can you guys somehow make it so that I can get this?
Pharmacist: Yes, here’s the RX number, go and call Target and give them this and we will transfer them the files. Come back in 25 minutes and pick up your meds.
Me: Great. Thanks

I call Target. No answer. I get back in the car with Husband and Child and say to hell with it, we are driving back to Target. But wait! Lets check out Kmart and Walmart first.

DRIVE TO KMART
Me: Hi how much Malarone do you have in stock?
Pharmacist: 8 pills and we don’t have the generic.
Me: Thank you. Bye

DRIVE TO WALMART
Me: Hi how much Malarone do you have in stock?
Rep: Honey you are in the wrong line, you have to go over there.
Me: OMG SOMEONE SHOOT ME PLEASE?
Pharmacist: we have 15 pills
Me: Thank you. Bye

DRIVE BACK TO TARGET
Me: Hi, I was just here and went to Walgreens. They have 72. Can I get the other 49 from you?
Pharmacist: No sorry we don’t that.
Me: Walgreens says you can. Here’s the RX number
Pharmacist: Oh ok, then. Come back by 1:30, because we close for lunch and won’t open until 2:00 PM.
I look at my watch. It’s 1:12.

AT THIS POINT, I AM READY TO COMMIT MURDER.
If my math is correct, my presciption for Malarone is 140. Target has 49, Walgreens has 72 which only equals 121. LIGHTBULB! Walmart has 15!

DRIVE BACK TO WALMART
ME: Hi again. (with a super fake smile). Can I please get the 15 Malarone pills you have? Here is the RX number. Thank you and goodbye.

DRIVE BACK TO WALGREENS
Made it! Picked up the 72 pills
Husband: OMG YOU FINALLY HAVE SOMETHING IN YOUR HAND!
Child: MOMMY! WE HAVE BEEN DRIVING IN CIRCLES FOR 2 HOURS, IM HUNGRY WAAAAAA!

DRIVE BACK TO TARGET AT 1:29 pm
Made it! Picked up the 49 pills

DRIVE BACK TO WALMART
Made it! Picked up the 15 pills

Still short 4 pills. Do you think I care? HELL NO!!!!!!! And here’s the cost of this week’s episode of the Amazing Race.

WALGREENS
Zithromax: $612.43 (with discount)$ 497.37 = $3.55 / pill
Malarone: $444.69 (with discount) $238.57 = $3.31 / pill

WALMART
Malarone: $87.08 (NO discount) = $5.80 / pill

TARGET
Malarone: $359.27 (NO discount) = $7.33 / pill

Total Spent on Doc and Meds: 1618.59
Hotel: $80
Food: $50
Gas: $120
Sanity: Priceless

Now, can someone please send me a medal?

OMG, I’m now 18 months into treatment and feeling worse.


Sorry for the title. I vowed in my entire existence that these words would never come out of my mouth let alone my keyboard. I have become my own worst enemy. I am a hypocrite. I am sorry.

Truth is, the past few weeks have kind of put me through the ringer. Yes, I know this is something that you don’t want to hear, especially the newbies. But don’t fret, this soon shall pass.

Most of my symptoms came after eating at Boston Pizza. I have made a promise to myself I would never eat there again. Reason being the last 2 times I ate there, 1) I found a dead fly in my spaghetti 2) I had the worst heart burn and gallbladder pain for 3 days. Rivaled the same pain as I did BEFORE I removed my gallbladder. Go figure.

Then Aunt Flo came to say hi 3 days after and then all hell broke loose. I thought I would recover after she left but nope. It is lingering! Last night wasn’t too hot. So what is it for me? I feel sick. Like I ate something rotten. My head feels spinny like I got drugged and forced to drink a bottle of vodka. My appetite is kind of gone. I crashed a bit hard last night and this morning couldn’t get out of bed until 9:30 am. My poor 6 year old wouldn’t have made it to camp if my husband wasn’t home to drive him.

So anyhow, this is where I am at. I am toying with the idea of purchasing this: HUMAWORM. They have a pretty informational website. I have read very good reviews, complete with pictures of toilet adventures of people digging through poop for evidence. If you have tried this, please comment, would love to hear your results, but don’t necessarily want to see your poop.

I see my lovely doc in a month and can’t wait to see what she has for me next. I’m being sarcastic. I seriously thought that I would be done and over this crap by end of this year. I am not too sure given the festivities that happened the past couple of weeks.

It’s good to have friends out there who know what you are going through. Kevin, (we see the same doc), gently pushed me to send an email to her. Here it is.

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“Hope all is well! I have a some concerns. I am on the Alinia/Artemisinin treatment and on full doses of everything. I couldn’t handle the vegan diet, so am eating meat. I have been doing excellent the past several months and my highest peak was 95%. But in the past 3 weeks or so, I seem to have regressed I would say back down to 75-80%, now having my first lyme symptoms which is freaking me a bit out. The biggies are nausea, loss of appetite, dizziness and vertigo and some minor fatigue. But enough for me sometimes to crash hard. These have been re-occuring symptoms but again the past few weeks/days have gotten severe. What do you make of this? What should I do? I see you in Sept 11. Should I wait until then to assess?

Response:

“This may be herx. Make sure to do detox/homeopathic detox/herx treatment. If you need to lower the doses of the supplements. Let me know if it still is a problem.”

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My question is, how can your herx be WORSE 6 months into a treatment regimen? Isn’t it supposed to get better? Just sayin’.

Today I also did the usual monthly blood work. Blah. My levels have been pretty steady the past few months. Ok so that’s it. Nothing else. I am hoping my next post will not be talking about poop. But if I decide to purchase the Humaworm, it may very well be. Stay tuned.

It’s the most wonderful time of the year.


So, I ran out of my Alinia and had to go get a refill now across the Niagara border. YAWN. BORING. We decided to make it an adventure and stay the night. Little 6 year old buddy doesn’t recollect ever seeing the falls even though we brought him there 2 years ago. Kids and their memories huh? GEEZ. You would think they would remember seeing something significant like 6 million cubic feet of water falling ever minute.

The truth shall set you free.

We felt like we were in the twilight zone. We literally breezed through the border crossing into the US. No lineups.

Border Patrol Guy: What is the nature of your business.
Me: Picking up medication.
Border Patrol Guy: How long will you be in the United States.
Me: About 10 minutes.
Border Patrol Guy What is this medication for.
Me: Lyme Disease.
Border Patrol Guy: (Pauses) I don’t even know what that is. But here you go (hands us back passports)
Me: Great. Thanks. (Douchebag)

10 minutes later, we come back but are now stuck in 25 minute border traffic.

Border Patrol Gal: What is the nature of your business.
Me: Picking up medication.
Border Patrol Gal: How long have you be in the United States.
Me: About 10 minutes.
Border Patrol Gal What is this medication for.
Me: Lyme Disease.
Border Patrol Gal: Why aren’t you allowed to get it in Canada?
Me: I don’t know, ask the Government
Border Patrol Gal: How much was it?
Me: About $50
Border Patrol Gal: Can I see your paper work?
Me: Yes, here you go. (prescription from LLMD, invoice for $50 for the meds, delivery notice to the mailbox)
Border Patrol Gal: Thank you, you are free to go. Have a nice day.
Me: Thanks!

So lesson learned. Don’t lie, don’t act skittish, don’t stress, just tell the truth. Have your paper work. Then all is golden.

There will no photos of border crossing, or stupid alinia pill shots, or traffic. Just some amazing shots I took of our little one day vacation over by the Falls. Of the 33 years that I have been living in Toronto, this was the first time that we did “Journey Behind the Falls“, a self guided tour where you are literally right beside the falls. When I say literally, I mean like you go down an elevator, put on a plastic rain coat and get soaked from just standing.

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This is a picture of the hallway at the Sheraton. I walked this by myself at 12:00 am and literally freaked myself out.

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In other news, this appeared in our local paper. Kevin, our local celebrity from “Lyme Savers” was also mentioned. Way to go Kevin!

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Last on my list of news, I downloaded a totally useless iPad game called “PLAGUE” INC.” for 99 cents. It allows you to create a disease and infect people all over the world. The goal is to see how fast you can make it go global. I named the disease “EMYL”, which is LYME backwards. It’s such a dumb mindless game and I really could have spent that 99 cents elsewhere like perhaps throwing it in the gutter, but I really paid for it so I can take these nice screenshots for you. See what I do for you?

Now I’m not totally sure why my iPad looks yellow here, because it’s actually white. But this game is stupid and I have already deleted it.

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Update my myself

I am not sure what to make of myself. For about a month or so, I have been operating on a low steady herx of about a 1 on the scale. I am not sure if the A-Bart is doing its job, or if I have just plateaued. I feel like I need that extra push to get me through that golden gate of 100%. It feels like I am near though. I have been semi symptom free now for maybe several days, but little symptoms come and go. I see the doctor beginning of September so we shall see what the future holds.

This stuff is kinda nasty.


a-bart

Hmmm. What to write. What to write.

Well, I started A-Bart 3 days ago. It tastes pretty gross. Apparently it’s very potent and even one drop of it can send you into some fit of despair. As says my doc. She advised me to start one drop in 4 TBSP of water and work my way up to 5 drops 2x a day. Or even start at half a drop. Hmm. If you can tell me how to do half a drop out of an eyedropper, please let me know.

I have been progressively getting better however the last 2 weeks, I have been feeling a bit wierdo. Like symptoms from way back are popping up. It’s almost like things are happening in reverse. I read somewhere that as you get better, the first symptoms that appeared will be the last symptoms to go. Does this make sense? So for me here’s my latest annoyances.

  • It feels like I am regurgitating food. Like there is pieces of food stuck in my throat. I know. Gross right? This was one of my very first symptoms that prompted me to see a GI doc and drink this nasty chalky liquid stuff while teeter tottering on a table. And they came to the conclusion that I had Acid Reflux.
  • This trembling that cannot be seen by anyone but me. I asked my husband if he saw my head shaking and he’s like “huh?”. “Oh you mean like old people?”. I said yes. So I tried to sit very still for 60 seconds while he watched my head. He couldn’t see it.
  • Sometimes when I’m at a height of a flare, I feel really nauseous. Like even the sound of my 6 old running up the stairs will make the nauseousness worse. I tried to explain it to my husband and God bless his soul, but he was as confused as a homeless man on house arrest (I couldn’t even come up with that joke, I had to google it). Ok seriously, does that make sense? I said it’s like when a person has a migraine and even a pin dropping would make their migraine worse. Like over-sensitivity to lights. But instead over-sensitivity of sound that makes you wanna barf. Yes? No? OK. I give up.

Here are 2 video’s of Kevin from Lymesavers.ca when he and Dr. Murakami appeared on a local TV Show. I met him at a coffee shop a couple of weeks ago and we spent an hour discussing the sordidness of Lyme. I swear that my story is EXACTLY the same as his. If you put my body on that couch talking to that woman (who BTW needs to find a new profession), I would have said the exact same thing. WORD FOR WORD.

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Last but not least, this is a bit of old news, but my secret guilty pleasure is watching The Real Housewives of Beverly Hills. One of the housewives on there who is married to the musician David Foster recently found out she had Lyme. She realized that while filming the show, things were not right and finally at the season finale reunion (you know with all the shouting back and forth), she knew that when she couldn’t defend herself properly with all the other women, that something was very wrong. Lyme had infected her brain resulting in Neuroborreliosis. Anyway, here’s her story. And I hope she can bring Lyme to light with her celebrity.

Lyme Awareness Poster for you to Share


What I really should have been doing was work, but my brain was telling me to design this poster. I was thinking more like an infographic, however I wasn’t in the mood to draw stick figures of doctors poking and prodding while scratching their heads, so instead, I opted to use just words.

Hope you enjoy and please feel free to share with everybody and anybody who will listen.

icon_pdf If you want a high res PDF of this file to print and stick over all the trees in your neighbourhood, click here. The dimensions are 8.5 x 17.

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Thanks to Paula over at The Lyme Maze for helping me proof read this with her sharp eye capabilities.

The big variety show


Crawling out of the Bad Station

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I’ve been told that Lindsay Price is my doppelganger, so I found this image appropriate for this illustration, but I am seriously no way near what she looks like, I am probably more closer to gollum right now at this point.

We went to help some friends set up for an event on Friday night and I don’t know what happened, but something landed me in bed / couch for the next 48 hours. My 6 year old doesn’t like to say the word “hell”. He calls it the “Bad Station”.

“Mommy, do bad people go to the Bad Station when they die?”

So I guess that’s where I’ve been. At the Bad Station. I’m pulling out of it as I type this (I hope), but I’m pretty sure it’s a huge die off. I haven’t had one like this since here which was about 10 months ago. And on Saturday, I had to go to a party with a guest list of 150 people while trying not to puke or fall down from vertigo. There are many possible factors why this happened.

  1. It was the 7th day into my new pulse with the headliner artemisinin. I am on 200 mg (2 pills 2x a day).
  2. Bab 2 – I’m at about 20 drops 3x a day.
  3. I was doing this crest 14 day teeth whitening because we are going on a trip and not sure how harmful it is.

artSo this set of symptoms were very heightened. On Saturday night, I was literally ready to die at 3 am. I don’t like to be overly dramatic when it comes to herxes, but this was pretty bad. It was like the worst flue ever minus the fever. I felt like barf, I was hot and cold, I got chest palps, I had burning in my hands and legs, my head was drunk, I had a headache out the wazoo. A fleeting thought of going to the ER breezed through my head, but I knew that would have been a waste of time, and my mental state then was if it was my time to go, then it was my time to go, I was just so sick of fighting this.

Sunday had me pretty much on the couch googling Artemisinin and die off along with playing Mario Kart with the 6 year old.
“Mommy! it’s your turn, comon!”
“Wait! I’m trying to find out if Artemisinin makes u want to die!”

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Whatever the case is, I think I might need to lower the dose because we are on a plane next Wednesday. And god forbid that I experience anything on our trip. I will kill someone.

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Here’s the Bab2 by Beyond Balance that I am on that treats Babesia. Check out the the Suggested Use disclaimer. It should actually say “Discontinue if NO unusual symptoms occur”.

Adventures in plant eating

So this vegan, low fat diet is killing me. To my vegetarian friends, I love you all, thanks for sending me all the recipes and stuff, I need to still go through them, but man, this diet is HARD. I am currently being treated for Protomyxzoa Rheumatica (Formerly FL1953). My doc said if I can’t handle it, I can go on the South Beach Diet and eat only lean cuts of meat. The key is to minimize the intake of fat, which is what the organism feeds on. It’s all very complicated and I don’t know how to explain it and I don’t feel like explaining it.

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Wendy’s baked potato with Sour Cream and chives. Probs not on the low fat list.

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Yummy cantaloupe!

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Never heard of this until I saw it some blog and bought it. Tastes like turkey! You gotta wonder what they put in this stuff to make it taste like turkey?

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This dish was an epic fail. It tasted HORRIBLE. It was a curry tofu I tried to make.

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Tofu!

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Vegan Burger!

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Who doesn’t like asparagus?

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This is an apple cinnamon crock pot oatmeal that came out really good. Here’s the recipe.

Detox

Went to get my blood drawn for my monthly labs and this happened again. Everything on my labs were within normal range! Can you believe that! EXCEPT, my liver enzymes are up again. They are at around 54. Doc told me to go on a liver detox again. So I am doing this detox by Pekana. Put all the drops in 1 litre of water and drink throughout the day. It should flush liver and kidney.

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Good Old IgeneX

Last but not least, I got my husbands IgeneX results. 12 days in total wait. Not bad. I included my IgeneX and our son’s IgeneX. My husband has no symptoms. He shows an IND on 2 specific bands which are 34 and 39. However, 41 can be anything. I’m not going to spend too much time on this because he has no symptoms and remember, Lyme is all about symptoms. If you are new to Lyme and need to know how to interpret results, read my post here. If you want to know the difference between IGM and IGG, click here.

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We are off to Disney World Resort next week coupled with a 4 day cruise on Disney’s Fantasy Cruise Ship. Can’t wait! In the meantime, I found this excerpt and would like to share it with you. I don’t remember which LLMD who wrote this, but it was in the Lyme Book I bought. God has helped me so much this past year and I’m 100% certain that this has played a role in my continued healing.

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“Casting all your care upon him; for he careth for you.”

1 Peter 5:7

Wanna meet Dr. Murakami?


Hello Everyone! Kevin from lymechronicle.blogspot.ca has been a busy bee lately. He has started a project called Lyme Savers. Their mission is to alleviate some of the financial burdens associated with chronic Lyme Disease – allowing patients to get the help they both require and deserve to return to good health. They are having a Lyme Walk in Whitby on May 11, 2013.

Also, he has arranged for Dr. Murakami to come and speak! Dr. Murakami will be here on May 10, 2013. I was fortunate to be able to speak with Dr. Murakami last year over the phone. He graciously advised me on which tests to get and listened to me ramble on and on about symptoms. Dr. Murikami has helped thousands of Lyme patients recover. Here is more info on his website: murakamicentreforlyme.org. Please help spread the word and we hope to see you there! I will be! Would love to see any comments below if you can make it! Details below.

 

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It might cost me $7695 to have my own baby.


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I ventured off to the States to see my Doc. This will be my 3rd in office visit and my 1 year appointment. Overall, it went very well. When has it not? My doc is the best. She makes you feel so relaxed and spends time answering your questions, sharing her expertise. And what’s best about her is that she admits she doesn’t have all the answers. Lyme is such an unknown realm. I can tell she keeps really updated with new findings and research. That is very important as Lyme keep evolving.

So I had to go off meds for about a week and a half due to this recent bugger here. Which was good because I went back and gorged on meat like it was going out of style. Symptom wise, they were slowly but surely creeping back. The body buzzing, slight tremor feeling and vertigo all came back to pay me a visit while on my little medication hiatus, reminding me that their fun wasn’t over.

So I will continue on the same treatment plan now which is kind of unpublished so I won’t go into too much detail however it involves the vegan diet and I will be targeting Babesia specifically with one antibiotic and a mammoth supply of supplements that will make me go bankrupt and cry.

I had documented on my progress chart that I was at about 85-90% and she was very happy to hear that. I asked how much longer treatment will be and was told maybe end of this year or next year. “WHATTT?” I screamed! That took me by surprise! This is what she keeps telling me over and over and I need to print it off and paste it on my forehead.

Lyme is not about tests. It’s about symptoms.

I have spoken to many other patients who see the same doc and who were put on Mepron, so I asked why I was never put on Mepron. And Mepron will for sure drain your bank account like a sucking leech, I’ve heard that it is $1000+ a month. So anyway, the reason was most likely due to my symptoms at the beginning. If a person was really fragile, then they would most likely be put on Mepron. If the person was functioning and their immune system was doing some work, then they would most likely be put on the pulses. Also findings were if people were put on the pulses and they were really sick in the beginning, they would have severe die-off. So the Mepron is to lessen that load so to say.

So, the reason for my dramatic over the top title of this post.

I asked when would it be possible for me to have another kid. You know, to stop all those stupid questions from people asking me when I’m having another kid. I usually answer these questions with another question like “When are you having YOURS?” Who cares if the aunt is in her 70’s. Read more comebacks here. Some are brutal.

Well, here is the deal if you don’t know. There are many cases of congenital Lyme. I think that is how my 6 year old may have been exposed. For me, I don’t think I am quite ready yet at this stage but if I did later on, and depending on my symptoms then, especially if the babesia symptoms were still lingering, she will have me on a couple of antibiotics AND the Mepron. Mepron at the pregnancy dosage would cost about $7000 for 9 months. Kill me now. Also, she said that you can get the cord blood tested. Where? I don’t know. If you know how to do this in Ontario, someone please tell me, I’m too lazy to search right now. I just did 90 squats.

So, here is my 30 day squat challenge. That is because I need to look Bikini Hot when we go on our cruise in 3 weeks. After all, I gained 10 pounds and my skeletor profile is no longer. BOO.

Here is the squat chart for you if you feel motivated.

Day 1 50
Day 2 55
Day 3 60
Day 4 Rest
Day 5 70
Day 6 75
Day 7 80
Day 8 Rest
Day 9 100
Day 10 105
Day 11 110
Day 12 Rest
Day 13 130
Day 14 135
Day 15 140
Day 16 Rest
Day 17 150
Day 18 155
Day 19 160
Day 20 Rest
Day 21 180
Day 22 185
Day 23 Rest
Day 24 190
Day 25 195
Day 26 200
Day 27 Rest
Day 28 205
Day 29 210
Day 30 215

So overall the appointment went well. $1295 Cha ching! Damn! That is a frigging plane ticket to the Maldives. But of course, Hubby always puts things in perspective for me saying if I don’t get well, there will be no Maldives.

While we were at my docs, I also got him tested with the Igenex #188 and #189. Just because. And I don’t tell anyone because they will think I’m paranoid and crazy. But screw them. While the nurse was drawing his blood, my 6 year old was looking on and the Nurse says to him, “Isn’t your daddy brave?” My 6 year old looks at her and says “Um, I did this last year.

In other Lyme news, guess what? The Niagara Falls lights AND the Peace Bridge are going to turn green on May 17, 2013!  Marlene is an awesome Lyme Advocate. See more info here as well as more info on the Brampton Lyme Walk that she is organizing.

This post is very scattered and off tangent, not my usual style, but I have been on this computer now for 12 hours straight and if I am here any longer, I might just turn into a computer.

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