lymed out

my quest to getting these suckas out!

Archive for the tag “lyme pregnancy”

It has been….


1 year, 4 months, 23 days since my last entry post.
2 years, 6 months, 3 days since my last lyme med.
5 months, 2 days since my last menstrual period.
🙂

baby

Yep. I am exactly 22 weeks today and I am 41.

I remember thinking back that my first set of “any” symptom was about 8 years ago. Before that I considered myself really healthy and hadn’t even seen a doctor 10 years prior to that. But here I am. I remember that when all my symptoms started, there was no way to expand my family because I was simply too sick and too tired and too old and that time was my enemy.

Well, screw all that. I figured out that if I don’t have another kid by 42, then I really won’t have a chance. This I consider my miracle baby because I had a dream about this baby a few years ago, right in my middle of my illness. (if you read that link, you will see why). I never thought that it would come true and believe me, I thought because I had this dream, that it would be easy as pie to actually conceive because God was in my favour, but it wasn’t. It took 7 months of trying and I was just ready to say forget it again just at that 7th month. But other insane supernatural things began to happen around this time, which I will probably have to explain in another post, but here we are now.

I have had every test done possible so far with my OB to test for the health of this baby and so far everything looks good. I am believing in that promise that God gave me so long ago that this baby will be healthy as can be.

This past week however has been one disaster after another:

  • Friday – started to get a sore throat (probs from 9 year old hacking)
  • Saturday – icky, headache
  • Sunday – had booked a trip for the weekend out of town and it was looking like I wasn’t going to have fun. Nights were terrible and it felt like someone poured liquid lava down my throat.
  • Monday – was determined not to have whatever ailing me to bring me down. Because I was preggo, this prohibited me from doing any sort of activity, but it was fun nonetheless watching my 65 year old mom do zip-lining with my husband for the first time. I felt like an old grandma taking kids to the amusement park because all I could do was sit on benches. I started experiencing that wierd cough I had last year similar to what I had after my pneumonia. It was bouts of uncontrollable coughing to the point of vomiting. When the attack comes, it’s enough to make you leave the presence of everyone out of embarrassment. You start tearing. Your face turns blue. The attacks came about 3-5 times a day.
  • Tuesday – on the drive home, husband made me a doctors appt. My Doc was on mat leave so the replacement Doc said I had something but there were missing pieces due to my symptoms. The throat swab showed no strep. I had no fever or chills. So he diagnosis it as allergies most likely because he has no answer. Despite the fact that I have never had any history of allergies
  • Wednesday Morning – my husband was a witness to one of my coughing fits and him being a person with seasonal allergies for most of his 42 years of life deemed that “my coughing was no allergy”.
    Wednesday Night
    – My left eye began to hurt, like someone threw sand in it. Ughhhh Ok what now? After 30 min of rubbing it, I went to the mirror to see what in the living earth was going on. I saw pieces of yellow stuff. Gross! I wiped it away thinking something probably got stuck in it. But wait, there was more, up all the way behind my upper eyelid? WTH?? Hello Google. Hello pink eye.
    1:00 AM – Feel asleep dreaming of pink eye and then got up to use the bathroom (which is now a nightly 6x habit due to the baby hugging my bladder). Had to blow my nose from bad congestion and then immediately later felt like something was falling out of it. If I had not switched on the light in the pitched black, then I would not have seen the Niagara Falls of a bloody mess spewing down my nose. I texted my husband (who was in the basement at that time doing gawd knows what), “come up, I think I’m dying.” I haven’t had a bloody nose since I was 16. Now, from my past experience, I knew that when a major blood clot came, that it signaled the end of the nose bleed. And guess what, it happened again. This blood clot was the nastiest thing if ever I have witnessed in my human existence. It was like a long 10 inch of a red alien thing that looked like it came out of Ripley’s stomach. I am pretty sure it had teeth.
  • Thursday morning bright and early – went back to doc, but to the walk-in this time – “Your pink eye is viral, not bacterial” she says “so antibiotics won’t help. Plus you are pregnant, so I can’t give you anything. If it persists, come back in 3 days. But that’s a Saturday, and we won’t be open. Ok bye!” Well, according to Google, yellow pus = bacterial. Whatever. I went to my health food store, asked the lady and she told me to buy this. Guys, my eyes are white again.
  • Thursday Night – My cough however was getting worse. My ribs and muscles now hurt. At one point I coughed so bad, I had to change my panties because I peed! My friend mentioned whooping cough at some point, but I dismissed it. But that night when I was awoken from my precious dream of red bloody aliens, I actually heard the “whooping” in between coughs as I couldn’t catch my breath. I figured out the reason I never heard it during the day was because I was trying to stifle it. I found this site. And I am 100% certain that this is what I have. Same thing as last year only I was never diagnosed. So armed with info, guess what I did?
  • Friday morning bright and early – went back to the walk-in, got a different doctor, told him I think I have the whooping cough and that Zithromax was given to me last year. “Oh but Miss, have you been around or heard anyone with the whooping cough?”. Um No. “You don’t have the whooping cough, you have a bad viral something, but because you are pregnant, I can’t give you anything except Amoxicillin. Or you can drink lots of water and keep your humidifier on 24/7.” Gee thanks. I said No to the Amox and left. I decided this was just like lyme, but with something else. And really, I am just tired of trying to prove anything to anybody, so I said to hell with it, went to the mall and paid $220 for a haircut that I never knew would cost $220.

I have figured out now through this journey that nobody really gives a shiznick about you. I am not saying this because I am feeling offended or anything but this is the reality. With this latest crap of sickness, I don’t really care, I just know that I will get better, I’m not going to waste time trying to figure it out, go on Google, worry about the baby, I will just trust that everything will work itself out.

My guilty pleasure is The Real Housewives of Beverly Hills and I have watched Yolanda Foster’s journey. This entire season, her lyme was questioned and she was shown in the spotlight as having Munchausen Syndrome. The editing was so good on it, it even made me question her illness and sanity which in itself is insane seeing I went through the exact same thing as she! But I had to jolt myself back to reality. The thing is, nobody will get it unless they are in your shoes, in your body, in your head 24/7. Nobody will understand. And that makes you feel alone. I get it. For me, I find the situation worse when I have to try to convince other people of what I went through or what I am going through, it is just an added stress. So I have finally figured out that it’s useless to even bother talking about it to anyone who doesn’t understand. THEY. WILL. NOT. GET. IT.

Scrolling through my useless FB feed, this news pulls this up. Paralysis: Vet Intern Discovers Dog’s Condition Caused By Tick Before Euthanization. Sure, this makes national headlines and yes, it’s a feel good story and I’m glad the dog is ok, but if a frigging tick can do this to a dog, do people not realize what it can do to humans? Can I just say a big hashtag of DUMB?

Sorry enough ranting. Hope ya’ll are doing good.

It might cost me $7695 to have my own baby.


states

I ventured off to the States to see my Doc. This will be my 3rd in office visit and my 1 year appointment. Overall, it went very well. When has it not? My doc is the best. She makes you feel so relaxed and spends time answering your questions, sharing her expertise. And what’s best about her is that she admits she doesn’t have all the answers. Lyme is such an unknown realm. I can tell she keeps really updated with new findings and research. That is very important as Lyme keep evolving.

So I had to go off meds for about a week and a half due to this recent bugger here. Which was good because I went back and gorged on meat like it was going out of style. Symptom wise, they were slowly but surely creeping back. The body buzzing, slight tremor feeling and vertigo all came back to pay me a visit while on my little medication hiatus, reminding me that their fun wasn’t over.

So I will continue on the same treatment plan now which is kind of unpublished so I won’t go into too much detail however it involves the vegan diet and I will be targeting Babesia specifically with one antibiotic and a mammoth supply of supplements that will make me go bankrupt and cry.

I had documented on my progress chart that I was at about 85-90% and she was very happy to hear that. I asked how much longer treatment will be and was told maybe end of this year or next year. “WHATTT?” I screamed! That took me by surprise! This is what she keeps telling me over and over and I need to print it off and paste it on my forehead.

Lyme is not about tests. It’s about symptoms.

I have spoken to many other patients who see the same doc and who were put on Mepron, so I asked why I was never put on Mepron. And Mepron will for sure drain your bank account like a sucking leech, I’ve heard that it is $1000+ a month. So anyway, the reason was most likely due to my symptoms at the beginning. If a person was really fragile, then they would most likely be put on Mepron. If the person was functioning and their immune system was doing some work, then they would most likely be put on the pulses. Also findings were if people were put on the pulses and they were really sick in the beginning, they would have severe die-off. So the Mepron is to lessen that load so to say.

So, the reason for my dramatic over the top title of this post.

I asked when would it be possible for me to have another kid. You know, to stop all those stupid questions from people asking me when I’m having another kid. I usually answer these questions with another question like “When are you having YOURS?” Who cares if the aunt is in her 70’s. Read more comebacks here. Some are brutal.

Well, here is the deal if you don’t know. There are many cases of congenital Lyme. I think that is how my 6 year old may have been exposed. For me, I don’t think I am quite ready yet at this stage but if I did later on, and depending on my symptoms then, especially if the babesia symptoms were still lingering, she will have me on a couple of antibiotics AND the Mepron. Mepron at the pregnancy dosage would cost about $7000 for 9 months. Kill me now. Also, she said that you can get the cord blood tested. Where? I don’t know. If you know how to do this in Ontario, someone please tell me, I’m too lazy to search right now. I just did 90 squats.

So, here is my 30 day squat challenge. That is because I need to look Bikini Hot when we go on our cruise in 3 weeks. After all, I gained 10 pounds and my skeletor profile is no longer. BOO.

Here is the squat chart for you if you feel motivated.

Day 1 50
Day 2 55
Day 3 60
Day 4 Rest
Day 5 70
Day 6 75
Day 7 80
Day 8 Rest
Day 9 100
Day 10 105
Day 11 110
Day 12 Rest
Day 13 130
Day 14 135
Day 15 140
Day 16 Rest
Day 17 150
Day 18 155
Day 19 160
Day 20 Rest
Day 21 180
Day 22 185
Day 23 Rest
Day 24 190
Day 25 195
Day 26 200
Day 27 Rest
Day 28 205
Day 29 210
Day 30 215

So overall the appointment went well. $1295 Cha ching! Damn! That is a frigging plane ticket to the Maldives. But of course, Hubby always puts things in perspective for me saying if I don’t get well, there will be no Maldives.

While we were at my docs, I also got him tested with the Igenex #188 and #189. Just because. And I don’t tell anyone because they will think I’m paranoid and crazy. But screw them. While the nurse was drawing his blood, my 6 year old was looking on and the Nurse says to him, “Isn’t your daddy brave?” My 6 year old looks at her and says “Um, I did this last year.

In other Lyme news, guess what? The Niagara Falls lights AND the Peace Bridge are going to turn green on May 17, 2013!  Marlene is an awesome Lyme Advocate. See more info here as well as more info on the Brampton Lyme Walk that she is organizing.

This post is very scattered and off tangent, not my usual style, but I have been on this computer now for 12 hours straight and if I am here any longer, I might just turn into a computer.

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